A national study of pain in the bleeding disorders community: a description of haemophilia pain

Witkop, Michelle; Lambing, Angela; Divine, George; Kachalsky, E.; Rushlow, David R.; Dinnen, J.

doi:10.1111/j.1365-2516.2011.02709.x

Cited by 86 publications

(175 citation statements)

References 11 publications

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“…Sin embargo, la efectividad debería valorarse en futuras investigaciones, ya que el tratamiento medicamentoso suele ser sintomático y no curativo, razón por la que se continúa con la presencia del dolor llegando a la categoría de dolor crónico en la mayoría de los sujetos. Ahora bien, la predominancia del uso del tratamiento medicamentoso en pacientes con hemofilia que presentan dolor ya había sido documentado en (14). Agregado a ello allí se encuentra que una medida muy frecuente para el control del dolor es el descanso.…”

Section: Discussionunclassified

“…El dolor en la hemofilia es un efecto secundario de los episodios de hemorragias, que comienza con un dolor agudo y ante su complicación se convierte en un dolor crónico (13,14). La intensidad del dolor es el principal factor influyente en el nivel de calidad de vida física y mental de los pacientes con hemofilia, por lo que en pacientes con hemofilia severa existe mayor afectación ya que suelen presentar más episodios de dolor recurrente en comparación a pacientes con hemofilia leve o moderada (15).…”

Section: Introductionunclassified

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Comparación de la conducta de enfermedad en pacientes colombianos con hemofilia A, en una muestra con dolor crónico y sin dolor crónico

Fernández

Rodríguez

2016

nova

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Comparación de la conducta de enfermedad en pacientes colombianos con hemofilia A, en una muestra con dolor crónico y sin dolor crónicoComparison of disease behavior in colombian patients with hemophilia A, in a sample compared with chronic pain and without chronic pain ResumenObjetivo. Identificar las variables de conducta de enfermedad en una muestra de pacientes colombianos con Hemofilia A y comparar los resultados de grupos (con dolor crónico y sin dolor crónico) para un análisis de relaciones entre variables. Método. El enfoque fue cuantitativo y su diseño transversal; la metodología empleada fue ex post facto de tipo retrospectiva. Para el análisis estadístico se hizo una comparación de grupos (sin dolor crónico y con dolor crónico). El factor de conducta de enfermedad se evaluó a través del Cuestionario de Conducta de Enfermedad de Ballester y Botella del año 1993. Los resultados obtenidos mediante la prueba T, la correlación de Spearman, la prueba U de Mann-Whitney y la Curva de ROC. Resultados. Se evaluaron veintisiete sujetos con diagnóstico de Hemofilia A con un rango de edad entre 19 y 55 años. Diecisiete sujetos conformaron el grupo con dolor crónico y diez sujetos el grupo sin dolor crónico. En conclusión se hallaron asociaciones significativas entre el dolor crónico y las variables relacionadas a inestabilidad emocional, así como correlaciones positivas con resultados de investigaciones previas sobre la caracterización de la población con hemofilia.Palabras clave: Hemofilia A, dolor crónico, conductas de enfermedad. AbstractObjective. To Identify the variables of illness behavior in a sample of Colombian patients with hemophilia A and to compare the results of groups (with chronic pain and without chronic pain chronic) for an analysis of relationships between variables. Methods. The approach was quantitative and its cross-sectional design. The methodology used was ex post facto retrospective type. A comparison groups (without chronic pain and chronic pain) was done for the statistical analysis. The disease behavior factor was evaluated through the Ballester and Botella Disease Questionnaire Conduct of 1993. The results obtained by the T-test, the Spearman correlation, the Mann-Whitney U test and the ROC curve. Results. Twenty-seven subjects diagnosed with haemophilia A diagnosed with a age range between 19 and 55 years were evaluated. Seventeen subjects formed the group with chronic pain and ten subjects the group without chronic pain. In conclusion, we found significant associations between chronic pain and variables related to emotional instability, as well as positive correlations with results of previous research on the characterization of the population with hemophilia.

