2010
DOI: 10.1016/j.crohns.2010.01.003
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A United Kingdom inflammatory bowel disease database: Making the effort worthwhile

Abstract: Our experience shows it is possible to collect data from centres across the country which truly reflects clinical practice. We have learned as much from the process itself as from the data, principally, information needs to be well defined, validated at entry, and updated at every visit, a time consuming sequence which we had underestimated. Our lessons learned may help inform the development of a national database, and support national IBD standards and audit.

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Cited by 34 publications
(18 citation statements)
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“…The predominance of male sex in pediatric CD has been consistently observed in many studies in Europe, North America and Asia, with a male to female ratio of 1.3-1.6 : 1 [5][6][7]. The predominant disease localization was L3 with non-structuring and nonpenetrating (56.6%) behavior, which is also consistent with the previously published reports from other countries such as UK and Denmark [8]. The issue of early onset disease requires a special comment.…”
Section: Discussionsupporting
confidence: 81%
“…The predominance of male sex in pediatric CD has been consistently observed in many studies in Europe, North America and Asia, with a male to female ratio of 1.3-1.6 : 1 [5][6][7]. The predominant disease localization was L3 with non-structuring and nonpenetrating (56.6%) behavior, which is also consistent with the previously published reports from other countries such as UK and Denmark [8]. The issue of early onset disease requires a special comment.…”
Section: Discussionsupporting
confidence: 81%
“…The characteristics of our population of IBD patients are similar to those previously reported in other European countries regarding the frequencies of Chron's disease, UC, and the need for surgery [11] .…”
Section: Discussionsupporting
confidence: 71%
“…The stable rates overall of oral steroid prescriptions in Crohn's disease may also mask changes in the type of oral steroid prescribed since there was a 20% increase in budesonide use during the study period reflecting the appropriate adoption of guidelines for treatment of moderately active ileo‐caecal Crohn's disease with budesonide . The observed decrease in steroid dependence is likely to reflect the shift towards earlier and wider use of thiopurines and the nascent use of anti‐TNFs in the UK during the latter part of the study period indicative of a steady evolution in Crohn's disease management . This is consistent with Rungoe et al .…”
Section: Discussionmentioning
confidence: 99%