A Latino Patient-Centered, Evidence-Based Approach to Diabetes Prevention

Rosas, Lisa G.; Lv, Nan; Lewis, Megan A.; Venditti, Elizabeth M.; Ζavella, Patricia; Luna, Verónica; Ma, Jun

doi:10.3122/jabfm.2018.03.170280

Cited by 14 publications

(13 citation statements)

References 35 publications

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“…Despite our goal to engage diverse women with both type 1 and type 2 diabetes, the majority of DiabetesSistersVoices participants were of white race and had type 1 diabetes, likely because of our strong affiliation with the DiabetesSisters organization, which has a strong allegiance and trust within the community of women with type 1 diabetes. Given the disparities in the diabetes epidemic [39], there is a high need to develop Web-based engagement strategies specifically tailored for African American and Latina women [40,41] as well as women with type 2 diabetes and prediabetes [42]. African American women with diabetes are diverse with regard to age, region (urban and rural population), access to care, socioeconomic status, and types of health disparities they experience.…”

Section: Discussionmentioning

confidence: 99%

DiabetesSistersVoices: Virtual Patient Community to Identify Research Priorities for Women Living With Diabetes

Han

Nicholson

Norton³

et al. 2019

J Med Internet Res

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Background Women with or at high risk of diabetes have unique health concerns across their life course. Effective methods are needed to engage women living with diabetes to develop and carry out a patient-centered research agenda. Objective This study aimed to (1) describe the creation of DiabetesSistersVoices, a virtual patient community for women living with and at risk for diabetes and (2) assess the feasibility and acceptability of DiabetesSistersVoices for engaging women in talking about their experiences, health care, and research priorities. Methods We partnered with a national advocacy organization to create DiabetesSistersVoices and to develop recruitment strategies, which included use of social media, Web-based newsletters, and weblinks through partnering organizations. Study inclusion criteria were as follows: Being a woman aged ≥18 years, residing in the United States, and self-reporting a diagnosis of diabetes or risk of diabetes. Eligible participants were given access to DiabetesSistersVoices and completed online surveys at enrollment and 6 months. We assessed trends in participants’ activities, including posting questions, sharing experiences about living with diabetes, and searching for posted resources. Results We enrolled 332 women (white: 86.5%; type 1 diabetes: 76.2%; median age: 51 years [interquartile range: 31 to 59 years]) over 8 months. Most (41.6%, 138/332) were classified as being active users (ie, posting) of the virtual community, 36.1% (120/332) as observers (ie, logged in but no posts), and 22.3% (74/332) as never users (ie, completed baseline surveys but then never logged in). Online activities were constant during the study, although participants had the highest website usage during the first 10 weeks after their enrollment. Conclusions We demonstrated the feasibility and acceptability of an online patient community for women living with diabetes by showing durability of recruitment and online usage over 6 months of testing. Next steps are to address barriers to joining a virtual patient community for women of color and women with type 2 diabetes to enhance inclusiveness and gain diverse perspectives to inform diabetes research.

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Section: Discussionmentioning

confidence: 99%

DiabetesSistersVoices: Virtual Patient Community to Identify Research Priorities for Women Living With Diabetes

Han

Nicholson

Norton³

et al. 2019

J Med Internet Res

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“…The in-depth cultural adaptation included focus groups with Latino patients, key informant interviews with clinicians, and a structured pretest with a Latino Patient Advisory Board. 25 As a result of the adaptation, a family-wide orientation session was instituted to increase awareness about intervention goals and best approaches for providing positive social support, including structural, emotional, appraisal, and JAMA Network Open | Nutrition, Obesity, and Exercise Effect of a Culturally Adapted Behavioral Intervention for Latino Adults on Weight Loss informational support. Family members were also included in the session that focused on a healthy home environment to promote desirable food and activity changes.…”

Section: Interventionmentioning

confidence: 99%

Effect of a Culturally Adapted Behavioral Intervention for Latino Adults on Weight Loss Over 2 Years

Rosas

Xiao

et al. 2020

JAMA Netw Open

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Key Points Question Is a culturally adapted behavioral lifestyle intervention using technology more effective than usual care for weight loss among Latino adults in primary care? Findings In this randomized clinical trial of 191 Latino patients in primary care, a culturally adapted behavioral lifestyle intervention using technology, including web-based self-monitoring and a wearable activity monitor, was more effective for weight loss over 12 months but not 24 months. Meaning These findings suggest that the culturally adapted behavioral intervention using technology was not effective for long-term weight loss over 24 months, so research to optimize intervention effectiveness over 24 months is needed.

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“…For example, the Diabetes Attitudes Scale, which assists educational strategies to assist HCP, has been culturally adapted for Brazil (213). A 2-stage cultural adaptation process was developed by Rosas et al (214) to better apply Diabetes Prevention Program (DPP) interventions for Latino/Hispanics in the U.S., involving family members, coaches, smartphone applications, and healthy, easy, and low-cost culturally appropriate meals. Key thematic approaches to caring for Latino/Hispanic patients with diabetes are: • Language-concordance among HCP (and using intermediaries/translators as needed), • Avoidance of switching familiar HCP,…”

Section: Diabetes Carementioning

confidence: 99%

Transcultural Diabetes Care in The United States – A Position Statement by the American Association of Clinical Endocrinologists

Mechanick¹,

Adams

Davidson

et al. 2019

Endocrine Practice

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A Latino Patient-Centered, Evidence-Based Approach to Diabetes Prevention

Cited by 14 publications

References 35 publications

DiabetesSistersVoices: Virtual Patient Community to Identify Research Priorities for Women Living With Diabetes

DiabetesSistersVoices: Virtual Patient Community to Identify Research Priorities for Women Living With Diabetes

Effect of a Culturally Adapted Behavioral Intervention for Latino Adults on Weight Loss Over 2 Years

Transcultural Diabetes Care in The United States – A Position Statement by the American Association of Clinical Endocrinologists

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