A Home-Based Rehabilitation Intervention for Adults Living With HIV: A Randomized Controlled Trial

Cobbing, Saul; Hanass-Hancock, Jill; Myezwa, Hellen

doi:10.1016/j.jana.2016.08.008

Cited by 33 publications

(34 citation statements)

References 48 publications

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“…Members of our collaborative led foundational work examining reasons for referral, and effectiveness of rehabilitation interventions, specifically the role and impact of physiotherapy-led models of care for adults living with HIV in the United Kingdom (37), United States (62), Canada (32,33) and South Africa (76)(77)(78)(79). Better understanding the biological, social and behavioural factors that interact with HIV and aging can help to identify effective rehabilitation interventions that promote well-being in this growing population (80).…”

Section: Discussionmentioning

confidence: 99%

Research priorities for rehabilitation and aging with HIV: a framework from the Canada-International HIV and Rehabilitation Research Collaborative (CIHRRC)

O’Brien

Ibáñez-Carrasco²,

Solomon³

et al. 2020

Preprint

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Background: People living with HIV are living longer, and can experience physical, mental and social health challenges associated with aging and multimorbidity. Rehabilitation is well positioned to address disability and maximize healthy aging. An international collaborative network, called the Canada-International HIV and Rehabilitation Research Collaborative (CIHRRC), works to guide this emerging field. In this article, we report findings from CIHRRC’s aim to identify emerging research priorities in HIV, aging and rehabilitation from the perspectives of people living with HIV, clinicians, researchers, representatives from community organizations and policy stakeholders. Methods: We conducted a multi-stakeholder multi-method international consultation with people living with HIV, researchers, clinicians and representatives of community-based organizations to identify research priorities in HIV, aging and rehabilitation. Stakeholders identified research priorities during a one-day International Forum comprised of presentations and facilitated discussion. We collated and analyzed data using content analytical techniques, resulting in a framework of research priorities. Results: Sixty-nine stakeholders from countries including Canada (n=62;90%), the United Kingdom (n=5;7%), United States (n=1;1%) and Australia (n=1;1%) attended the International Forum on HIV, Aging and Rehabilitation. Stakeholders represented community-based organizations (n=20;29%), academic institutions (n=18;26%), community or institutional healthcare organizations (n=11;16%), research or knowledge production organizations (n=10;14%), and organizations representing government or industry (n=10;14%). The Framework of Research Priorities in HIV, Aging and Rehabilitation includes seven research priorities: 1) nature, extent and impact of disability, concurrent health conditions and chronic inflammation with HIV; 2) prevalence, severity and impact of frailty; 3) community and social participation aging with HIV; 4) strategies for chronic disease management and healthy aging with HIV; 5) facilitators and barriers to access to and engagement in, rehabilitation; 6) effectiveness of rehabilitation interventions for healthy aging with HIV; and 7) advancing development and use of patient reported outcome measures in HIV and aging. The Framework highlights methodological considerations to approach the priorities and the importance of knowledge translation and exchange to apply research knowledge into practice, programs and policy. Conclusions: These priorities offer a foundation for collaboration among international and multidisciplinary teams to advance the field of HIV, aging and rehabilitation in order to promote healthy aging with HIV.

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Section: Discussionmentioning

confidence: 99%

Research priorities for rehabilitation and aging with HIV: a framework from the Canada-International HIV and Rehabilitation Research Collaborative (CIHRRC)

O’Brien

Ibáñez-Carrasco²,

Solomon³

et al. 2020

Preprint

View full text Add to dashboard Cite

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“…The registration status of five included trials was indeterminate (Cao, Tian, Chen, & Jiang, ; Cobbing, Hanass‐Hancock, & Myezwa, ; Jensen, Kiesbye, Soendergaard, Jensen, & Kristensen, ; Salameh et al, ; Valiee, Razavi, Aghajani, & Bashiri, ). When we checked the registration status of the Cobbing et al () trial, the registration number in the paper was not listed in the registry (South African National Clinical Trials Registry). The author was contacted.…”

Section: Resultsmentioning

confidence: 99%

A review of prospective registration of trials published in nursing science journals in 2017

Gray

Brown

2019

Journal of Advanced Nursing

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Aim To determine the proportion of trials published in nursing science journals in 2017 that were prospectively registered. Design A review of randomized controlled trials published in a Journal Citation Report nursing science journal in 2017. Data source Table of contents of included journals. Review methods Randomized controlled trials were identified by manually reviewing the title of all papers published in included journals. Included trials were classified as: (a) Prospectively registered; (b) Retrospectively registered; (c) Registered but registration not reported in the manuscript; (d) Indeterminate registration; and (e) Not registered. Additionally, we recorded if the trial registration number was reported in the manuscript abstract. Results Of 151 randomized controlled trials published in nursing science journals in 2017, 17 (11%) were prospectively registered. Thirty‐six (24%) trials were retrospectively and 93 (62%) not registered. We could not determine the registration status of five (3%) trials. The registration number was included in the abstract of two prospectively and eight retrospectively registered studies. Compared with the rest of the world, trial registration rates were significantly lower in Asian countries. Conclusion Two included trials were prospectively registered and reported a registration number in the abstract. Compared with other disciplines, rates of prospective trial registration are low. Nurse trialists must ensure that they prospectively register all trials. Impact We intended to replicate this review in subsequent years with a view to reporting improvements in prospective registration rates over time.

