A comparative analysis of moral principles and behavioral norms in eight ethical codes relevant to health sciences librarianship, medical informatics, and the health professions

Byrd, Gary D.; Winkelstein, Peter

doi:10.3163/1536-5050.102.4.006

Cited by 10 publications

(10 citation statements)

References 10 publications

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“…The ethical use of information based on principles such as beneficence, autonomy and justice can favor the construction of effective interprofessional communication and collaboration, as well as the management and use of information and technology resources in health (15) . Intellectual respect and poor scientific behavior have been discussed, especially in the academic context, as well as policies for control, in countries from the European Union and the US (16) .…”

Section: Discussionmentioning

confidence: 99%

Informatics competencies essential to decision making in nursing management

Jensen

Guedes

Leite

2016

Rev. esc. enferm. USP

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Objective:To identify informatics abilities essential to decision making in nursing management. Method: Survey study with specialist nurses in health informatics and management. An electronic questionnaire was built based on the competencies Information Literacy (five categories; 40 abilities) and Information Management (nine categories; 69 abilities) of the TIGER -Technology Informatics Guiding Education Reform -initiative, with the guiding question: Which informatics abilities are essential to decision making in management? Answers were sorted in a Likert scale, ranging from 1 to 5. Rasch analysis was conducted with the software WINSTEPS®. Results were presented in logits, with cutoff value zero. Results: Thirty-two specialists participated, coming from all regions of Brazil. In the information literacy competency, 18 abilities were considered essential and in Information Management, 38; these were sorted according to their degree of essentiality. Conclusion: It is believed that the incorporation of these abilities in teaching can support the education of nurse managers and contribute to evidence-based practice, incorporation of information and communication technologies in health and information management.

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Section: Discussionmentioning

confidence: 99%

Informatics competencies essential to decision making in nursing management

Jensen

Guedes

Leite

2016

Rev. esc. enferm. USP

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“…One of the key considerations of research ethics committees and institutional review boards is to ensure the safety of participants by evaluating the likely risks (ensuring “non-maleficence”) and benefits (ensuring “beneficence”) of research participation (Byrd & Winkelstein, 2014). When applying for ethical clearance, the researcher needs to state his or her beliefs about the possible risks and benefits for participants and how the risks will be minimized.…”

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confidence: 99%

The Impact of Participation in Research About Abuse and Intimate Partner Violence: An Investigation of Harms, Benefits, and Regrets in Young Adolescents in the Western Cape of South Africa

Appollis

Eggers

Vries

et al. 2017

J Interpers Violence

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There is very little evidence whether recalling and answering questions about abuse or interpersonal violence has a positive or negative impact on participants of such research. This is an important ethical dilemma to ensure an appropriate risk-benefit ratio in research with young people is maintained. We assessed reported harms, benefits, and regrets of young adolescents who participated in a sensitive research project, and compared the harms and benefits in those who had and had not been victims and/or perpetrators of abuse or intimate partner violence. Participants were 3,264 adolescents aged 12 to 15 years in 41 public schools in the Western Cape, South Africa, who completed a survey about intimate partner violence, verbal, physical, and sexual abuse, as part of an HIV prevention cluster randomized controlled trial. The majority of participants reported research participation as beneficial (70.3%), while 27.7% reported harms and 14% regrets. Victims of abuse were more likely than non-victims to report benefits (71.9% vs. 67.1%; p = .02) and harms (31% vs. 20.9%; p < .01) and were less likely to report regret (13.1% vs. 16.7%; p = .02). Perpetrators of abuse were less likely than non-perpetrators to report benefits (67.4% vs. 72.8%; p = .01) and more likely to report harms (36.4% vs. 26.1%; p < .01) and regrets (17.4% vs. 13.3%; p = .01). Our findings suggested that research participation was more likely to have a positive rather than a negative emotional impact on young adolescents and that relatively few regretted participating. Victims and perpetrators of abuse were more likely to report benefits than harms, supporting the ethical appropriateness of ongoing research on abuse and violence. We recommend that further research is required to clarify and standardize terminology and instruments to quantify these kinds of evaluations, including measurement of the severity and intensity of reported benefits, harms and regrets, and the longer term impact of participation in sensitive research.

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“…The aim of the certification solution proposed here is to ensure that appropriate ethical knowledge and understanding is adhered to by HIPs. To engage in professional and technical activities without having the appropriate ethical competence amounts to a violation of the Principle of Fidelity and constitutes malfeasance of duty 21 . Technical proficiency is no guarantee that anyone would use the knowledge, products, or services that are at his/her disposal in an ethically appropriate manner.…”

Section: Resultsmentioning

confidence: 99%

Ethics Certification of Health Information Professionals

Kluge

Lacroix²,

Ruotsalainen

2018

Yearb Med Inform

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SummaryObjectives: To provide a model for ensuring the ethical acceptability of the provisions that characterize the interjurisdictional use of eHealth, telemedicine, and associated modalities of health care delivery that are currently in place. Methods: Following the approach initiated in their Global Protection of Health Data project within the Security in Health Information Systems (SiHIS) working group of the International Medical Informatics Association (IMIA), the authors analyze and evaluate relevant privacy and security approaches that are intended to stem the erosion of patients' trustworthiness in the handling of their sensitive information by health care and informatics professionals in the international context. Results: The authors found that while the majority of guidelines and ethical codes essentially focus on the role and functioning of the institutions that use EHRs and information technologies, little if any attention has been paid to the qualifications of the health informatics professionals (HIPs) who actualize and operate information systems to deal with or address relevant ethical issues. Conclusion: The apparent failure to address this matter indicates that the ethical qualification of HIPs remains an important security issue and that the Global Protection of Health Data project initiated by the SiHIS working group in 2015 should be expanded to develop into an internationally viable method of certification. An initial model to this effect is sketched and discussed.

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A comparative analysis of moral principles and behavioral norms in eight ethical codes relevant to health sciences librarianship, medical informatics, and the health professions

Cited by 10 publications

References 10 publications

Informatics competencies essential to decision making in nursing management

Informatics competencies essential to decision making in nursing management

The Impact of Participation in Research About Abuse and Intimate Partner Violence: An Investigation of Harms, Benefits, and Regrets in Young Adolescents in the Western Cape of South Africa

Ethics Certification of Health Information Professionals

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