A comprehensive description of functioning and disability in children with velopharyngeal insufficiency

Dzioba, A; Skarakis-Doyle, Elizabeth; Doyle, Philip C.; Campbell, William E.; Dykstra, Allyson D.

doi:10.1016/j.jcomdis.2013.05.002

Cited by 10 publications

(6 citation statements)

References 93 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Compared to the other measurements for HRQOL of the VPI patient, the VELO instrument has its advantages. It minimizes the difficulties of completing the questionnaire by decreasing the number of items, which also leads to a better doctor–patient relationship, helps save time and human resources for research, and includes the patients’ health‐related experiences .…”

Section: Introductionmentioning

confidence: 99%

Validation of the Chinese Velopharyngeal Insufficiency Effects on Life Outcomes Instrument

et al. 2019

View full text Add to dashboard Cite

Objectives/Hypothesis: To translate the Velopharyngeal Insufficiency Effects on Life Outcomes (VELO) instrument into Chinese and test its psychometric properties.Study Design: Quality of life instrument translation and validation. Methods: The original English version of the VELO instrument was translated into Mandarin, back-translated, and adapted among the Chinese population, based on the standardized guidelines for the cross-culture adaption process. Velopharyngeal insufficiency (VPI) patients were identified by a professional speech and language pathologist. Internal reliability of the VELO instrument was assessed by the Cronbach's α coefficient. Discriminant validity was tested by the Mann-Whitney U test. Construct validity was assessed by factor analysis.Results: A total of 113 patients with VPI and 72 parents of the patients were enrolled. The mean age of the VPI patients was 14.8 years. Internal reliability was excellent; Cronbach's α coefficients were 0.92 and 0.94 for VPI patients and their parents, respectively. The Chinese VELO discriminated well between the VPI group and the controls, with a mean (standard deviation) score that was significantly lower for the VPI group (74.8 [25.7]) than the control group (98.0 [15.9]) (P < .001). The total scores and scores in the emotional domain or perception domain showed differences between VPI patients and their parents. Similar to the original study, the factor loading after rotation followed hypothesized domains largely, in spite of items from several domains loaded on the same factor.Conclusions: The translated Chinese version of the VELO instrument demonstrated an acceptable reliability, discriminant validity, and construct validity. These psychometric properties suggested theoretical evidence for the further use of the VELO instrument among Chinese patients with VPI.

show abstract

Section: Introductionmentioning

confidence: 99%

Validation of the Chinese Velopharyngeal Insufficiency Effects on Life Outcomes Instrument

et al. 2019

View full text Add to dashboard Cite

show abstract

“…The VELO has many advantages compared to other quality of life tools for assessing VPI. Namely, it allows for patient and guardian-reported outcomes, it is integrated into the HRQOL model for VPI patients, and it is more succinct than other surveys (Ustün et al, 2003; Boseley et al, 2006; Barr et al, 2007; Dzioba et al, 2013; Thomas-Stonell et al, 2013; Shuttlewood et al, 2014). In this study, the VELO was translated into Nepali, adapted to fit the local cultural context through cognitive interviews, and tested for internal consistency, discriminant validity, and concurrent validity.…”

Section: Discussionmentioning

confidence: 99%

“…Velopharyngeal insufficiency is clinically evaluated using nasal air emission, endoscopy, and resonance; however, these measures do not assess VPI’s impact on quality of life. Consequently, VPI-specific quality of life instruments have been developed to evaluate patient and family perspectives, and clinical improvement over time (Ustün et al, 2003; Boseley et al, 2006; Barr et al, 2007; Dzioba et al, 2013; Thomas-Stonell et al, 2013; Shuttlewood et al, 2014).…”

Section: Introductionmentioning

confidence: 99%

Nepali Linguistic Validation of the Velopharyngeal Insufficiency Effects on Life Outcomes Instrument: VELO-Nepali

