Activities of daily living and social activities in people with multiple sclerosis in Stockholm County

Einarsson, Ulrika; Gottberg, Kristina; Fredrikson, Sten; Koch, Lena von; Holmqvist, Lotta Widén

doi:10.1191/0269215506cr953oa

Cited by 91 publications

(99 citation statements)

References 110 publications

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“…As far as the authors are aware, no other study has used a consensus building methodology to ascertain the prioritised exercise and physical activity practices and the reasons why pwMS engage in exercise and physical activity. Similarities in the socio-demographic profile of respondents in this study and other published MS groups relating to, female to male ratio [12][13][14]26], age range [13,14,[26][27][28], type of MS classification albeit slight differences in proportions [13,14,28,29], mean Barthel score [30] and mean quality of life score [30], suggest that these results might be comparable to other typical MS community dwelling populations.…”

Section: Discussionsupporting

confidence: 60%

“…Exercise on the other hand is defined as "a subset of physical activity that is planned, structured and repetitive" [10, p.126] and aims to either improve or maintain physical fitness. Studies demonstrate that pwMS participate in a wide range of physical activity, however, research to date has rarely considered the potential utility of other physical activities which are unplanned and which could be both motivating and easy to integrate into everyday life for pwMS [11][12][13][14]. Likewise, none of the studies addressed why these activities were preferred by pwMS.…”

Section: Introductionmentioning

confidence: 94%

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Physical activity and exercise priorities in community dwelling people with multiple sclerosis: a Delphi study

Stennett

Souza

Norris

2017

Disability and Rehabilitation

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Aims: Exercise and physical activity have been found to be beneficial in managing disabilities caused by multiple sclerosis. Despite the known benefits, many people with multiple sclerosis are inactive. This study aimed to identify the prioritised exercise and physical activity practices of people with multiple sclerosis living in the community and the reasons why they are engaged in these activities. Methods: A four Round Delphi questionnaire scoped and determined consensus of priorities for the top 10 exercise and physical activities and the reasons why people with multiple sclerosis (n ¼ 101) are engaged in these activities. Data were analysed using content analysis, descriptive statistics, and nonparametric tests. Results: The top 10 exercise and physical activity practices and the top 10 reasons why people with multiple sclerosis (n ¼ 70) engaged in these activities were identified and prioritised. Consensus was achieved for the exercise and physical activities (W ¼ 0.744, p < .0001) and for the reasons they engaged in exercise and physical activity (W ¼ 0.723, p < .0001). Conclusion:The exercise and physical activity practices and the reasons people with multiple sclerosis engaged in exercise and physical activity were diverse. These self-selected activities and reasons highlighted that people with multiple sclerosis might conceptualise exercise and physical activity in ways that may not be fully appreciated or understood by health professionals. Considerations of the views of people with multiple sclerosis may be essential if the goal of increasing physical activity in this population is to be achieved. ä IMPLICATIONS FOR REHABILITATIONHealth professionals should work collaboratively with people with multiple sclerosis to understand how they prioritise activities, the underlying reasons for their prioritisations and embed these into rehabilitation programmes. Health professionals should utilise activities prioritised by people with multiple sclerosis in the community as a way to support, promote, and sustain exercise and physical activity in this population. Rehabilitation interventions should include both the activities people with multiple sclerosis prioritise and the reasons why they engage in exercise and physical activity as another option for increasing physical activity levels and reducing sedentary behaviours. ARTICLE HISTORY

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Section: Discussionsupporting

confidence: 60%

Section: Introductionmentioning

confidence: 94%

Physical activity and exercise priorities in community dwelling people with multiple sclerosis: a Delphi study

Stennett

Souza

Norris

2017

Disability and Rehabilitation

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“…Uma das escalas mais utilizadas para avaliar o desempenho nas atividades da vida diária é a Escala de Independência em Atividades da Vida Diária (EIAVD), ou Escala de Katz 4,5,6,7,8,9,10,11 . Ela foi desenvolvida para a avaliação dos resultados de tratamentos em idosos e predizer o prognóstico nos doentes crônicos.…”