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Section: Discussionunclassified

Section: Introductionunclassified

Comparación de la conducta de enfermedad en pacientes colombianos con hemofilia A, en una muestra con dolor crónico y sin dolor crónico

Fernández

Rodríguez

2016

nova

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“…In the absence of randomized controlled trials, there is consensus among the musculoskeletal experts who volunteer for the world federation of hemophilia, that synoviorthesis is perhaps, the most cost-effective intervention to reverse or curtail hemophilic synovitis. [2]. However, both papers lack the methodological design to infer causality.…”

Section: Methodsmentioning

confidence: 99%

“…Challenges to the implementation of primary prophylaxis include the need for reliable venous access and the extremely high cost of long-term prophylaxis programs. As a result objective outcome measures are increasingly required to justify funding of prophylaxis programs (2) . Selection of appropriate outcome measures requires knowledge of the many outcome measures that are in circulation, a number of which lack evidence of good measurement properties derived from well designed and conducted reliability and validity studies.…”

Section: Pds-0104mentioning

confidence: 99%

“…Although hemarthrosis is the most common clinical manifestation of hemophilia, its orthopedic management is still controversial. Several experimental studies have suggested the potential role of joint aspiration to prevent damaging effects of the blood on the articular cartilage (1), nevertheless only few centres routinely practise such procedure that was more common in the past when the availability of clotting factor concentrates was limited (2,3). In fact, the widespread use of prophylaxis, both primary in children and secondary in adults, has modified the natural history of the disease rendering acute massive hemarthroses very rare in countries were adequate amounts of clotting factor concentrates are available.…”

Section: S-0701mentioning

confidence: 99%

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WFH Musculoskeletal Congress 2015 Abstracts

2015

Haemophilia

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Young adults with hemophilia in the U.S.: demographics, comorbidities, and health status

Curtis¹,

Baker

Riske³

et al. 2015

American J Hematol

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Improvements in hemophilia care over the last several decades might lead to expectations of a near-normal quality of life for young adults with hemophilia. However, few published reports specifically examine health status indicators in this population. To remedy this knowledge gap, we examined the impact of hemophilia on physical and social functioning and quality of life among a national US cohort of 141 young men with hemophilia aged 18-34 years of age who received care at 10 geographically diverse, federally funded hemophilia treatment centers in 11 states between 2005 and 2013 and enrolled in the Hemophilia Utilization Group Studies. Indicators studied included educational achievement, employment status, insurance, healthrelated quality of life, and prevalence of the following comorbidities: pain, range of motion limitation, overweight/obesity, and viral status. The cohort was analyzed to compare those aged 18-24 to those aged 25-34 years. When compared to the general US adult population, this nationally representative cohort of young US adults with hemophilia experienced significant health and social burdens: more liver disease, joint damage, joint pain, and unemployment as well as lower high-school graduation rates. Nearly half were overweight or obese. Conversely, this cohort had higher levels of health insurance and equivalent mental health scores. While attention has typically focused on newborns, children, adolescents, and increasingly, on older persons with hemophilia, our findings suggest that a specific focus on young adults is warranted to determine the most effective interventions to improve health and functioning for this apparently vulnerable age group.Am. J. Hematol. 90:S11-S16,

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A national study of pain in the bleeding disorders community: a description of haemophilia pain

Cited by 86 publications

References 11 publications

Comparación de la conducta de enfermedad en pacientes colombianos con hemofilia A, en una muestra con dolor crónico y sin dolor crónico

Comparación de la conducta de enfermedad en pacientes colombianos con hemofilia A, en una muestra con dolor crónico y sin dolor crónico

WFH Musculoskeletal Congress 2015 Abstracts

Young adults with hemophilia in the U.S.: demographics, comorbidities, and health status

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