A mixed‐methods analysis of younger adults' perceptions of asthma, self‐management, and preventive care: "This isn't helping me none"

Abstract

Background: Young adults (ages 18-44) have increased emergency department use for asthma and poor adherence to medications. The objective of this mixed-methods study was to understand experiences with and approaches to managing asthma, of which little is known in this age group. Methods: Surveys (Asthma Control Questionnaire, Asthma Quality of Life Questionnaire) and 1:1 semi-structured interviews were used to explore experiences with asthma, symptoms, self-management behaviors, and relationship to asthma control and quality of life. Qualitative data were analyzed using content analysis techniques. Descriptive statistics and bivariate correlations were used to examine distributive characteristics and associations between variables. Results: Forty urban adults participated (mean age 32.7 ± 6.2, 1σ). Coughing was reported nearly 46% more often than wheezing, with 42.5% (17/40) coughing until the point of vomiting most days. Most participants delayed using medication for symptoms due to misperceptions about inhalers. Higher symptom frequency and worse asthma control were associated with greater use of non-pharmacologic symptom management strategies (r=0.645, p<0.001; r=0.360, p=0.022, respectively). Five themes were identified regarding young adults experiences with asthma: (1) having asthma means being limited and missing out on life; (2) healthcare for asthma is burdensome and other things are more important; (3) there is not enough personal benefit in medical interactions to make preventive care worthwhile; (4) there is insufficient support and education about asthma for adults; and (5) people normalize chronic symptoms over time and find ways of coping that fit with their lifestyle. PERCEPTIONS OF ASTHMA MANAGEMENT IN YOUNG ADULTS Conclusions & Clinical Relevance: Young adults may tolerate symptoms without using quick-relief medication or seeking preventive care. Increasing engagement with preventive services will require decreasing perceived burdens and increasing the personal benefits of care. Evaluating for non-pharmacologic approaches to managing symptoms and asthma-related coughing may identify uncontrolled asthma. Enhanced training for clinicians in patient-centric asthma care may be needed.

Mapping Relevance of Digital Measures to Meaningful Symptoms and Impacts in Early Parkinson’s Disease

“…Symptom mapping (Fig. 2) is a digital extension of symptom-response card-sorting, which is a technique that has been successfully used in other chronic diseases to map symptom trajectories and self-management behaviors [25][26][27]. This qualitative technique enables participants to create an ordered visual representation (i.e., a "map") of personal experiences using index cards to define symptoms and responses to or impacts of symptoms.…”