A systematic review of pediatric self‐report symptom measures: Congruence with the theory of unpleasant symptoms

Sadovszky, Victoria von; Christensen, Emily; Jennings, Bonnie Mowinski; Miller, Susi; Hosley, Stephanie; Drought, Liesl; Lenz, Elizabeth R.

doi:10.1111/jspn.12215

Cited by 3 publications

(4 citation statements)

References 40 publications

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“…The TOUS matches well conceptually with the strong evidence that the pediatric patient is the most reliable primary source for subjective symptom reporting (Cheng, Lee, Li, Yuen, & Epstein, 2012; von Sadovszky et al, 2018). Multiple studies have emphasized the value of child reports regarding the symptom experiences and reporting adverse events related to cancer treatment (Brock, Wolfe, & Ullrich, 2018; Reeve et al, 2013; Reeve et al, 2017).…”

Section: Analysis Of the Tous In The Context Of Pediatric Oncology Nusupporting

confidence: 67%

“…Early symptom measurement studies lacked conceptual models to frame the studies of symptoms experienced during childhood cancer (Docherty, 2003). More recent reports continue to emphasize the importance of theories and conceptual models in guiding research designs for symptom studies, in helping explain study findings, and in translating symptom study findings into patient care (Dirksen, Belyea, & Epstein, 2009; Kestler & Lobiondo-Wood, 2012; Linder, 2010; von Sadovszky et al, 2018). As recently noted, the use of theories in pediatric symptom studies has become more common (von Sadovszky et al, 2018).…”

Section: Symptom Science In Pediatric Oncologymentioning

confidence: 99%

“…Factors such as family coping, family history with the symptoms, family resources, and family well-being are relevant influencing factors on children with cancer. Children and adolescents as well as those who care for and about them are affected by troubling cancer-related symptoms (Buckner et al, 2014; von Sadovszky et al, 2018). Indeed, family members commonly identify and help manage the troubling symptoms.…”

Section: Analysis Of the Tous In The Context Of Pediatric Oncology Numentioning

confidence: 99%

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The Theory of Unpleasant Symptoms in Pediatric Oncology Nursing: A Conceptual and Empirical Fit?

Silva-Rodrigues

Hinds

Nascimento

2019

J Pediatr Oncol Nurs

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Symptom management knowledge is a priority for pediatric oncology nursing research. Theories and models can frame the studies of symptoms experienced during childhood cancer. This article describes and analyzes the middle-range theory, theory of unpleasant symptoms (TOUS), for its conceptual and empirical fit with pediatric oncology nursing based on its current use in adult oncology research and its limited use to date in pediatric oncology. Searches in PubMed and CINAHL databases using the keywords theory of unpleasant symptoms and cancer and covering the time period 2000 to 2017 yielded 103 abstracts for review. Twenty published reports met eligibility criteria for review; only one included pediatric oncology patients. No study to date has tested all the components of the TOUS in pediatrics. The TOUS component of performance appears to be underaddressed across completed studies that instead include a focus on patient-reported quality of life rather than on perceived behavioral or performance indicators concurrent with the subjective symptom reports. Additionally, the influence of family, essential in pediatric oncology, is absent in the majority of studies guided by the TOUS. The TOUS is a structurally complicated framework that would be a conceptual fit for pediatric oncology if family influence and perceived function were included. Studies across this population and guided by the TOUS are needed, although testing all the theorized linkages in the TOUS would likely require a large sample size of patients and, thereby, multisite approaches given that cancer is a rare disease in childhood.

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Section: Analysis Of the Tous In The Context Of Pediatric Oncology Nusupporting

confidence: 67%

Section: Symptom Science In Pediatric Oncologymentioning

confidence: 99%

Section: Analysis Of the Tous In The Context Of Pediatric Oncology Numentioning

confidence: 99%

See 1 more Smart Citation

The Theory of Unpleasant Symptoms in Pediatric Oncology Nursing: A Conceptual and Empirical Fit?

Silva-Rodrigues

Hinds

Nascimento

2019

J Pediatr Oncol Nurs

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“…Therein lies the greatest discrepancy between patient and observerrated reporting and, conversely, the greatest areas in which self-reporting can be beneficial (Baxter et al, 2011;Cheng et al, 2018). Pediatric and adolescent selfassessments are crucial in providing the most reliable and precise measurement of CINV severity but must be designed to adequately match a child's developmental abilities (Baxter et al, 2011;Cheng et al, 2018;Von Sadovszky et al, 2018).…”

Section: Historical Strategies For Improvementmentioning

confidence: 99%

Nausea in Numbers: Electronic Medical Record Nausea and Vomiting Assessment for Children With Cancer

Evans

Vingelen

et al. 2020

J Pediatr Oncol Nurs

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Purpose: Chemotherapy-induced nausea and vomiting (CINV) is a distressing, underrecognized effect of treatment that can occur in up to 80% of patients. The purpose of this quality improvement project was to evaluate the impact of implementation of a standardized nausea assessment tool, the Baxter Animated Retching Faces (BARF) scale, on nursing compliance with nausea assessment and the frequency and severity of patient-reported CINV for children with cancer. Method: The Plan-Do-Study-Act cycle was used to implement this practice change. With stakeholder support and hospital governance council approval, the BARF scale was introduced into the electronic medical record. Nurses were provided education about the assessment tool and were given badge buddy cards to prompt use of the tool, and workstation reminders were created. A root cause analysis was conducted to provide feedback for continuous quality improvement. Results: Retrospective, aggregate electronic medical record data from May 2018 to April 2019 were analyzed for assessment compliance, total number of admissions with vomiting episodes, and average BARF score. Over the 12-month implementation period, run charts demonstrated a shift in nursing practice with increased compliance in documented nausea assessments during the second 6-month period. There was not a significant decrease in patient-reported CINV. Conclusion: The use of standardized nausea assessments based on patient self-reporting can provide useful and consistent feedback for nurses and health care providers. This quality improvement project demonstrated increased compliance with nausea assessment documentation. Further studies are needed to demonstrate that improvements in nausea assessment may reduce the frequency and severity of CINV.

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Patient-Reported Outcomes in Pediatric Oncology: The Voice of the Child

et al. 2020

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A systematic review of pediatric self‐report symptom measures: Congruence with the theory of unpleasant symptoms

Abstract: Practitioners need to be aware of the dimensions reflected in commonly used symptom measures. Augmentation of these measures is needed in order to assess the entire symptom experience in children and adolescents.

Cited by 3 publications

References 40 publications

The Theory of Unpleasant Symptoms in Pediatric Oncology Nursing: A Conceptual and Empirical Fit?

The Theory of Unpleasant Symptoms in Pediatric Oncology Nursing: A Conceptual and Empirical Fit?

Nausea in Numbers: Electronic Medical Record Nausea and Vomiting Assessment for Children With Cancer

Patient-Reported Outcomes in Pediatric Oncology: The Voice of the Child

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