A case report: ethics of a proposed qualitative study of hospital closure in an Australian rural community

Fraser, John D.

doi:10.1093/fampra/cmh119

Cited by 5 publications

(4 citation statements)

References 19 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…This may result in stigmatisation of either the individual or the community if controversial information is revealed. The problem of identification of individuals who might have contributed to the data base of his study by others in a small rural community led Fraser to abort his qualitative study on the closure of the local hospital (Fraser 2004). He reported that the study was potentially divisive and could harm the community in which it was to take place.…”

Section: Autonomymentioning

confidence: 99%

Ethical issues relating to qualitative research

Jelsma

Clow

2005

South African Journal of Physiotherapy

View full text Add to dashboard Cite

Section: Autonomymentioning

confidence: 99%

Ethical issues relating to qualitative research

Jelsma

Clow

2005

South African Journal of Physiotherapy

View full text Add to dashboard Cite

“…The Commissioner did not make reference to the research study's governance structures, such as the relevant Human Research Ethics Committee (HREC). In failing to do so, it remains unclear as to what action may have been taken by the relevant HREC, what involvement or knowledge various members of the practice's clinical team may have had regarding the study or recruitment, 4,5 or how the study design and recruitment procedures may have influenced the action taken by the practice before and after the breach.…”

Section: Lessons For Practices and Practitioners: Responding Swiftly ...mentioning

confidence: 99%

Privacy breaches and electronic communication: Lessons for practitioners and researchers

Carter

Hartridge

2022

Aust J Gen Pract

View full text Add to dashboard Cite

BackgroundIn the era of socially distanced clinical and medical research practices, the use of electronic communication has flourished. The Australian Information Commissioner recently ordered a Victorian general practice to pay $16,400 in compensation following a breach of privacy. This is the largest award of compensation made by the Commissioner in the context of a medical or healthcare privacy matter. The practice had inadvertently sent an email containing sensitive information to an incorrect email address. The email included information concerning the human immunodeficiency virus status of the complainants.

show abstract

“…The converse of this argument is that a local research ethics community will be more familiar with issues affecting rural health research, such as small populations, issues related to concurrent clinical roles and where informed consent and autonomy of a community is difficult to achieve. [2][3][4] Another limitation of this evaluation is that the database from July1992 to June 1998 was not complete for all projects. Some research proposals were directly approved by the Chief Executive Officer in the period 1992-1998.…”

Section: Limitationsmentioning

confidence: 99%

“…2 Often the proposal will not recognise the logistics of translating the research from an urban setting to a smaller or cross-cultural population. 3,4 A research project may be scientifically and ethically valid but ignore the logistics of implementation within a different setting. For example, shortages of personnel or equipment within a rural region may mean the local HREC decides that a project ethically should not proceed.…”

mentioning

confidence: 99%

The impact of the Research Methods Support Structure on research capacity in rural New South Wales

Fraser

Hawkins²,

Alexander³

et al. 2006

Aust. Health Review

View full text Add to dashboard Cite

Objective: This paper evaluates a Research Methods Support Structure (RMSS) to foster research capacity in the New England region of rural New South Wales. Methods:A quasi-experimental design with a historical control for comparing changes in the number of research submissions and research approval rates since the RMSS inception in July 1998 until December 2004. Results:Comparing the two reporting periods, the total number of research submissions increased from 58 to 197, or 9 per year to 30 per year (odds ratio [OR], 3.33; 95% CI, 1.15-9.90; χ 2 = 5.06; P = 0.02); and the total number of ethics approvals increased from 33 to 145, or 5 per year to 22 per year (OR, 2.11; 95% CI, 1.10-4.06; χ 2 = 5.17; P = 0.02). Submissions were 2.11 times more likely to receive ethics approval after the inception of the RMSS, with an increase in overall approval rates from 57% to 74%. Locally based rural researchers were 4.89 times more likely to have their submitted research ultimately approved after the inception of the research methods support structure (OR, 4.89; 95% CI, 2.11-11.41; χ 2 = 16.06; P < 0.001). HUMAN RESEARCH ETHICS COMMITTEES (HRECs)have a legislated duty to protect the wellbeing of research participants. 1 HRECs must balance this duty against ensuring protection of the rights of society and researchers. Local HREC input is vital to ensure human health research is conducted in compliance with the national statement on the ethical conduct of human research. 1,2 At times, research approved in an urban setting will be validly rejected on ethical grounds by a local rural research ethics committee. 2 Often the proposal will not recognise the logistics of translating the research from an urban setting to a smaller or cross-cultural population. 3,4 A research project may be scientifically and ethically valid but ignore the logistics of implementation within a different

show abstract

A case report: ethics of a proposed qualitative study of hospital closure in an Australian rural community

Cited by 5 publications

References 19 publications

Ethical issues relating to qualitative research

Ethical issues relating to qualitative research

Privacy breaches and electronic communication: Lessons for practitioners and researchers

The impact of the Research Methods Support Structure on research capacity in rural New South Wales

Contact Info

Product

Resources

About