A qualitative insight of <scp>HIV</scp>/<scp>AIDS</scp> patients' perspective on disease and disclosure

Ahmed, Syed Imran; Sulaiman, Syed Azhar Syed; Hassali, M.A.; Thiruchelvum, Kaeshalya; Lee, Christopher K.C.

doi:10.1111/hex.12268

Cited by 15 publications

(20 citation statements)

References 30 publications

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“…However, other studies have demonstrated a direct correlation between adherence and viral load suppression [46,47]. Nilsson et al had a relatively larger sample size than our study (144 patients) [39], while Li et al followed their patients beyond 18 months [40]. We think our different study findings can be ascribed to the methodological differences in the length of patient follow-up between the cited studies and the current study.…”

contrasting

confidence: 63%

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The Prevalence of HIV Load Suppression and Related Factors Among Patients on ART at Phedisong 4 Clinic, Pretoria, South Africa

Mogosetsi¹,

Mabuza

Ogunbanjo

2018

TOPHJ

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Background:Globally, the benefits of viral load suppression in improving the lives of people living with HIV/AIDS have been established. In 2010, the South African Government decentralised ART to the primary care level. This study intended to determine the effect of this decentralisation in achieving viral load suppression among patients. Objective:To determine the prevalence of HIV viral load suppression and factors related to the suppression among patients initiated on ART at Pedisong 4 clinic, Tshwane District in Pretoria. Methods:A prospective cohort study was conducted on 98 patients initiated on ART between 01 November 2012 and 30 April 2013. Based on the viral load results, they were divided into those who achieved Viral Load Suppression (VLS), and those who did not (NVLS). Analyses were done using SAS ® (version 9.2) for Microsoft software. A p < 0.05 was considered significant. Results:Ninety patients (91.8%; 95%CI, 84.7% -95.8%) achieved viral load suppression while eight (8.2%; 95%CI, 4.2% -15.3%), did not. Of the 98 patients, 63 (64%) were female. In the NVLS group, the female to male ratio was 7:1 (p = 0.038). There was no relationship between viral load suppression and patients' baseline characteristics, behavioural characteristics and clinical characteristics (p > 0.05). ART adherence reported in both patient groups was ≥ 87.0%. Conclusion:There was good viral load suppression in patients initiated on ART at Pedisong 4 clinic. Patients' baseline, behavioural and clinical characteristics were not related to viral load suppression, necessitating further large sample size studies in various health facilities.

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confidence: 63%

“…Syed et al reported disease non-disclosure to be associated with fear of stigma and family emotions [39]. HIV/AIDS stigma, in particular, poses a major barrier to disclosure [40].…”

mentioning

confidence: 99%

The Prevalence of HIV Load Suppression and Related Factors Among Patients on ART at Phedisong 4 Clinic, Pretoria, South Africa

Mogosetsi¹,

Mabuza

Ogunbanjo

2018

TOPHJ

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“…HIV patients have to cope with the fear of stigma and discrimination [93]. HIV-positive women are particularly vulnerable to rejection and the loss of important familial and social relationships [94,95].…”

Section: Discussionmentioning

confidence: 99%

Health status and quality of life in postpartum women: a systematic review of associated factors

Woude

Pijnenborg

Vries

2015

European Journal of Obstetrics & Gynecology and Reproductiv

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“…Mencoba menghilang dari peredaran dunia akan merasa bahwa ia mendapat penyakit yang mengancam hidupnya. Hal itu dikarenakan adanya penurunan daya tahan tubuh 7 . Berdasarkan Oskouie et.al 7 penderita HIV tidak memahami secara tentang penyakit tersebut.…”

Section: "Kalau Tentang Penyakit Itu Saya Tahu Tapi Kan Dulunya Kalaunclassified

“…Hal itu dikarenakan adanya penurunan daya tahan tubuh 7 . Berdasarkan Oskouie et.al 7 penderita HIV tidak memahami secara tentang penyakit tersebut. Mereka hanya beranggapan bahwa penyakit tersebut penyebab kematiannya.…”

