A questionnaire survey about doctor–patient communication, compliance and locus of control among South Indian people with epilepsy

Gopinath, Bindu; Radhakrishnan, Kurupath; Sarma, P. Sankara; Jayachandran, D; Alexander, Aley

doi:10.1016/s0920-1211(99)00112-6

Cited by 52 publications

(47 citation statements)

References 29 publications

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“…Patient point of view of the doctor – patient relationship was examined, and it was discovered that amount of visits and adequate communication between the two individuals improved adherence. [9] The main factor associated with healthcare system includes availability and accessibility. Absence of accessibility to healthcare, long waiting time for hospital visits, and difficulty in getting prescription filled, and unsatisfactory clinic visits may contribute to poor compliance.…”

Section: Introductionmentioning

confidence: 99%

Evaluation of self-reported medication adherence and its associated factors among epilepsy patients in Hospital Kuala Lumpur

Molugulu¹,

Gubbiyappa²,

Murthy³

et al. 2016

J Basic Clin Pharma

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Introduction:Reports on medication adherence and its associated factors in patients with epilepsy in South East Asian countries are lacking. The primary purpose of this study was to assess the degree of medication adherence and its relationship with patient's satisfaction, psychosocial factors, quality of life and mental health in a sample of Malaysian epilepsy patients.Methodology:It is a cross-sectional study and was carried out in the outpatient Neurology Department of Hospital Kuala Lumpur, Malaysia (n=272). Data was collected by administering the structured questionnaire.Results and Discussion:Results showed that 49.3% of the epilepsy patients were non-adherent to their prescribed regimen. Univariate analysis showed significant associations between medication adherence and the following factors: race, seizure frequency, overall patient satisfaction, medication taste and smell, medication cost and physical appearance, medication effectiveness, complexity of medication regimen, patient barrier, patient understanding, patient role functioning, patient positivity, vitality and general interest. Multiple regression analysis indicated that factors that are influencing medication adherence are seizure frequency (P = 0.048), overall patient satisfaction (P = 0.043) and patient understanding about their illness (P = 0.001). The model chosen for testing the relationship between medication adherence and its associated factors give an R2 value of 25.2% with an adjusted R2 of 21.4%. The F value was also significant (P = 0.000). Based on the research findings, the researchers recommends that clinicians need to play a vital role in educating the patients on their disease conditions. By educating the patients on nature of epilepsy, different modalities of treatment and benefits of adherence to treatment will help in the better adherence and management.

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Section: Introductionmentioning

confidence: 99%

Evaluation of self-reported medication adherence and its associated factors among epilepsy patients in Hospital Kuala Lumpur

Molugulu¹,

Gubbiyappa²,

Murthy³

et al. 2016

J Basic Clin Pharma

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“…Este estudo foi analisado em outra publicação. O teste MannWhitney identificou um p=0,005 comprovando a A preocupação com a questão de diferenciar a percepção do sujeito sobre o controle de crises da frequência real de crises abre a possibilidade de se investigar questões subjetivas do controle do bem estar psicológico já identificados por Wilson et al 26 e Gopinath et al 27 .…”

Section: Resultsunclassified

Questionário de qualidade de vida na epilepsia: resultados preliminares

Souza

2001

Arq. Neuro-Psiquiatr.

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RESUMO -Crises epilépticas acontecem por breves períodos de tempo, mas os sentimentos de ansiedade e desamparo, adaptação às restrições impostas aos estilos de vida e uma variedade de outros problemas afetam mais a qualidade de vida (QV) dos portadores de epilepsia. Este estudo propõe um protocolo que contempla os objetivos de uma avaliação de QV na saúde e seja aplicado a uma população que frequenta um hospital universitário. Consta de 65 itens e avalia o funcionamento psicossocial, limitações físicas, aspecto cognitivo, percepção de controle, auto-conceito, bem como percepção de saúde e QV. Os resultados de validação e confiabilidade são discutidos. PALAVRAS-CHAVE: qualidade de vida, protocolos, epilepsia, adultos.Protocol of quality of life in epilepsy: first results ABSTRACT -Seizures happen for brief periods of time, but the feelings of anxiety and helplessness, adaptation to the restrictions impose by the life-style and variety of other problems affect more the quality of life in epilepsy. This study proposes a protocol that regards the objectives of a quality of life assessment in health and is applied to a population that attends a university hospital. It contains 65 items and assesses the psychosocial performance, physical limitation, cognitive aspects, perception of control, self-concept, as well as perception of health and quality of life. The results of reliability and validity are discussed.KEY WORDS: quality of life, epilepsy, adults, protocol. Conceito de qualidade de vidaQuestões relacionadas ao bem-estar subjetivo começaram a ganhar importância na área de saúde quando a expectativa de vida fez aumentar a incidência de doenças crônicas, mostrando a necessidade de se avaliar o impacto dessas condições na rotina dos pacientes. Uma perspectiva médica tende a focalizar intensamente os resultados clínicos decorrentes da avaliação de sintomas e sinais da doença. Hoje, ouvir o que o paciente tem a dizer sobre o que sente faz parte de uma avaliação integral do estado da doença, dos efeitos adversos do uso de medicamentos e da análise dos efeitos de procedimentos terapêuticos. Qualidade de vida (QV) é um conceito subjetivo, baseado na perspectiva do sujeito. O paciente é a pessoa que melhor pode definir sua pró-pria QV e relatar sobre suas expectativas, satisfação e bem estar. Calman 1 discute o conceito de QV como a diferença entre as experiências reais e as expectativas. Assim, o impacto na vida de dois indivíduos com idênticos tipos de epilepsia e resposta ao tratamento (i.e., frequência, severidade e efeitos adversos) pode diferir, dependendo de como cada pessoa percebe as restrições ou perdas de oportunidades no dia a dia. Cramer 2 estabelece que o balanço entre o status percebido e o desejado é a essência da equação de QV. A epilepsia, então, afeta cada pessoa diferentemente porque envolve crenças, expectativas e percepções que são categorias intra-psíqui-cas individuais relacionadas com a história de vida de cada um. Assim, auto-estima, independência, educação, problemas para dirigir, emprego, med...

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“…The difference between the patients and controls might, therefore, have been overestimated. Second, our study results might have been contaminated by social desirability bias, i.e., patients often respond in a way that they perceive to be desirable rather than state their actual perception [22,35]. Third, although the items we used to ascertain sexuality are fairly standard, our questionnaire has not been validated for the local population.…”

Section: Discussionmentioning

confidence: 99%

Sexual desire and satisfaction after resective surgery in patients with mesial temporal lobe epilepsy with hippocampal sclerosis

Ramesha

Radhakrishnan

Jiayaspathi

et al. 2012

Epilepsy & Behavior

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A questionnaire survey about doctor–patient communication, compliance and locus of control among South Indian people with epilepsy

Cited by 52 publications

References 29 publications

Evaluation of self-reported medication adherence and its associated factors among epilepsy patients in Hospital Kuala Lumpur

Evaluation of self-reported medication adherence and its associated factors among epilepsy patients in Hospital Kuala Lumpur

Questionário de qualidade de vida na epilepsia: resultados preliminares

Sexual desire and satisfaction after resective surgery in patients with mesial temporal lobe epilepsy with hippocampal sclerosis

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