A Study of the Relationship between Health and Subjective Well-Being in Parkinson’s Disease Patients

Abstract

Usual health-related quality-of-life measures can partially explain different well-being dimensions, yet they fail to capture part of the broader impact of disease on subjective well-being. Further empirical research into the relationship between subjective well-being and the EQ-5D Parkinson's disease longitudinally, and in different disease areas, is required, and further standardization of subjective well-being measures is recommended.

Subjective and psychological well-being in Parkinson's Disease: A systematic review

“…36,39,41,42 From these findings, the importance of implementing rehabilitation programs (physical therapies, MT, and tango intervention) based on a more positive concept of disability emerges. 38,43 The presence of more social support was related to a greater likelihood of remaining employed, which is another crucial variable for preserving higher satisfaction with life. 36,37,39,41,42 Within this perspective, another important finding of the studies concerns the importance of social support for maintaining subjective well-being.…”

“…35 However, the current literature is lacking specific investigations on these dimensions in PD. [36][37][38][39][40][41][42][43][44][45][46][47] Furthermore, patients with PD may show some deficits in recognizing emotions, compared to healthy controls. 36 PD patients need to adapt to these progressive changes, and the process of adaptation may lead them to experience a personal journey of growth and other psychological resources.…”

Phase II randomised controlled trial of a 6-month self-managed community exercise programme for people with Parkinson's disease

“…Health and well-being : Health-related quality of life was measured using the Euro-QOL (EQ5D-5L)29 and Short Form Health Survey (SF-36),30 scores are reported for the EQ5D-5L index score and SF-36 physical and mental scores. Non-motor symptoms were assessed using the PD's non-motor symptom questionnaire31 and self-reported fatigue using the Fatigue Severity Scale (FSS) 32.…”

Are preferences over health states informed?

“…anxiety or depression) with subjective well-being is stronger than with other health dimensions [9, 10, 41]. Dolan and Metcalfe [9] find that problems in anxiety or depression are associated with a detriment in enjoyment about 10 times as large as mobility problems.…”