Academic Palliative Care Research in Portugal: Are We on the Right Track?

Pereira, Alexandra; Ferreira, Amélia; Martins, José

doi:10.3390/healthcare6030097

Cited by 5 publications

(4 citation statements)

References 31 publications

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“…Although the majority of palliative care research in Portugal is done to improve individual-level practice [31], there still is a lack of evidence regarding the healthcare received by adult individuals in the last months of life in this country. This review included eight quantitative descriptive retrospective studies and one quantitative comparative retrospective study.…”

Section: Discussionmentioning

confidence: 99%

“…Also, most palliative care research is conducted during an academic course and as time can be a concern, researchers tend to choose contexts where data collection can be easier. The development of research in non-hospital settings is one of the major gaps in palliative care investigations in Portugal [31]. The care provided at the end of life has become an important issue in many countries [8,18].…”

Section: Discussionmentioning

confidence: 99%

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Healthcare Received in the Last Months of Life in Portugal: A Systematic Review

Pereira¹,

Ferreira²,

Martins

2019

Healthcare

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Background: While evidence demonstrates that end-of-life care practices vary across countries, there is still a lack of evidence regarding the healthcare that is received by adult individuals in the last months of life in Portugal. Methods: This is a systematic review that aims to examine the evidence published until 2019 regarding the healthcare received by adult individuals in the last months of life in Portugal. Results: Nine studies were included in this review. All of these were quantitative and retrospective studies, used patient records as the source of information, and were conducted in hospital settings. The time frame analysis before death ranged from 48 h to 3 months. The majority of the studies focused on the physical aspects of care, such as physical needs assessment and symptom management, prescribed medication, and invasive interventions. No evidence was found regarding spiritual, psychological, social or cultural needs. Conclusion: Although using patient records as a source of information may introduce a bias, this study indicates that there is a greater emphasis on the physical aspects of care and less on the psychological, spiritual or social aspects of care received by adult individuals in their last months of life in Portugal.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Healthcare Received in the Last Months of Life in Portugal: A Systematic Review

Pereira¹,

Ferreira²,

Martins

2019

Healthcare

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“…This research model has not previously been introduced when taking into account the mediating role SE can play between AL and civility. Furthermore, the research contributes to the AL health-care literature as a new area of study (Laschinger et al , 2013; Malila et al , 2018), as well as to leadership literature in general, considering leadership studies in Portugal are not currently satisfactory as a body of literature of the overall scope (Pereira et al , 2018).…”

Section: Introductionmentioning

confidence: 99%

Studying the relationships between authentic leadership, structural empowerment, and civility in the palliative care sector in Portugal

Kulari

Ribeiro

Laneiro

et al. 2022

LHS

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Purpose This paper aims to propose a model studying the relationship of authentic leadership (AL), structural empowerment (SE) and civility in the palliative care sector. This model proposes SE as a mediator between AL and civility. Design/methodology/approach Data was collected from 213 employees working in five major public palliative care hospitals in central Portugal. The study sample was predominantly female (80.3%) and the response rate was 42.6%. Variables were measured using the Authentic Leadership Inventory, Workplace Civility Scale and Conditions of Work Effectiveness Questionnaire II scales. Hayes’ PROCESS macro for mediation analysis in SPSS was used to test the hypothesized model. Findings Results suggest that AL has a significant positive direct relationship with both SE and civility. Furthermore, SE demonstrated to play a partial mediation effect between AL and civility. Practical implications This study may be of use for healthcare administration encouraging the development of AL, suggesting that the more leaders are seen as authentic, the more employees will perceive they have access to workplace empowerment structures and a civil environment. Originality/value Considering the mainstream literature in healthcare management, to the best of the authors’ knowledge, this is the first study to date to integrate the relation of AL, SE and civility in the palliative care sector. Further, the research model has not previously been introduced when considering the mediating role structural empowerment can play between AL and civility.

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“…A recent bibliometric study regarding the postgraduate academic publications in Portugal in the field of palliative care over the past few years showed that few methodological studies were conducted in Portugal [17]. Methodological studies are important for the development of adequate measurement instruments to assess palliative care-related quality indicators [18].…”

Section: Introductionmentioning

confidence: 99%

Cultural Adaptation and Validation of the Portuguese Version of the CANHELP Lite Bereavement Questionnaire

Pereira¹,

Ferreira²,

Abrantes³

et al. 2020

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Background: Satisfaction with care is an important outcome measure in end-of-life care. Validated instruments are necessary to evaluate and disseminate interventions that improve satisfaction with care at the end of life, contributing to improving the quality of care offered at the end of life to the Portuguese population. The purpose of this study was to perform a cross-cultural adaptation and psychometric analysis of the Portuguese version of the CANHELP Lite Bereavement Questionnaire. Methods: Methodological research with an analytical approach that includes translation, semantic, and cultural adaptation. Results: The Portuguese version comprised 24 items. A panel of experts and bereaved family members found it acceptable and that it had face and content validity. A total of 269 caregivers across several care settings in the northern region of Portugal were recruited for further testing. The internal consistency analysis of the adapted instrument resulted in a global alpha value of 0.950. The correlation between the adapted CANHELP questionnaire and a global rating of satisfaction was of 0.886 (p < 0.001). Conclusions: The instrument has good psychometric properties. It was reliable and valid in assessing caregivers’ satisfaction with end-of-life care and can be used in both clinical and research settings.

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Academic Palliative Care Research in Portugal: Are We on the Right Track?

Cited by 5 publications

References 31 publications

Healthcare Received in the Last Months of Life in Portugal: A Systematic Review

Healthcare Received in the Last Months of Life in Portugal: A Systematic Review

Studying the relationships between authentic leadership, structural empowerment, and civility in the palliative care sector in Portugal

Cultural Adaptation and Validation of the Portuguese Version of the CANHELP Lite Bereavement Questionnaire

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