A question of trust: user-centered design requirements for an informatics intervention to promote the sexual health of African-American youth

Veinot, Tiffany C.; Campbell, Terrance R.; Kruger, Daniel J.; Grodzinski, Alison

doi:10.1136/amiajnl-2012-001361

Cited by 68 publications

(65 citation statements)

References 55 publications

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“…Trust in health information has been found to play an important role in influencing health behaviors, such as vaccine acceptance (Nan, Zhao, & Briones, 2014), HIV and STI prevention (Veinot, Campbell, Kruger, & Grodzinski, 2013), and cancer screening (Ling, Klein, & Dang, 2006). Communication research has long established trust as a fundamental dimension of source credibility (Pornpitakpan, 2004).…”

Section: Literature Reviewmentioning

confidence: 99%

Cancer Information Seeking Behaviors of Korean American Women: A Mixed-Methods Study Using Surveys and Focus Group Interviews

Jun

Zhao

et al. 2015

Journal of Health Communication

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Section: Literature Reviewmentioning

confidence: 99%

Cancer Information Seeking Behaviors of Korean American Women: A Mixed-Methods Study Using Surveys and Focus Group Interviews

Jun

Zhao

et al. 2015

Journal of Health Communication

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“…In particular, technology that builds upon existing evidence-based interventions (EBIs) using agent-based modeling, social network analysis, intelligent/adaptive technology, and computational linguistics to translate efficacious interventions that could potentially lead to widespread, cost-effective implementation of technology already used by many adolescents and young adults worldwide (Brown et al 2013). However, the use of technology does have potential drawbacks, and approaches moving forward should utilise community-based participatory approaches to minimise distrust and maximise efficacy (Brown et al 2013; Veinot et al 2013; Wallerstein and Duran 2006). …”

Section: Technology-driven Interventionsmentioning

confidence: 99%

Towards an integrated framework for accelerating the end of the global HIV epidemic among young people

DiClemente

Jackson

2014

Sex Education

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For decades the HIV epidemic has exacted an enormous toll worldwide. However, trend analyses have discerned significant declines in the overall prevalence of HIV over the last two decades. More recently, advances in biomedical, behavioural, and structural interventions offer considerable promise in the battle against generalised epidemics. Despite advances in the prevention of transmission and new infections, morbidity and mortality of HIV among young people remains a considerable concern for individuals, couples, families, communities, practitioners, and policy makers around the globe. To accelerate the end of the global HIV epidemic among young people, we must merge existing efficacious interventions with more novel, cost-effective implementation strategies to develop integrated, multilevel combination interventions. The benefits of conceptualising the HIV epidemic more broadly and adopting ecological frameworks for the development of HIV prevention programmes are critical.

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“…It also supports formative research on the acceptability among young people of web-and mobile-based interventions [19,20,25,27,28]. However, it goes further to provide insight into the role of patient electronic access in improving partner communication on STI risk including reducing contextual barriers that inhibit initiating STI testing conversations with secondary partners.…”

Section: Discussionmentioning

confidence: 52%

Uncovering a Role for Electronic Personal Health Records in Reducing Disparities in Sexually Transmitted Infection Rates Among Students at a Predominantly African American University: Mixed-Methods Study (Preprint)

Jackman¹,

Baral²,

Hightow-Weidman³

et al. 2017

Preprint

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Uncovering a role for electronic personal health records (PHRs) in reducing disparities in sexually transmitted infection rates: A mixed-methods study among students at a predominantly Black university. AbstractBackground: Young Black adults continue to bear an overwhelming proportion of the United States sexually transmitted infection (STI) burden, including HIV. Several studies on web-and mobile-based (mHealth) STI interventions have been conducted and are currently ongoing that focus on improving outcomes related to testing, risk communication, reducing stigma, increasing condom use, and improving adherence to biomedical prevention and treatment among men who have sex with men (MSM), substance using, and adolescent populations. The Electronic Sexual Health Information Notification and Education (eSHINE) Study was an exploratory mixedmethods study among students at a historically Black university, exploring perceptions on facilitating STI testing conversations with partners using electronic personal health records (PHRs). Objectives: The purpose of this paper is to use eSHINE Study results to describe perceived impacts of PHRs on facilitating risk discussion events. Methods: Focus groups and individual in-depth interviews were conducted on a qualitative research sample (n=35) to explore attitudes and practices related to talking with partners about STI testing and of incorporating PHRs into dyadic discussion events. An online survey was developed to measure qualitative findings on a larger sample of Black students (n=354) and to determine whether any significant differences exist between male and female participants. Results: Multiple contextual barriers were described that inhibit the utility of PHRs for facilitating discussions about STI testing and test results with partners. PHRs were believed to facilitate participants' ability to initiate conversations and confidence in STI screening information shared by partners. With PHR access, the proportion of online survey participants who reported willingness to discuss STI testing within dyadic partnerships prior to sex increased from 40.4% to 61.0%. Conclusions: Findings suggest that subpopulations of young Black adults having access to PHR may improve both motivation and personal agency for initiating dyadic talks about STI testing. This study builds on mHealth interventions research to suggest that PHRs also offer promise as a STI prevention strategy to reduce health disparities. Future eSHINE Study analyses will determine factors associated with willingness to utilize PHR for delivery of STI results as well as willingness to utilize these results to facilitate risk discussions.

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A question of trust: user-centered design requirements for an informatics intervention to promote the sexual health of African-American youth

Abstract: Trust is a critical focus for HIV/STI informatics interventions for young African Americans. Our design framework offers practical, culturally relevant, and systematic guidance to designers to reach this underserved group better.

Cited by 68 publications

References 55 publications

Cancer Information Seeking Behaviors of Korean American Women: A Mixed-Methods Study Using Surveys and Focus Group Interviews

Cancer Information Seeking Behaviors of Korean American Women: A Mixed-Methods Study Using Surveys and Focus Group Interviews

Towards an integrated framework for accelerating the end of the global HIV epidemic among young people

Uncovering a Role for Electronic Personal Health Records in Reducing Disparities in Sexually Transmitted Infection Rates Among Students at a Predominantly African American University: Mixed-Methods Study (Preprint)

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