Lindeborg

Shakya

Pradhan

et al. 2020

The Cleft Palate Craniofacial Journal

View full text Add to dashboard Cite

Objective: To translate and validate the velopharyngeal insufficiency (VPI) effects on life outcomes (VELO) instrument into Nepali, and test its internal consistency and validity. Design: Quality-of-life instrument translation and validation. Setting: Community served by Nepal’s craniofacial referral hospital. Participants: Twenty-three postpalatoplasty children with VPI, 19 family guardians of VPI cases, and 29 non-VPI controls. Interventions: The VELO instrument was translated to Nepali by 2 independent bilingual translators, reconciled, backward-translated, compared, and modified using patient cognitive interviews. All VPI children, guardians, and controls completed the VELO-Nepali. Main Outcome Measure(s): The VELO internal consistency was evaluated using Cronbach α coefficient. Concurrent validity and discriminant validity were assessed using 2-sample t test: assuming unequal variances. Results: The VELO was translated and optimized using cognitive interviews. The VELO-Nepali demonstrated excellent internal consistency, with Cronbach α coefficients of 0.93, 0.94, and 0.90 for VPI cases, guardians of VPI cases, and non-VPI controls, respectively. The VELO-Nepali exhibited strong discriminant validity between VPI cases ([Formula: see text] = 45.4, standard deviation [SD] = 22.1) and non-VPI controls ([Formula: see text] = 84.9, SD = 12.3), ( P < .001). The VELO-Nepali showed strong concurrent validity with similarities in VPI case scores ([Formula: see text] = 45.4, SD = 22.1), and guardian scores ([Formula: see text] = 52.9, s = 22.8; P = .473). Conclusion: The translated VELO-Nepali demonstrates strong internal consistency, discriminant validity, and concurrent validity, and can assess quality of life for Nepali VPI patients. This instrument represents the first VPI quality of life assessment validated in Nepali, and supports the feasibility of its implementation in other low- and low-middle-income countries.

show abstract

“…This is understandable, since individuals with a speech impairment may be devalued by society due to their impaired ability to converse. In addition, speech challenges can influence individuals in other ways, and may be associated with emotional and/ or psychological problems, such as low self-esteem, anxiety, and depression 7 , thus affecting quality of life in those with cleft lip and palate 8 .…”

Section: Literature Reviewmentioning

confidence: 99%

Orofacial myofunctional evaluation in cleft lip and palate: an integrative literature review

2019

View full text Add to dashboard Cite

Purpose: to identify the focus of scientific publications in the field of orofacial motricity in individuals with cleft lip and palate, as well as validated protocols used in speech and language evaluation. Methods: a study conducted using the following databases: Medline, SciELO, Lilacs and Google Scholar, through keywords including: cleft palate + cleft lip + evaluation + speech therapy + stomatognathic system + speech + phonation + chewing + swallowing + breathing + validation studies, in Portuguese and English. Results: a total of 572 articles that addressed the evaluation of the stomatognathic system was selected. The articles were published between 2012 and 2017, and examined for year of publication, subject area, focus, instrument used for evaluation, and type of study. Of these, 90 articles met the inclusion criteria, but only 5 used validated protocols. The greatest number of articles was published in 2014. The studies covered broad age groups, using subjective and objective methods, and instruments were often non-standardized. Conclusion: speech was the prevalent theme, while other orofacial functions were poorly investigated, demonstrating that studies with other approaches were lacking.

show abstract

A comprehensive description of functioning and disability in children with velopharyngeal insufficiency

Cited by 10 publications

References 93 publications

Validation of the Chinese Velopharyngeal Insufficiency Effects on Life Outcomes Instrument

Validation of the Chinese Velopharyngeal Insufficiency Effects on Life Outcomes Instrument

Nepali Linguistic Validation of the Velopharyngeal Insufficiency Effects on Life Outcomes Instrument: VELO-Nepali

Orofacial myofunctional evaluation in cleft lip and palate: an integrative literature review

Contact Info

Product

Resources

About