Self-reported health problems and prioritized goals in community-dwelling individuals with spinal cord injury in Sweden

Divanoglou, Anestis; Augutis, Marika; Sveinsson, Þórarinn; Hultling, Claes; Levi, Richard

doi:10.2340/16501977-2383

Cited by 29 publications

(26 citation statements)

References 23 publications

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“…Pain in the life of a person with a disability such as SCI is a common symptom in all the phases of care. The reported prevalence range between 34%-92% (16,18,35,37) with the type of pain (neuropathic or joint or muscle pain) influenced by the level of the lesion and the duration of the spinal cord injury (38). The presence of pain at times is related to the presence of other SHCs such as spasticity, pressure sore, contractures, urinary tract infection (21,37).…”

Section: Discussionmentioning

confidence: 99%

Secondary health conditions and their impact on the wellbeing of people with spinal cord injury, South Africa: Patients perspective.

Pilusa

Myezwa

Joanne

2019

Preprint

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Background Long-term rehabilitation that includes preventive care for people with spinal cord injury is key to promoting health. There is evidence that secondary health conditions (SHCs) are prevalent complications across the continuum of care for people with spinal cord injury, leading to recurrent hospitalization and poor quality of life. In order to develop a context-based prevention model of care and strategies in South Africa, there is a need to understand the lived experiences of people with spinal cord injury (SCI).Aim To describe people with spinal cord injury’s experiences of secondary health conditions and the impact these have on their wellbeing.Methods A qualitative descriptive design using semi-structured interviews was adopted. Purposive sampling was used to collect data from 17 participants with SCI who attend outpatient medical care at a tertiary rehabilitation hospital in Gauteng, South Africa. Primary data were collected from August 2018-July 2019. All interviews were transcribed verbatim and analysed using a thematic analysis approach.Results People with spinal cord injury experience a range of secondary health conditions, of which pain, bowel and bladder issues were the most common. The presence of SHCs had an impact on the psychological, physical and social wellbeing of the participants.Conclusion There is a need for prevention interventions (health education and screening) for SHCs throughout the continuum of care and at all levels of prevention. Further research on factors influencing the prevention and management of SHCs is needed.

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Section: Discussionmentioning

confidence: 99%

Secondary health conditions and their impact on the wellbeing of people with spinal cord injury, South Africa: Patients perspective.

Pilusa

Myezwa

Joanne

2019

Preprint

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“…Shoulder pain is the most common site of musculoskeletal pain in adults with spinal cord injuries (SCI) who use manual wheelchairs (MWC) and its existence can significantly limit a person's functional abilities (1). Shoulder pain is reported in 37-70% of individuals with SCI who use a MWC (2)(3)(4)(5)(6)(7). This differs vastly from the 2.9% of the general able-bodied population who experience shoulder pain (8).…”

Section: Introductionmentioning

confidence: 98%

Humeral elevation workspace during daily life of adults with spinal cord injury who use a manual wheelchair compared to age and sex matched able-bodied controls

Goodwin

Cain

Straaten

et al. 2020

Preprint

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Shoulder pain and pathology are extremely common for individuals with spinal cord injuries (SCI) who use manual wheelchairs (MWC). Although risky humeral kinematics have been measured during wheelchair-based activities performed in the lab, little is known about arm motion in the free-living environment. The purpose of this study was to measure the humeral elevation workspace throughout a typical day for individuals with SCI and able-bodied matched controls. Thirty-four individuals with SCI who use a MWC (42.7 +/- 12.7 years of age, 28 males/6 females, C6-L1) and 34 age-and sex-matched controls were enrolled. Participants wore three inertial measurement units (IMU) on their upper arms and torso for one to two days. Humeral elevation angles were estimated and the percentage of time individuals spent in five elevation bins (0-30 degrees, 30-60 degrees, 60-90 degrees, 90-120 degrees, and 120-180 degrees) were calculated. For both arms, the SCI cohort spent a significantly lower percentage of the day in 0-30 degrees of humeral elevation (Dominant: SCI= 15.7 +/- 12.6%, Control= 32.1 +/- 15.6%, p<0.0001; Non-Dominant: SCI= 21.9 +/- 17.8%, Control= 34.3 +/- 15.5%, p=0.001) and a significantly higher percentage of time in elevations associated with tendon compression (30-60 degrees of humeral elevation, Dominant: SCI= 62.8 +/- 14.4%, Control= 49.9.1 +/- 13.0%, p<0.0001; Non-Dominant: SCI= 58.8 +/- 14.9%, Control= 48.3 +/- 13.6%, p=0.003) than controls. The increased percentage of time individuals with SCI spent in elevations associated with tendon compression may contribute to increased shoulder pathology. Characterizing the humeral elevation workspace utilized throughout a typical day may help in understanding the increased prevalence of shoulder pain and pathology in individuals with SCI who use MWCs.

