A Qualitative Study on the Impact of First Steps—A Peer-led Educational Intervention for People Newly Diagnosed with Parkinson’s Disease

Soundy, Andrew; Collett, Johnny; Lawrie, Sophie; Coe, Shelly; Roberts, Helen; Hu, Michele T.M.; Bromley, Sally; Harling, Peter; Reed, Alex; Coeberg, Jan; Carroll, Camille; Dawes, Helen

doi:10.3390/bs9100107

Cited by 18 publications

(26 citation statements)

References 37 publications

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“…The results showed no significant improvements in self‐rated depression or quality of life at post‐intervention. A recent qualitative study (Soundy et al, 2019) explored the experiences of people with PD who underwent First Steps, a 2‐day peer‐led psychoeducational intervention for people with a new diagnosis of PD. The results showed that the participants engaged well with the programme, showing improved exercise behaviour and coping mechanisms at post‐intervention.…”

Section: Resultsmentioning

confidence: 99%

Psychological interventions for people with Parkinson’s disease in the early 2020s: Where do we stand?

et al. 2020

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Purpose To explore the heterogeneity of the literature on psychological interventions for psychological difficulties in people with Parkinson’s disease (PD). Methods A scoping review was performed across five major databases (MEDLINE Complete, PsycINFO, CINAHL, Academic Search Ultimate, and Cochrane Library) up to June 2020. Results From an initial return of 4911 citations, 56 studies were included, of which 21 were RCTs. A relatively wide range of therapeutic models have been adopted with people with PD, from common therapies such as cognitive behavioural therapy (CBT) and mindfulness, to less frequent approaches, for example, acceptance and commitment therapy (ACT) and psychodrama. The clinical implications of the findings are discussed, and suggestions are provided for future research on intervention studies and key psychological outcomes. Conclusions CBT appears to be effective in treating depression and sleep disorders in people with PD, while psychoeducation programmes alone should be avoided. The use of CBT to improve anxiety, quality of life, and impulse control, as well mindfulness‐based interventions, should be undertaken with some caution because of insufficient research and inconsistent results. As we enter the new decade, more high‐quality evidence is required for psychological interventions in people with PD in general and to corroborate preliminary positive findings on the adoption of less frequent approaches such as ACT. Practitioner points Parkinson’s disease is a progressive neurodegenerative condition associated with several psychological difficulties which be targeted by psychological interventions. Currently, cognitive behavioural therapy (CBT) can be recommended to treat depression and sleep disorders in people with Parkinson’s, while psychoeducation alone should be avoided. Caution is advised regarding the use of CBT and mindfulness‐based interventions to improve anxiety, quality of life, and impulse control. Further evidence is required for less common approaches, such as acceptance and commitment therapy, psychodrama, and EMDR.

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Section: Resultsmentioning

confidence: 99%

Psychological interventions for people with Parkinson’s disease in the early 2020s: Where do we stand?

et al. 2020

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“…Further research is required to consider the impact of the intervention on mood states, as changes have been identified across other chronic illnesses [ 23 ]. Additionally, consideration is needed around the impact of how close the diagnosis was or how severe the symptoms were as these aspects may be important in identifying if and how changes occur [ 49 ].…”

Section: Discussionmentioning

confidence: 99%

An Integrative Review Considering the Impact of Storytelling and Sharing Interventions in Stroke

Alawafi

Rosewilliam

Soundy

2021

Behavioral Sciences

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Background: Review-based research is needed which can establish the psychosocial outcomes and mechanisms of “storytelling and sharing” interventions for people with stroke. This information will act to inform the value and development of such interventions. Methods: An integrative review was conducted in three stages: (a) a systematic search strategy was undertaken to focus on articles between 2009 until January 2020 to locate articles the considered storytelling and sharing interventions for people diagnosed with stroke; (b) critical appraisal was undertaken to assess study quality; and (c) synthesis within three stages including data reduction, data display and conclusion. Results: Fourteen articles (including 727 participants) were identified that met the eligibility criteria. Five themes were identified that represented the outcome and mechanisms that appeared to be associated with a stroke intervention. These included introducing the concept of hope and learning to be positive, the enhanced ability to cope, the impact of loneliness and social interaction, impact on emotions, depression and related emotions such as fear. Conclusions: Storytelling interventions appear to impact loneliness, introduce positivity and hope and enable coping through knowledge exchange. The main mechanisms which appeared to influence these outcomes were social comparisons and social control.

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“…La EP es la segunda causa más común de enfermedad neurodegenerativa después de la enfermedad de Alzheimer (22,23) ; de progreso lento e invalidante tanto física, cognitiva y socialmente, afecta aproximadamente al 0,3% de la población, incrementándose hasta el 3% en mayores de 65 años (22,23) . La progresión y severidad de la EP es variable entre los pacientes (24).…”

Section: Discussionunclassified

Programa de Rehabilitación y Desempeño Funcional de pacientes con enfermedad de Parkinson Centro Médico Naval “Cirujano Mayor Santiago Távara”

Díaz-Meyzan

Gambini-Díaz

Pérez-Agüero

2021

revista de salud udh

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Objetivo. Determinar la asociación existente entre la aplicación del Programa de Rehabilitación (PR) y el Desempeño Funcional (DF) de pacientes con enfermedad de Parkinson en el Centro Médico Naval “Cirujano Mayor Santiago Távara”. Métodos. Estudio analítico, longitudinal, de cohortes retrospectivo, en 18 meses. Mediante una muestra de 46 pacientes, en dos cohortes, se determinó el desempeño funcional por dimensiones de actividades básicas (índices de Barthel), fuerza y resistencia (SPPB) y velocidad de marcha. Se usaron cinco valores o categorías para determinar la dependencia, fragilidad y descoordinación. Se determinó la normalidad mediante la prueba Kolmogorov-Smirnov y para el análisis estadístico se empleó la U de Mann- Whitney, donde se consideró significativo un valor de p <0,05. Resultados. El promedio de edad de pacientes fue 79 +/- 3 años (rango: 76-82) de la cohorte expuesta y 72 +/- 3 años (69-75) de la cohorte no expuesta al PR, 33 (71,7 %) fueron varones del total de la muestra. El 54,3 % (25) tuvieron una o más caídas y en el 45,65 % (21) su cuidador era un familiar. Existe asociación directa entre el PR y el DF (p = 0,009) y en sus dimensiones: actividades básicas (p = 0,001), fuerza y resistencia (p=0,001) y velocidad de marcha (p = 0,001). La cohorte o grupo expuesto al PR mejoró en autonomía, independencia, resistencia y equilibrio en relación al grupo no participante del PR. Conclusiones. Existe asociación directa entre el PR y el DF en todas sus dimensiones: actividades básicas, fuerza, resistencia y velocidad de marcha. A mayor duración del PR se observó mejor DF.

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A Qualitative Study on the Impact of First Steps—A Peer-led Educational Intervention for People Newly Diagnosed with Parkinson’s Disease

Cited by 18 publications

References 37 publications

Psychological interventions for people with Parkinson’s disease in the early 2020s: Where do we stand?

Psychological interventions for people with Parkinson’s disease in the early 2020s: Where do we stand?

An Integrative Review Considering the Impact of Storytelling and Sharing Interventions in Stroke

Programa de Rehabilitación y Desempeño Funcional de pacientes con enfermedad de Parkinson Centro Médico Naval “Cirujano Mayor Santiago Távara”

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