A Web-Based Form With Interactive Charts Used to Collect and Analyze Data on Home Births in Italy

Abstract

Background The use of Web-based forms and data analysis can improve the collection and visualization of data in clinical research. In Italy, no register exists that collects clinical data concerning home births. Objective The purpose of this study was (1) to develop a Web portal to collect, through a Web-based form, data on home births in Italy and (2) to provide those interested with a graphic visualization of the analyses and data collected. Methods Following the World Health Organization’s guidelines, and adding questions based on scientific evidence, the case report form (CRF) on the online form was drafted by midwives of the National Association of Out-of-Hospital Birth Midwives. During an initial phase, a group of midwives (n=10) tested the CRF, leading to improvements and adding the necessary questions to achieve a CRF that would allow a more complete collection of data. After the test phase, the entire group of midwives (n=166) registered themselves on the system and began filling out birth questionnaires. In a subsequent phase, the administrators of the portal were able to view the completed forms in a graphic format through the use of interactive maps and graphs. Results From 2014 to 2016, 58 midwives included 599 birth questionnaires via the Web portal; of these, 443 were home-based, 76% (321/424) of which were performed at home and 24% (103/424) at a midwifery unit. Most of the births assisted (79%, 335/424) were in northern Italy, and the average ages of the mother and father were 33.6 (SD 4.7) years and 37.0 (SD 5.6) years, respectively. Conclusions We developed an innovative Web-based form that allows, for the first time in Italy, the collection of data on home births and births in the midwifery unit. Furthermore, the data collected are viewable online by the midwives through interactive maps and graphs that allow them to have a general and continuously updated view of the situation of out-of-hospital births performed by the National Association of Out-of-Hospital Birth Midwives. The future goal is to be able to expand this data collection to all out-of-hospital births throughout the national territory. With an increase in the number of enrolled midwives, it would be possible to use the portal as a Web-based form and also as a portal for sharing resources that would help midwives in their clinical practice.

Processo De Enfermagem À Criança Com Microcefalia Por Zika Vírus Em Serviço De Cuidado Domiciliar Fundamentado Na Teoria Do Autocuidado

“…A trajetória histórica da enfermagem é marcada por movimentos em busca do reconhecimento profissional, os estudos apontam que atualmente o fortalecimento do processo de profissionalização está fortemente atrelado ao aprofundamento dos conhecimentos científicos (PESSALÁCIA, 2019); SILVA, 2019); (OGUISSO;TSUNECHIRO, 2005). Assim, a universidade assume uma responsabilidade institucional neste processo, somando esforços para a implantação de Programas de Pós-Graduação em Enfermagem (OGUISSO;TSUNECHIRO, 2005).…”

Informatics Methodology Used in the Web-Based Portal of the NASCITA Cohort Study: Development and Implementation Study

“…The eCRF has been structured in a way that will permit data collection to be expanded to cover the additional areas (eg, nutrition) more thoroughly in a second phase; the different data collection sections are, in fact, based on an XML definition that can easily be implemented and modified [ 27 ].…”

Low-Risk Planned Out-of-Hospital Births: Characteristics and Perinatal Outcomes in Different Italian Birth Settings

“…Women cared for by the out of hospital midwives association constituted the target population [24]. They were healthy low-risk women, with a gestational age of 37 to 42 completed weeks of pregnancy, with single, vertex babies whose birth was expected to be vaginal and spontaneous and who agreed to be transferred to hospital care if problems occurred.…”