A Code of Professional Ethical Conduct for the American Medical Informatics Association: An AMIA Board of Directors Approved White Paper

Hurdle, John F.; Adams, Samantha; Brokel, Jane M.; Chang, Betty L.; Embí, Peter J.; Petersen, Carolyn; Terrazas, Enrique; Winkelstein, Peter

doi:10.1197/jamia.m2456

Cited by 10 publications

(5 citation statements)

References 1 publication

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Patients are likely to never see, nor will they ever directly input, data into their hospital’s EPR system, yet that system will form a cornerstone of their care. This creates a potential barrier to patient and public understanding of ethical considerations and potential safety issues that might arise from EPR and biomedical data use [ 34 , 35 ]. In terms of patient EPR awareness, this situation is slightly different for renal patients living in areas where Renal Patient View is available.…”

Section: Key Findingsmentioning

confidence: 99%

Practice-centred evaluation and the privileging of care in health information technology evaluation

Darking

Anson

Bravo

et al. 2014

BMC Health Serv Res

View full text Add to dashboard Cite

BackgroundElectronic Patient Records (EPRs) and telemedicine are positioned by policymakers as health information technologies that are integral to achieving improved clinical outcomes and efficiency savings. However, evaluating the extent to which these aims are met poses distinct evaluation challenges, particularly where clinical and cost outcomes form the sole focus of evaluation design. We propose that a practice-centred approach to evaluation - in which those whose day-to-day care practice is altered (or not) by the introduction of new technologies are placed at the centre of evaluation efforts – can complement and in some instances offer advantages over, outcome-centric evaluation models.MethodsWe carried out a regional programme of innovation in renal services where a participative approach was taken to the introduction of new technologies, including: a regional EPR system and a system to support video clinics. An ‘action learning’ approach was taken to procurement, pre-implementation planning, implementation, ongoing development and evaluation. Participants included clinicians, technology specialists, patients and external academic researchers. Whilst undergoing these activities we asked: how can a practice-centred approach be embedded into evaluation of health information technologies?DiscussionOrganising EPR and telemedicine evaluation around predetermined outcome measures alone can be impractical given the complex and contingent nature of such projects. It also limits the extent to which unforeseen outcomes and new capabilities are recognised. Such evaluations often fail to improve understanding of ‘when’ and ‘under what conditions’ technology-enabled service improvements are realised, and crucially, how such innovation improves care.SummaryOur contribution, drawn from our experience of the case study provided, is a protocol for practice-centred, participative evaluation of technology in the clinical setting that privileges care. In this context ‘practice-centred’ evaluation acts as a scalable, coordinating framework for evaluation that recognises health information technology supported care as an achievement that is contingent and ongoing. We argue that if complex programmes of technology-enabled service innovation are understood in terms of their contribution to patient care and supported by participative, capability-building evaluation methodologies, conditions are created for practitioners and patients to realise the potential of technologies and make substantive contributions to the evidence base underpinning health innovation programmes.

show abstract

Section: Key Findingsmentioning

confidence: 99%

Practice-centred evaluation and the privileging of care in health information technology evaluation

Darking

Anson

Bravo

et al. 2014

BMC Health Serv Res

View full text Add to dashboard Cite

show abstract

“…Some of these obligations are delineated in the American Medical Informatics Association Code of Professional Ethical Conduct, but signifıcant ambiguity remains. 14 The vast majority of patient data will continue to reside in the electronic medical record. With the large capital and operation expense of supporting HIT and the increased capabilities of "big data" mining combined with machine learning, it is inevitable that the secondary use of data will be pursued for both the greater good of population and public health and the revenue stream that can support HIT.…”

Section: Ownership Of Data and The Health Care System As "Curator"mentioning

confidence: 99%

The Ethics of Health Information Technology in Oncology: Emerging Isssues from Both Local and Global Perspectives

LeBlanc¹,

Shulman²,

Yu³

et al. 2013

American Society of Clinical Oncology Educational Book

View full text Add to dashboard Cite

Health information technology (HIT) is ever-increasing in complexity and has incrementally become a fundamental part of our everyday clinical lives. As HIT becomes more complex and commonplace, so do the questions it raises about stewardship and usage of data, along with the ethics of these applications. With the development of rapid-learning systems, such as ASCO's CancerLinQ, careful thought about the ethics and applications of these technologies is necessary. This article uses the principles-based framework of modern bioethics to examine evolving ethical issues that arise in the context of HIT and also discusses HIT's application in reducing cancer care disparities in the developing world. We recognize that this topic is quite broad, so here we provide an overview of the issues, rather than any definitive conclusions about a particular "correct path." Our hope is to stimulate discussion about this important topic, which will increasingly need to be addressed in the oncology community.

show abstract

“…Another U.S. code, by the American Medical Informatics Association (AMIA) is a relatively recent publication. The AMIA code references the AHIMA and IMIA codes and focuses more on duties of health informatics professionals expected towards key stakeholders in healthcare (22).…”

Section: North American Codesmentioning

confidence: 99%

“…The BCS code is acknowledged by the IMIA as an accompanying handbook (22). Similarly, the UK Council for Health Informatics Professions (UKCHIP) code of conduct is adapted from the BCS code (24).…”

Section: European Codesmentioning

confidence: 99%

A Repository of Codes of Ethics and Technical Standards in Health Informatics

Samuel

Zaı̈ane

2014

OJPHI

View full text Add to dashboard Cite

We present a searchable repository of codes of ethics and standards in health informatics. It is built using state-of-the-art search algorithms and technologies. The repository will be potentially beneficial for public health practitioners, researchers, and software developers in finding and comparing ethics topics of interest. Public health clinics, clinicians, and researchers can use the repository platform as a one-stop reference for various ethics codes and standards. In addition, the repository interface is built for easy navigation, fast search, and side-by-side comparative reading of documents. Our selection criteria for codes and standards are two-fold; firstly, to maintain intellectual property rights, we index only codes and standards freely available on the internet. Secondly, major international, regional, and national health informatics bodies across the globe are surveyed with the aim of understanding the landscape in this domain. We also look at prevalent technical standards in health informatics from major bodies such as the International Standards Organization (ISO) and the U.

show abstract

A Code of Professional Ethical Conduct for the American Medical Informatics Association: An AMIA Board of Directors Approved White Paper

Cited by 10 publications

References 1 publication

Practice-centred evaluation and the privileging of care in health information technology evaluation

Practice-centred evaluation and the privileging of care in health information technology evaluation

The Ethics of Health Information Technology in Oncology: Emerging Isssues from Both Local and Global Perspectives

A Repository of Codes of Ethics and Technical Standards in Health Informatics

Contact Info

Product

Resources

About