A Mixed-methods Assessment of the Impact of Insurance Issues on the Emotional and Physical Health of Patients With Inflammatory Bowel Disease

Philippou, Alicia; Birhanu, Beselot; Biello, Anthony; Keefer, Laurie; Gorbenko, Ksenia

doi:10.1093/ibd/izac022

Cited by 4 publications

(1 citation statement)

References 23 publications

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“…In the past, qualitative studies, such as questionnaire surveys and semistructured interviews, were used for patients with Crohn’s disease [ 5 , 6 ]. One qualitative study explored the experience of twenty-five participants with IBD and moderate-to-severe symptoms and suggested that psychotherapists working with IBD need advanced skills to gain a clear understanding of the different processes impacting patients’ mood and levels of anxiety [ 6 ].…”

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confidence: 99%

Patients’ perspectives on, experience with and concerns about crohn's disease: insights from Chinese social media

Sun

et al. 2023

BMC Gastroenterol

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Aim The aim of this study was to explore the experience and perceptions of patients with Crohn’s disease in China. Methods Data mining was used to investigate posts in Crohn’s disease online medical communities. The data were collected through the crawler code, and latent Dirichlet allocation (LDA) and grounded theory were used to mine the theme features after data cleaning. Results In analyzing the topic characteristics of online posts, LDA divided 6757 posts into 15 topics on four aspects: seeking disease information, making decisions on medication use, psychological burden, and communicating about diet and nutrition. Conclusion Overall, social media is patient-centric and helps us better understand the experiences and perceptions of patients. This study can help medical staff predict the thoughts and concerns of Crohn's disease patients during the treatment process, facilitate doctor-patient communication, and assist in the formulation of medical policies.

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Section: Introductionmentioning

confidence: 99%

Patients’ perspectives on, experience with and concerns about crohn's disease: insights from Chinese social media

Sun

et al. 2023

BMC Gastroenterol

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Challenges in IBD Research 2024: Pragmatic Clinical Research

Allegretti,

Bordeianou,

Damas

et al. 2024

Inflammatory Bowel Diseases

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Pragmatic clinical research is 1 of the 5 focus areas of the Challenges in IBD Research 2024, a multidisciplinary effort by scientists, clinicians, patients, and funders to identify priorities for patient-centric research. This summary provides a comprehensive overview of current gaps in inflammatory bowel disease (IBD) clinical research and actionable approaches to address them. This review is focused on identifying research that is needed to achieve the best outcomes for patients in clinical practice. Research gaps include understanding the needs of understudied patient groups and addressing barriers to care so all patients receive optimal care, validating and using biomarkers to enable early diagnosis and result in better outcomes for adults and children with IBD, and determining the optimal sequencing of treatments (medical, surgical, adjunct) in children and adults. Inclusive pragmatic research is needed to address these gaps and lead to improvements in patient care and outcomes for all populations of patients with IBD.

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Healthcare Access for Patients With Inflammatory Bowel Disease in the United States: A Survey by the Crohn’s & Colitis Foundation

Jordan,

Bhat,

Ali

et al. 2024

Inflammatory Bowel Diseases

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Background A prior survey disseminated in 2017 identified that healthcare access barriers exist and significantly affect patients with inflammatory bowel disease (IBD). We sought to identify, through an updated survey, the healthcare access barriers that patients continue to face, with a focus on socioeconomic factors and patient awareness of resources to navigate existing barriers. Methods A 52-question online survey evaluating (1) access to healthcare professionals, medications, and procedures; (2) associated financial challenges; and (3) patient awareness of education and advocacy tools to navigate IBD care barriers, was disseminated through multiple channels to IBD patients and their caregivers. Results Of the 2281 completed responses, patients on advanced specialty medications, younger than 65 years of age, or on employer insurance experienced significantly greater issues with insurance barriers to accessing medications and coverage of medically necessary tests/treatments. Patients who live in areas of concentrated poverty were more likely to experience poor health outcomes when subjected to step therapy compared to patients who did not. Additionally, patients were more likely to experience one or more financial barriers or trade-offs if the patient used an advanced specialty medicine or lived in an area with concentrated poverty. Conclusions While there have been significant and numerous advancements in IBD treatments, patients with IBD continue to experience barriers to healthcare access and treatment and financial struggles. Ongoing awareness and advocacy efforts focused on healthcare system reform and related policies to further minimize care disparities and barriers remain vital.

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A Mixed-methods Assessment of the Impact of Insurance Issues on the Emotional and Physical Health of Patients With Inflammatory Bowel Disease

Cited by 4 publications

References 23 publications

Patients’ perspectives on, experience with and concerns about crohn's disease: insights from Chinese social media

Patients’ perspectives on, experience with and concerns about crohn's disease: insights from Chinese social media

Challenges in IBD Research 2024: Pragmatic Clinical Research

Healthcare Access for Patients With Inflammatory Bowel Disease in the United States: A Survey by the Crohn’s & Colitis Foundation

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