Active Rehabilitation—a community peer-based approach for persons with spinal cord injury: international utilisation of key elements

Divanoglou, Anestis; Tasiemski, Tomasz; Augutis, Marika; Trok, Katarzyna

doi:10.1038/sc.2017.28

Cited by 21 publications

(26 citation statements)

References 20 publications

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“…The primary focus of this consumer-driven intervention, is to support individuals with SCI to improve their independent living skills and self-esteem, and subsequently to reach their full potential as regards activity and participation. During the past 40 years, components of the RG AR concept have been adopted by organizations in over 20 countries in Europe, Asia and Africa (17).…”

Section: Study Design and Ethicsmentioning

confidence: 99%

Self-reported health problems and prioritized goals in community-dwelling individuals with spinal cord injury in Sweden

Divanoglou¹,

Augutis²,

Sveinsson³

et al. 2018

J Rehabil Med

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The high proportion of reported "unbearable" problems point to the stronger need for systematic, comprehensive, life-long, multi-disciplinary follow-up for people with spinal cord injury. The high rate of goals related to improving strength and fitness across all participants independently of their characteristics highlight the important role of community organizations that offer such lifetime services.

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Section: Study Design and Ethicsmentioning

confidence: 99%

Self-reported health problems and prioritized goals in community-dwelling individuals with spinal cord injury in Sweden

Divanoglou¹,

Augutis²,

Sveinsson³

et al. 2018

J Rehabil Med

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“…Because of the long and often complex adjustment process, it has been recommended that services, information and resources facilitating the adjustment process are offered multiple times and in multiple ways [4]. Community organisations play a key role in the post-discharge life of community-dwelling individuals with SCI by providing such ongoing support services [5].…”

Section: Introductionmentioning

confidence: 99%

“…Active Rehabilitation (AR) is a community peer-based concept for people with spinal cord injury (SCI) that was developed in Sweden 40 years ago. Since then, aspects of the concept have been implemented in more than 20 countries worldwide [5]. The objective of AR is to promote healthy active living by providing ongoing support, education and skills training based on peer interaction [5].…”

Section: Introductionmentioning

confidence: 99%

“…Since then, aspects of the concept have been implemented in more than 20 countries worldwide [5]. The objective of AR is to promote healthy active living by providing ongoing support, education and skills training based on peer interaction [5]. The concept is primarily delivered through brief residential training programmes that provide group-based yet individualised training opportunities in a community-like environment [5].…”

Section: Introductionmentioning

confidence: 99%

“…The objective of AR is to promote healthy active living by providing ongoing support, education and skills training based on peer interaction [5]. The concept is primarily delivered through brief residential training programmes that provide group-based yet individualised training opportunities in a community-like environment [5]. The 10 key elements of AR were described recently and despite some country-specific adaptations, they were present in programmes offered in 21 countries in Europe, Asia and Africa [5].…”

Section: Introductionmentioning

confidence: 99%

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INTERnational Project for the Evaluation of “activE Rehabilitation” (inter-PEER) – a protocol for a prospective cohort study of community peer-based training programmes for people with spinal cord injury

Divanoglou

Tasiemski²,

Jörgensen

2020

BMC Neurol

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Background: Active Rehabilitation (AR) is a community peer-based concept for people with spinal cord injury (SCI) that is primarily delivered through brief residential training programmes. Despite a plethora of positive anecdotal evidence of AR programmes as life-changing experiences, the effects of AR-programmes have not been evaluated scientifically. Here, we present the protocol of the INTERnational Project for the Evaluation of "activE Rehabilitation" (inter-PEER) aiming to evaluate the effects of AR training programmes on community-dwelling individuals with SCI. Methods: International prospective cohort study that recruits consecutive participants in AR training programmes. Evaluation is conducted through a web-based survey at 3 time-points: at the commencement and completion of the training programme, and 3 months after the end of the training programme. Evaluation also includes a practical wheelchair skills test at the first two time-points. The primary outcome measures are the Spinal Cord Independence Measure Self-report (SCIM-SR), the Queensland Evaluation of Wheelchair Skills test (QEWS), the Wheelchair Skills Test Questionnaire (WST-Q) and the Moorong Self-Efficacy Scale (MSES). The secondary outcome measures are the 11-item Life Satisfaction Questionnaire (LiSat-11), the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation), the Leisure Time Physical Activity Questionnaire for people with SCI (LTPAQ-SCI) and the 10-item Connor-Davidson Resilience Scale (CD-RISC-10). We piloted the implementation of the protocol in Sweden in 7 participants with diverse SCI and sociodemographic characteristics and collected feedback from participants and peer-mentors about study procedures through interviews, a workshop and field observations.

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Relationship between secondary health conditions and life satisfaction in persons with spinal cord injury: study across twenty-one countries

et al. 2023

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Purpose To determine the relationships between impact of secondary health conditions (SHCs), treatment of SHCs, and life satisfaction (LS) following spinal cord injury (SCI) across 21 countries. Hypotheses were as follows: (1) Persons with SCI and fewer SHCs report higher LS and (2) Persons who receive treatment for SHCs report higher LS than those who do not receive treatment. Methods Cross-sectional survey, including 10,499 persons with traumatic or non-traumatic SCI aged 18 years or older and living in the community. To assess SHCs, 14 items adapted from the SCI-Secondary Conditions Scale were used (range 1–5). SHCs index was calculated as the mean of all 14 items. LS was assessed using a selection of 5 items from the World Health Organization Quality of Life Assessment. LS index was calculated as the mean of these 5 items. Results South Korea, Germany, and Poland exhibited the highest (2.40–2.93) and Brazil, China, and Thailand the lowest (1.79–1.90) impact of SHCs. Indexes for LS and SHCs were inversely correlated (– 0.418; p < 0.001). Mixed Model Analysis showed that the fixed effect (key predictors of the study) of SHCs index (p < 0.001) and the positive interaction between SHCs index and treatment (p = 0.002) were significant determinants of LS. Conclusion Persons with SCI across the world are more likely to perceive better LS if they experience fewer SHCs and receive treatment for SHCs, in comparison to those who do not. Prevention and treatment of SHCs following SCI should be a high priority in order to improve the lived experience and enhance LS.

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Active Rehabilitation—a community peer-based approach for persons with spinal cord injury: international utilisation of key elements

Cited by 21 publications

References 20 publications

Self-reported health problems and prioritized goals in community-dwelling individuals with spinal cord injury in Sweden

Self-reported health problems and prioritized goals in community-dwelling individuals with spinal cord injury in Sweden

INTERnational Project for the Evaluation of “activE Rehabilitation” (inter-PEER) – a protocol for a prospective cohort study of community peer-based training programmes for people with spinal cord injury

Relationship between secondary health conditions and life satisfaction in persons with spinal cord injury: study across twenty-one countries

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