Adolescent/Young Adult Perspectives of a Therapeutic Music Video Intervention to Improve Resilience During Hematopoietic Stem Cell Transplant for Cancer*

Abstract

This empirical phenomenology study reports adolescents/young adults (AYA) experiences of the therapeutic music video (TMV) intervention arm of a randomized controlled clinical trial (Children’s Oncology Group; COG-ANUR0631; R01 NR008583) during hospitalization for a hematopoietic stem cell transplant. A purposive subsample of 14 AYA were interviewed using a broad open-ended data-generating question about their TMV intervention experiences. At the end of each interview, we also asked AYA for suggestions on how to improve the TMV. Analysis of the narrative data resulted in four theme categories: (a) An Interwoven Experience of the Transplant and TMV Intervention; (b) TMV as a Guided Opportunity for Reflection, Self-Expression, and Meaning-Making; (c) Telling My Story: The Work of Deriving Meaning; and (d) A Way to Overcome the Bad Side of Cancer. AYA suggestions for improving the TMV are also summarized. Findings provide insight into ways the TMV supports AYA efforts to overcome distress and challenges by providing opportunities to reflect on what is meaningful, connect with others, and explore/identify personal strengths. Findings also inform our understanding about how the TMV may have functioned (i.e., mechanisms of action) to bring about significant change in AYA self-reported outcomes (i.e., positive coping, social support, and family function) for this trial.

Identification of Evidence for Key Positive Psychological Constructs in Pediatric and Adolescent/Young Adult Patients with Cancer: A Scoping Review

“… 103 Moreover, when health care providers made time for patients and treated them as individuals, gratitude increased. 110 , 150 Other factors that were associated with increased gratitude were religious faith, 151 the possibility of having a future family, 71 and understanding the finiteness of life. 91 Interestingly, patients said that their gratitude as a child improved health care follow-up in adulthood through increased personal responsibility.…”

Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol

“…This study is novel to remotely-deliver a songwriting intervention. Although previous research has utilized face-to-face music-based intervention delivery methods [ [56] , [57] , [58] , [59] , [60] , [61] , [62] , [63] , [64] ], few studies have used remotely-delivered methods which are critical for home-based interventions needed for pediatric palliative care [ 18 , 65 ]. Our remotely-delivered songwriting intervention will expand our potential impact and increase access for cognitively-impaired pediatric palliative care populations.…”

Synthèse des stratégies d’autogestion employées par de jeunes adultes ayant reçu une greffe de cellules hématopoïétiques : revue narrative

“…Nos résultats soulignent aussi que les infirmières peuvent soutenir les jeunes adultes ayant reçu une GCH en répondant à leurs préoccupations quant à la sexualité (Cooke et al, 2011), en offrant du soutien social (Farsi et al, 2010;Farsi et al, 2012;Haase et al, 2020) et en les impliquant dans la réalisation de leurs soins Robb et al, 2014). Ceci démontre l'importance des infirmières quant au soutien et à l'apprentissage des SA auprès de cette clientèle.…”

“…Dès leur hospitalisation, les jeunes adultes recevant une GCH doivent procéder à l'autogestion des symptômes, maintenir une certaine autonomie et gérer leurs émotions (Haase et al, 2020). De plus, des complications peuvent émerger tardivement chez les jeunes adultes greffés ce qui nécessite des changements importants dans leur vie (Brauer et al, 2018).…”

“…Diagramme de flux spiritualité est une SA importante pour certains jeunes adultes ayant reçu une GCH. En effet, cinq études (Cooke et al, 2011;Farsi, 2015;Farsi et al, 2010;Farsi et al, 2012;Haase et al, 2020) ont souligné cette stratégie. Malgré la variabilité des cultures et des croyances spirituelles énoncées dans ces études, il est rapporté que la spiritualité peut occuper une place fondamentale dans l'accompagnement de jeunes adultes ayant reçu une GCH.…”