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“…This places their upper extremities at high risk of repetitive strain injuries which leads to decreased quality of life. 3 Upper extremity pain has been reported up to 70% among persons with SCI which is often chronic in nature and worsens over time. [3][4][5][6] Among MWC users with SCI, the shoulder is the most common site of musculoskeletal pain with prevalence of 59% to 68%.…”

Section: Introductionmentioning

confidence: 99%

“…3 Upper extremity pain has been reported up to 70% among persons with SCI which is often chronic in nature and worsens over time. [3][4][5][6] Among MWC users with SCI, the shoulder is the most common site of musculoskeletal pain with prevalence of 59% to 68%. 5,6 The anatomic design of the glenohumeral joint favors manipulation and mobility at the expense of stability, demanding more of the vulnerable rotator cuff.…”

Section: Introductionmentioning

confidence: 99%

Shoulder magnetic resonance imaging findings in manual wheelchair users with spinal cord injury

Jahanian

Straaten

Goodwin

et al. 2020

The Journal of Spinal Cord Medicine

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Objective: To investigate the prevalence of rotator cuff and long head of the biceps pathologies in manual wheelchair (MWC) users with spinal cord injury (SCI). Design: Cross-sectional study. Setting: Outpatient clinic at a tertiary medical center. Participants: Forty-four adult MWC users with SCI (36 men and 8 women) with an average age (SD) of 42 (13) years. SCI levels ranged from C6 to L1; complete and incomplete SCI. Outcome Measures: Participants’ demographic and anthropometric information, presence of shoulder pain, Wheelchair User’s Pain Index (WUSPI) scores, and magnetic resonance imaging findings of shoulder pathologies including tendinopathy, tendon tears, and muscle atrophy. Results: Fifty-nine percent of the participants reported some shoulder pain. The prevalence of any tendinopathy across the rotator cuff and the long head of biceps tendon was 98%. The prevalence of tendinopathy in the supraspinatus was 86%, infraspinatus was 91%, subscapularis was 75%, and biceps was 57%. The majority of tendinopathies had mild or moderate severity. The prevalence of any tears was 68% . The prevalence of tendon tears in the supraspinatus was 48%, infraspinatus was 36%, subscapularis was 43%, and biceps was 12%. The majority of the tears were partial-thickness tears. Participants without tendon tears were significantly younger (P < 0.001) and had been wheelchair user for a significantly shorter time (P = 0.005) than those with tendon tears. Conclusion: Mild and moderate shoulder tendinopathy and partial-thickness tendon tears were highly prevalent in MWC users with SCI. Additionally, the findings of this study suggest that strategies for monitoring shoulder pathologies in this population should not be overly reliant on patient-reported pain, but perhaps more concerned with years of wheelchair use and age.

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Self-reported health problems and prioritized goals in community-dwelling individuals with spinal cord injury in Sweden

Cited by 29 publications

References 23 publications

Secondary health conditions and their impact on the wellbeing of people with spinal cord injury, South Africa: Patients perspective.

Secondary health conditions and their impact on the wellbeing of people with spinal cord injury, South Africa: Patients perspective.

Humeral elevation workspace during daily life of adults with spinal cord injury who use a manual wheelchair compared to age and sex matched able-bodied controls

Shoulder magnetic resonance imaging findings in manual wheelchair users with spinal cord injury

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