Access to the Commonwealth electoral roll for medical research

Loff, Bebe; Campbell, Elissa A; Glass, Deborah Catherine; Kelsall, Helen L; Slegers, Claudia; Zion, Deborah; Brown, Ngaire; Fritschi, Lin

doi:10.5694/mja11.11620

Cited by 9 publications

(6 citation statements)

References 1 publication

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“…Traditional methods of recruiting participants, such as mailed invitations to random samples drawn from existing databases [2-4] have become less effective and more expensive [5]. Furthermore, changes to privacy laws have resulted in limited access to some national databases, even for the purposes of health research [6]. These findings point to the need for new methods that are tailored to recruit young people in the present day.…”

Section: Introductionmentioning

confidence: 99%

Online and Offline Recruitment of Young Women for a Longitudinal Health Survey: Findings From the Australian Longitudinal Study on Women’s Health 1989-95 Cohort

Loxton¹,

Powers²,

Anderson³

et al. 2015

J Med Internet Res

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BackgroundIn 2012, we set out to recruit a cohort of at least 10,000 women aged 18-23 from across Australia. With recent research demonstrating the inadequacy of traditional approaches to recruiting women in this age group, we elected to conduct open recruiting.ObjectiveOur aim was to report on the overall success of open recruiting and to evaluate the relative success of a variety of recruitment methods in terms of numbers and demographics.MethodsWe used referrals, Facebook, formal advertising, and incentives in order to recruit the cohort.ResultsIn all, 17,069 women were recruited for the longitudinal online survey, from 54,685 initiated surveys. Of these women, most (69.94%, n=11,799) who joined the longitudinal cohort were recruited via Facebook, 12.72% (n=2145) via the fashion promotion, 7.02% (n=1184) by referral, 4.9% (n=831) via other Web activities, and 5.4% (n=910) via traditional media.ConclusionsFacebook was by far the most successful strategy, enrolling a cohort of women with a similar profile to the population of Australian women in terms of age, area of residence, and relationship status. Women recruited via fashion promotion were the least representative. All strategies underrepresented less educated women—a finding that is consistent with more traditional means of recruiting. In conclusion, flexibility in recruitment design, embracing new and traditional media, adopting a dynamic responsive approach, and monitoring the results of recruiting in terms of sample composition and number recruited led to the successful establishment of a new cohort.

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Section: Introductionmentioning

confidence: 99%

Online and Offline Recruitment of Young Women for a Longitudinal Health Survey: Findings From the Australian Longitudinal Study on Women’s Health 1989-95 Cohort

Loxton¹,

Powers²,

Anderson³

et al. 2015

J Med Internet Res

View full text Add to dashboard Cite

show abstract

“…A total of 12,245 adults aged 18 years or older in South Australia were randomly drawn after stratification by sex and age from the Electoral Roll, a comprehensive sampling frame ( 21 ). Data were collected by mailed self-completed questionnaires in 2015–2016, which implied that informed consent was obtained by voluntarily returning the survey forms.…”

Section: Methodsmentioning

confidence: 99%

Dental service sector and patient-reported oral health outcomes: Modification by trust in dentists

Song

Santiago

Nair

et al. 2023

Front. Public Health

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ObjectiveThe study aimed to examine the association between patient-reported oral health outcomes and the dental service sector and trust in dentists. The possible interaction effect of trust on this association was also explored.MethodsRandomly selected adults aged over 18 years living in South Australia were surveyed using self-administered questionnaires. The outcome variables were self-rated dental health and the evaluation outcome of the Oral Health Impact Profile. The dental service sector and the Dentist Trust Scale were included in bivariate and adjusted analyses with sociodemographic covariates.ResultsData from 4,027 respondents were analyzed. Unadjusted analysis showed that poor dental health and oral health impact were associated with sociodemographic characteristics, including lower income/education, public dental service, and lower trust in dentists (p < 0.01). Adjusted associations were similarly maintained (p < 0.05) but attenuated with the loss of statistical significance, mainly in the trust tertiles. Lower trust in dentists in the private sector had an interaction effect, with a higher prevalence ratio of oral health impact (prevalence ratio = 1.51; 95% confidence interval, 1.06–2.14; p < 0.05).ConclusionPatient-reported oral health outcomes were associated with sociodemographic characteristics, the dental service sector, and trust in dentists.Implications for public healthThe inequality of oral health outcomes between dental service sectors needs to be addressed both independently and in association with covariates including socioeconomic disadvantage.

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“…The Australian Electoral Commission (AEC) has guidelines on the provision of electoral roll data for use in medical research. 33 However, it appears that few research studies are provided with access to extracts from the Australian electoral roll, 34 with only 11 medical research and/or screening programs provided with an extract during 2011-12. 32 Alternative approaches to select a comparison population could include developing a population registry using the Medicare eligible population.…”

Section: Box 1: Probabilistic Matchingmentioning

confidence: 99%

Data linkage for injury surveillance and research in Australia: perils, pitfalls and potential

Mitchell

Cameron

Bambach

2014

Australian and New Zealand Journal of Public Health

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Objective: To outline some of the key issues for injury-related data linkage studies in Australia and describe potential applications of data linkage for injury surveillance and research.Methods: Narrative review of data linkage capacity and injury-related data collection quality in Australia. Results:The establishment of national and state-based data linkage centres in Australia has been a great leap forward for data linkage capacity for injury research. However, there are still limitations of using data linkage for injury surveillance and research. These are highlighted in the form of key perils and pitfalls, with examples provided. There is still much to be gained for injury research by using data linkage techniques to enhance the information available across the injury continuum, but data quality issues should always be acknowledged. Conclusions:Obtaining authorisation to link injury data collections for national research remains cumbersome. Streamlining of the application process is needed to ensure that injury research is able to be conducted in a timely fashion. Data quality and data linkage rates need to be considered when interpreting research findings.Implications: Streamlining of the application process for research that involves linking data collections would help ensure that research is conducted in a timely fashion.

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Access to the Commonwealth electoral roll for medical research

Cited by 9 publications

References 1 publication

Online and Offline Recruitment of Young Women for a Longitudinal Health Survey: Findings From the Australian Longitudinal Study on Women’s Health 1989-95 Cohort

Online and Offline Recruitment of Young Women for a Longitudinal Health Survey: Findings From the Australian Longitudinal Study on Women’s Health 1989-95 Cohort

Dental service sector and patient-reported oral health outcomes: Modification by trust in dentists

Data linkage for injury surveillance and research in Australia: perils, pitfalls and potential

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