A dor no cotidiano de cuidadores e crianças com anemia falciforme

Dias, Tatiane Lebre; Oliveira, Christyne Gomes Toledo de; Enumo, Sônia Regina Fiorim; Paula, Kely Maria Pereira de

doi:10.1590/s0103-65642013000300003

Cited by 17 publications

(26 citation statements)

References 34 publications

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“…The intensity of sickle cell pain varies for each patient and age (4) , being described by children as "very painful" or "nonstop pain" (16) . Preschool and school-age children usually report the pain on their limbs, while adolescents report pain on the abdomen (5) . Thus, the professional performance must be systematic, using the appropriate language and terms for each age group so the patient can cooperate, consequently, reducing the painful reactions (6) .…”

Section: Discussionmentioning

confidence: 99%

“…Some studies on the consequences of painful crisis of children who have SCD found that, for both the child and the caregiver, pain causes a great impact on various moments of everyday life (5,24) . Therefore, the limitations of daily activities, the difficulty to control painful episodes and the severity of symptoms can trigger internal problems on the child, such as isolation, sadness, denial and the difficulty of social adaptation (11) .…”

Section: Discussionmentioning

confidence: 99%

“…The first vaso-occlusive crisis, also known as hand-foot syndrome, occurs within the initial months of life, being characterized by pain and swelling in the back of the hands and/ or feet, sometimes accompanied by erythema and localized warmth (4) . This crisis is the greatest clinical manifestation of the disease, being caused by the occlusion of small blood vessels by the sickle-shaped erythrocytes (5) . This is recognized as a mark in the life of the patient, which explains the remarkable demand for emergency care and hospitalization (4) .…”

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The pain of children with sickle cell disease: the nursing approach

et al. 2018

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Objective: To describe how nurses identify the pain in children with sickle cell disease (SCD) and to list the strategies used by them in the evaluation and control of pain. Method: This is a qualitative, descriptive and exploratory research, performed through semi-structured interviews with 13 nurses. The interviews were transcribed and after this process the qualitative data were organized according to thematic analysis. Results: This study showed that the nurses can identify pain in children with SCD from the signals they emit, such as: constant crying, restlessness, facial expressions and verbal reports. Pain is diffi cult to evaluate due to the lack of instruments, such as a pain scale. For pain control they use emotional support, promotion of comfort and the administration of drugs prescribed by the doctor. Final considerations: The nurses recognize the pain of the child and use pharmacological and non-pharmacological methods to control it but have diffi culties to assess it. Descriptors: Anemia, Sickle Cell; Child; Pain; Pediatric Nursing; Nursing Care. RESUMO Objetivo: Descrever como o enfermeiro identifi ca a dor na criança com doença falciforme (DF) e pontuar as estratégias utilizadas por ele na avaliação e controle da dor. Método: Pesquisa qualitativa, descritiva, exploratória, realizada por meio de entrevistas semiestruturadas com 13 enfermeiros. Após transcrição das entrevistas, os dados qualitativos foram organizados segundo análise temática. Resultados: Evidenciou-se que os enfermeiros são capazes de identifi car a dor em crianças com DF a partir dos sinais que elas emitem, como: choro constante, inquietação, expressões faciais e relatos verbais. A dor é difícil de ser avaliada devido à falta de instrumentos, como a escala de dor. Para o controle da dor é utilizado apoio emocional, promoção de conforto e administração de fármacos prescritos pelo médico. Considerações fi nais: Os enfermeiros reconhecem a dor na criança e utilizam métodos farmacológicos e não farmacológicos para controlá-la, porém têm difi culdades em sua avaliação. Descritores: Anemia Falciforme; Criança; Dor; Enfermagem Pediátrica; Cuidados de Enfermagem. RESUMENObjetivo: Describir como el enfermero identifi ca el dolor en el niño con enfermedad falciforme (EF) y puntuar las estrategias utilizadas por él en la evaluación y en el control del dolor. Método: Investigación cualitativa, descriptiva, exploratoria, realizada por medio de encuestas semiestructuradas con 13 enfermeros. Después de la transcripción de las encuestas, los datos cualitativos han sido organizados según el análisis temático. Resultados: Se ha evidenciado que los enfermeros son capaces de identifi car el dolor en niños con EF desde las señales que ellas emiten, como: el llanto constante, la inquietud, las expresiones faciales y los relatos verbales. El dolor es difícil de ser evaluado debido a la falta de instrumentos, como la escala de dolor. Para el control del dolor es utilizado el apoyo emocional, la promoción de comodidad y la administración de fárma...

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

mentioning

confidence: 99%

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The pain of children with sickle cell disease: the nursing approach

et al. 2018

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“…Episodes of pain are the most recurrent among such manifestations and might result in stress, anxiety, depression, frequent hospital admissions and suffering for both patients and their relatives. The most severe cases are associated with productivity loss and socioeconomic, emotional and psychological problems (3)(4) .…”

Section: Introductionmentioning

confidence: 99%

Genetic counseling for individuals with hemoglobin disorders and for their relatives: a systematic literature review

Ferreira

Silveira-Lacerda

García-Zapata

2014

Rev. esc. enferm. USP

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Objective: To identify genetic counseling programs that do not encourage therapeutic abortion for individuals with hemoglobin disorders and/or for their relatives. Method: Systematic literature review of articles published from 2001 to 2012 that are located in the PubMed, LILACS, SciELO and SCOPUS databases using keywords in Portuguese, English and Spanish and that met the inclusion and exclusion criteria described on a standardized form. Results: A total of 409 articles were located, but only eight (1.9%) were selected for analysis. Conclusion: Although seldom mentioned in the literature, educational/preventive programs targeting hemoglobinopathies are feasible and allow the affected individuals to acquire knowledge on the consequences of this condition and their odds of transmitting it.

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“…Com base em pesquisas sobre a percepção de controle no processo de estresse e coping (Skinner, 1992) e sobre a relação entre autorregulação e coping (Skinner, 1999), pesquisadores nacionais têm aplicado essa teoria em diferentes contextos, como o enfrentamento da hospitalização em crianças com câncer (Motta & Enumo, 2010); o enfrentamento materno da internação de bebês prematuros e com baixo peso internados em Unidade de Terapia Intensiva Neonatal (UTIN) (Ramos, 2012) e de bebês com malformações congênitas (Vicente, 2013); o coping de cuidadores de crianças com anemia falciforme (Dias, Oliveira, Enumo, & Paula, 2013) o engajamento de professores de educação inclusiva (Silveira, 2014); e o coping da dor neonatal em médicos e equipe de enfermagem em UTIN (Martins, 2014). Importante ressaltar que, quando comparada à abordagem cognitiva, e mesmo à conceituação do coping como autorregulação (Compas et al, 2001), a TMC difere no que diz respeito ao caráter voluntário do coping, afirmando que as respostas involuntárias ou automáticas também são consideradas respostas de coping (Eisenberg, Valiente, & Sulik, 2009;Lees, 2007;Skinner et al, 2003;Skinner & Wellborn, 1994).…”

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Enfrentamento da morte fetal pela enfermagem na abordagem disposicional e na Teoria Motivacional do Coping

Cravinho¹,

Cunha

2015

Estud. psicol. (Campinas)

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A dor no cotidiano de cuidadores e crianças com anemia falciforme

Cited by 17 publications

References 34 publications

The pain of children with sickle cell disease: the nursing approach

The pain of children with sickle cell disease: the nursing approach

Genetic counseling for individuals with hemoglobin disorders and for their relatives: a systematic literature review

Enfrentamento da morte fetal pela enfermagem na abordagem disposicional e na Teoria Motivacional do Coping

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