A Parent-Child Dyad Approach to the Assessment of Health Status and Health-Related Quality of Life in Children with Asthma

Abstract

Background-Assessment of health state and health-related quality of life (HR-QOL) are limited by a child's age and cognitive ability. Parent-proxy reports are known to differ from children's reports. Simultaneous assessment using a parent-child dyad is an alternative approach.

Assessing the Health-Related Quality of Life of Australian Adolescents: An Empirical Comparison of the Child Health Utility 9D and EQ-5D-Y Instruments

“…In recent years, however, increasing attention has focused on the development of childrenand adolescents-specific preference-based HRQOL instruments [8]. The EuroQol five-dimensional questionnaire Youth version (EQ-5D-Y) [9,10], a family member of the EuroQol fivedimensional questionnaire (EQ-5D), the world's most widely used preference-based instrument, represents an adaptation of the existing instrument originally developed for adults.…”

Assessing the Quality of Life Using the Health Utilities Index Questionnaire in Children With Severe Persistent Asthma During the Treatment With Omalizumab

“…В 2012 г. опубликовано канадское исследование, целью которого было проанализировать достоверность и надежность подхода «родитель-ребенок» в комплекс-ной оценке качества жизни у детей с бронхиальной астмой [18]. Проведено сравнение качества жизни по Health Utilities Index и по вопроснику PedsQL (модуль «аст-ма») у 91 ребенка в возрасте от 8 до 17 лет и 91 родителя.…”

“…Анализ атрибутов HUI3 показал более слабую конвергентную достоверность по срав-нению с HUI2. Результаты данного исследования про-демонстрировали умеренные и сильные характеристики соответствий мультиатрибутных индексов HUI2 и HUI3 и специализированных вопросников, что ценно и может обеспечить дополнительную независимую информацию о течении заболевания [18].…”

Pediatric post-thrombotic syndrome in children: Toward the development of a new diagnostic and evaluative measurement tool

“…Patients <10 years of age were interviewed using a dyad-approach, in which the parent or proxy and the patient are interviewed at the same time. This approach has been reported to improve the assessment of health status in children, as compared to parent/proxy report alone (32). In fact, we did not seek parent/proxy report alone, as the correlation between parent and child response has been shown to be low to moderate (32,33).…”

“…This approach has been reported to improve the assessment of health status in children, as compared to parent/proxy report alone (32). In fact, we did not seek parent/proxy report alone, as the correlation between parent and child response has been shown to be low to moderate (32,33). Young adults no longer followed-up at our institution were interviewed over the phone.…”