Section: Adaptação Transcultural Da Escala De Independência Em Atividunclassified

Adaptação transcultural da Escala de Independência em Atividades da Vida Diária (Escala de Katz)

et al. 2008

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This study involved the development and performance assessment of a cultural adaptation of the Katz scale of independence in activities of daily living, translated into Portuguese in BrazilA capacidade funcional é medida por meio de instrumentos padronizados que avaliam o desempenho do idoso nas atividades da vida diária e nas atividades instrumentais da vida diá-ria. Uma das escalas mais utilizadas para avaliar o desempenho nas atividades da vida diária é a Escala de Independência em Atividades da Vida Diária (EIAVD), ou Escala de Katz 4,5,6,7,8,9,10,11 . Ela foi desenvolvida para a avaliação dos resultados de tratamentos em idosos e predizer o prognóstico nos doentes crônicos. A EIAVD consta de seis itens que medem o desempenho do indivíduo nas atividades de autocuidado, os quais obedecem a uma hierarquia de complexidade, da seguinte forma: alimentação, controle de esfíncteres, transferência, higiene pessoal, capacidade para se vestir e tomar banho 4 . Essa seqüência é semelhante à observada durante o desenvolvimento infantil, em que primeiramente a criança aprende a levar a colher à boca para, somente mais tarde, tornar-se capaz de tomar banho de forma independente. Tais considerações levaram à suposição de que a escala ARTIGO ARTICLE

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“…Transportation outside the home also figured prominently among problematic areas in that study. 5 In an Italian mail survey, home assistance and home modifications were strongly associated with disease severity. 13 Khan et al 11 reported irregular access to support and rehabilita- …”

Section: Discussionmentioning

confidence: 99%

“…Transportation outside the home also figured prominently among areas of concern. 5 An opportunity to examine health status, care needs, and unmet needs in a community sample with MS arises from a Canadian post-census survey called the Participation and Activity Limitation Survey (PALS). 6 This survey is based on a probability sample of respondents reporting health-related impairments during a national census conducted in 2006.…”

mentioning

confidence: 99%

Perceived Met and Unmet Health-Care Needs in a Community Population with Multiple Sclerosis

Patten¹,

Williams²,

Lavorato³

et al. 2012

International Journal of MS Care

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Community-based studies are required to accurately describe the supportive services needed by people with multiple sclerosis (MS). Characteristics that influence (or result from) care-seeking may introduce bias into other types of studies. The Participation and Activity Limitation Survey (PALS) was a postcensus survey conducted by Statistics Canada in association with a 2006 national census. The PALS collected data from a sample of 22,513 respondents having health-related impairments according to their census forms. The survey collected self-reported diagnostic data and obtained ratings for items assessing impairment as well as perceived met and unmet needs for care and support. It identified 245 individuals with MS, leading to an estimated (weighted) population prevalence of 0.2% (200 per 100,000). As expected, those with MS reported more-severe health problems than did those with other types of disability, particularly in the areas of mobility, dexterity, and cognition; they were also more likely to report having multiple caregivers. People with MS also reported more unmet healthcare needs than did those with other forms of disability, particularly with respect to meal preparation, housework, shopping, and chores. Despite their more negative health status and greater reliance on caregivers, people with MS reported participation in society comparable to that of people without MS. Thus, people with MS report greater needs than do people with other forms of health-related disability and utilize supportive services more often. However, they also report higher levels of unmet needs. The substantial needs of people with MS are only partially addressed by existing services. Int J MS Care. 2012;14:2-8.

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Activities of daily living and social activities in people with multiple sclerosis in Stockholm County

Cited by 91 publications

References 110 publications

Physical activity and exercise priorities in community dwelling people with multiple sclerosis: a Delphi study

Physical activity and exercise priorities in community dwelling people with multiple sclerosis: a Delphi study

Adaptação transcultural da Escala de Independência em Atividades da Vida Diária (Escala de Katz)

Perceived Met and Unmet Health-Care Needs in a Community Population with Multiple Sclerosis

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