Section: "Kalau Tentang Penyakit Itu Saya Tahu Tapi Kan Dulunya Kalaunclassified

Pengalaman Ibu Saat Pertama Kali Terdiagnosa HIV

Hidayati

Rukmi

2020

JPKSF

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Increasing number of HIV cases were worried. The new case was found increasing 39% in sixteen years. Indonesia had 150.296 cases. ARV program and screening were used to hold the cases. On the other hand, this program had difficulties to improve because of the stigma. Most of them did not want to share their diagnosis. Because of that, self-disclosure of HIV person was an interesting thing to catch up. This aim of the research was to know the meaning of self-disclosure for mother who had seropositive HIV in Victory Plus Yogyakarta Foundation. The method was qualitative study with phenomenology design using IPA analysis. It was used in depth interview. Purposive sampling was used with inclusion criteria were mothers who were 26 to 45 years old and they had children. The result had 2 themes, there were (1) HIV was death shadow; (2) trying disappear from the world. Firstly, the person with HIV felt loneliness and darkness in their live. They also got isolation from society. Because of that, knowing what they felt and empathy for other were the only way to help them from their darkness live. Keywords: woman; HIV; seropositive ABSTRAK Peningkatan jumlah penderita HIV di dunia merupakan hal yang mengkhawatirkan. Penemuan kasus baru dalam rentang 16 tahun naik hingga 39%. Skrining awal dan penggunaan ARV merupakan upaya untuk melakukan pencegahan terhadap penyakit ini . Namun, program ini sulit untuk diupayakan karena adanya stigma. Bahkan, mayoritas penderita tidak mau membuka diri bahwa dirinya HIV positif. Oleh karena itu, keterbukaan diri merupakan hal yang menarik untuk dikaji terutama saat mereka pertama kali terdiagnosis. Tujuan penelitian ini adalah melihat makna keterbukaan diri ibu dengan seropositive HIV di Yayasan Victory Plus Yogyakarta. Penelitian ini menggunakan penelitian kualittaif dengan pendekatan fenomenologi intepretatif. Analisa data menggunakan IPA. Teknik pengambilan data menggunakan wawancara semiterstruktur. Teknik sampling menggunakan purposive sampling dengan kriteria inklusi wanita seropositive HIV berusia 26 sampai 45 tahun dan sudah memiliki anak. Jumlah partisipan yaitu 5 partisipan di Yayasan Victory Plus Yogyakarta. Hasil penelitian ini mendapatkan 2 tema untuk mencapai tujuan penelitian. Tema-tema tersebut yaitu (1) Menganggap HIV bayangan kematian; (2) Mencoba menghilang dari peredaran dunia. Oleh karena itu, seseorang yang terdiagnosa HIV untuk pertama kali merasa bahwa ia tidak memiliki arti dalam hidupnya lagi. Selain itu, mereka juga menarik diri dari lingkungan sosial. Salah satu upaya untuk membantu mereka adalah memahami arti keterbukaan dan empati pada penderita. Kata kunci: wanita; HIV; seropositif

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A qualitative insight of HIV/AIDS patients' perspective on disease and disclosure

Abstract: Background Understanding patients' knowledge and belief towards disease could play a vital role from an outcome perspective of disease management and HIV/AIDS patients are not exception to that.

Cited by 15 publications

References 30 publications

The Prevalence of HIV Load Suppression and Related Factors Among Patients on ART at Phedisong 4 Clinic, Pretoria, South Africa

The Prevalence of HIV Load Suppression and Related Factors Among Patients on ART at Phedisong 4 Clinic, Pretoria, South Africa

Health status and quality of life in postpartum women: a systematic review of associated factors

Pengalaman Ibu Saat Pertama Kali Terdiagnosa HIV

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