A National Survey of Hospice Bereavement Services

Abstract

Introduction: Historically, bereavement services have been viewed as the “poor stepchild” within hospice programs. In 1986, a survey was conducted of hospices to examine the nature and function of hospice bereavement services. This article presents the results of a similar survey that was conducted in 2002. The aim of this study was to provide updated information on several aspects of hospice bereavement services including staffing, training, services provided, issues, and obstacles. Methods: A self-administered questionnaire, with items adapted from the 1986 study, was mailed to a random sample of 450 Provider Members of the National Hospice and Palliative Care Organization (NHPCO). The 23-item questionnaire took approximately 10 minutes to complete. There was a 58% return ( n = 260) of the questionnaires. Results: Hospices employed fewer bereavement personnel who served more bereaved individuals than compared to hospices in the 1986 study. Major obstacles were lack of time and too few bereavement staff. Bereavement programs tended to focus on less time intensive services such as mailings of letters and literature on grief versus phone calls and home visits. Bereavement staff expressed a desire to provide more groups and educational programs, as well as make more home visits, if they had more resources. Conclusions: Hospices are faced with difficult choices in an era of increased competition between hospices, insufficient reimbursement, and increased demands to document the effectiveness of services. Against this background, hospice bereavement services will continue to compete for attention and resources with other components of hospice programs.

Pertenecer a Algo Mayor: Experiencias De Pacientes Y Cuidadores Durante El Cuidado Paliativo en Chile

“…También es esencial que la red profesional médica tenga en cuenta las necesidades bio-psicosociales de pacientes, sus cuidadores y seres queridos, que enfrentan tratamientos paliativos y condiciones terminales. Finalmente, se desprende la importancia de confrontar las necesidades bio-psicosociales identificadas por pacientes, seres queridos y equipo multi/ inter-disciplinario, identificado también en otros estudios (23)(24)(25).…”

Craving, creating, and constructing comfort

“…Many hospices will offer bereavement support groups and assist families in making arrangements after the individual passes away [10]. This is to say little of the ongoing work of managing visitors and providing updates to the family.…”

Bereavement, loss and palliative care – where are we now?

“…Those who have investigated in the US 12 , Australia 13 and UK 14 have found a range of models, variation in staffing, in the use of volunteers as well as varied training inputs and little consensus in the use of formal bereavement assessment. The European Association for Palliative Care has sponsored a Bereavement Taskforce 15 to establish bereavement care provision in palliative care services across Europe -the staffing, disciplines involved, services provided, assessments used, guidances developed are being explored through survey work with a view to developing some consensus.…”