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“…Cross-sectional data from South Africa exploring the links between ART, disability and livelihoods underscore the need to better understand the rehabilitation needs of people on ART [42,43]. A growing evidence base is beginning to explore the role of rehabilitation in addressing the needs of adults and children living with HIV (e.g., [44,45]) but reviews emphasise that evidence is limited and more research is needed [46,47]. Providers and researchers recommend integrating rehabilitation approaches into HIV treatment care and support services, in order to address the disabling comorbidities of HIV and to make tangible improvements to life on ART; however, more evidence is needed to establish how to implement the service integration to improve access to care, improve communications and measure outcomes [40,[48][49][50].…”

Section: Introductionmentioning

confidence: 99%

“…Providers and researchers recommend integrating rehabilitation approaches into HIV treatment care and support services, in order to address the disabling comorbidities of HIV and to make tangible improvements to life on ART; however, more evidence is needed to establish how to implement the service integration to improve access to care, improve communications and measure outcomes [40,[48][49][50]. Strategies with the potential to address transport and access barriers and to confer physical and psychological benefits for people living with HIV and disability (especially in resource-poor settings where access to institution-based rehabilitation is limited) include home-based rehabilitation and task-shifting [44,51,52].…”

Section: Introductionmentioning

confidence: 99%

“Even the fowl has feelings”: access to HIV information and services among persons with disabilities in Ghana, Uganda, and Zambia

Schenk

Tun

Sheehy

et al. 2018

Disability and Rehabilitation

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Background: Persons with disabilities have often been overlooked in the context of HIV and AIDS risk prevention and service provision. This paper explores access to and use of HIV information and services among persons with disabilities. Methods: We conducted a multi-country qualitative research study at urban and rural sites in Uganda, Zambia, and Ghana: three countries selected to exemplify different stages of the HIV response to persons with disabilities. We conducted key informant interviews with government officials and service providers, and focus group discussions with persons with disabilities and caregivers. Research methods were designed to promote active, meaningful participation from persons with disabilities, under the guidance of local stakeholder advisors. Results: Persons with disabilities emphatically challenged the common assumption that persons with disabilities are not sexually active, pointing out that this assumption denies their rights andby denying their circumstancesleaves them vulnerable to abuse. Among persons with disabilities, knowledge about HIV was limited and attitudes towards HIV services were frequently based upon misinformation and stigmatising cultural beliefs; associated with illiteracy especially in rural areas, and rendering people with intellectual and developmental disability especially vulnerable. Multiple overlapping layers of stigma towards persons with disabilities (including internalised self-stigma and stigma associated with gender and abuse) have compounded each other to contribute to social isolation and impediments to accessing HIV information and services. Participants suggested approaches to HIV education outreach that emphasise the importance of sharing responsibility, promoting peer leadership, and increasing the active, visible participation of persons with disabilities in intervention activities, in order to make sure that accurate information reflecting the vulnerabilities of persons with disabilities is accessible to people of all levels of education. Fundamental change to improve the skills and attitudes of healthcare providers and raise their sensitivity towards persons with disabilities (including recognising multiple layers of stigma) will be critical to the ability of HIV service organisations to implement programs that are accessible to and inclusive of persons with disabilities. Discussion: We suggest practical steps towards improving HIV service accessibility and utilisation for persons with disabilities, particularly emphasising the power of community responsibility and support; including acknowledging compounded stigma, addressing attitudinal barriers, promoting participatory responses, building political will and generating high-quality evidence to drive the continuing response. Conclusions: HIV service providers and rehabilitation professionals alike must recognise the two-way relationship between HIV and disability, and their multiple overlapping vulnerabilities and stigmas. Persons with disabilities demand recognition through practical steps ...

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A Home-Based Rehabilitation Intervention for Adults Living With HIV: A Randomized Controlled Trial

Cited by 33 publications

References 48 publications

Research priorities for rehabilitation and aging with HIV: a framework from the Canada-International HIV and Rehabilitation Research Collaborative (CIHRRC)

Research priorities for rehabilitation and aging with HIV: a framework from the Canada-International HIV and Rehabilitation Research Collaborative (CIHRRC)

A review of prospective registration of trials published in nursing science journals in 2017

“Even the fowl has feelings”: access to HIV information and services among persons with disabilities in Ghana, Uganda, and Zambia

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