Adult persons with intellectual disabilities on the island of Ireland

McConkey, Roy; Mulvany, Fiona; Barron, Steve

doi:10.1111/j.1365-2788.2005.00777.x

Cited by 55 publications

(47 citation statements)

References 12 publications

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“…For the island as a whole, 69% of all people known to services had a ‘severe’ intellectual disability’ with an overall prevalence rate of 4.14 per 1000 (McConkey et al. 2006).…”

Section: Resultsmentioning

confidence: 99%

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Residential Provision for Adult Persons with Intellectual Disabilities in Ireland

Mulvany

Barron

McConkey

2006

Research Intellect Disabil

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Background The type of accommodation provided for persons with an intellectual disability is a major indicator of the social policy for this client group. This is likely to vary within and across countries; hence the importance of undertaking national and international comparisons. Estimations of future need are also required to assist service planning. Method A database of all persons in receipt of intellectual disability services has been operating in the Republic of Ireland since 1995. In Northern Ireland, regional databases were used to provide similar information. Results Around 10 000 people live in some form of residential provision: 56% in special settings, 35% in ordinary housing and 9% in hospitals. Most residents were classed as having 'severe' disabilities and were aged over 35 years. There were marked differences in the amount and type of provision provided in the two parts of the island. This was also mirrored in differences across health service areas within each country. The demand for future places was greater in Northern Ireland.Conclusions A planning target of 3.5 places per 1000 adult population is proposed although substantial investments in services is required to achieve this. Longitudinal surveys are an important way of monitoring the impact of new policy initiatives.

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“…For the island as a whole, 69% of all people known to services had a ‘severe’ intellectual disability’ with an overall prevalence rate of 4.14 per 1000 (McConkey et al. 2006).…”

Section: Resultsmentioning

confidence: 99%

“…However, the proportion was markedly higher in the Republic of Ireland (45.5%) than in Northern Ireland (28.9%) and this was true for all age levels. The remainder of people lived with family carers (50%) or in their own accommodation (6%) (McConkey et al. 2006).…”

Section: Methodsmentioning

confidence: 99%

Residential Provision for Adult Persons with Intellectual Disabilities in Ireland

Mulvany

Barron

McConkey

2006

Research Intellect Disabil

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“…2009). A number of policy and research reports (Department of Health 2001, 2006a, 2006b; NHS Cancer Screening Programme, 2006) directed at the health needs of people with intellectual disability have highlighted a recurring theme of the need for accessible information and effective communication (McConkey et al. 2006, Gilbert et al.…”

Section: Discussionmentioning

confidence: 99%

Breast cancer knowledge among women with intellectual disabilities and their experiences of receiving breast mammography

Truesdale‐Kennedy

Taggart

McIlfatrick

2011

Journal of Advanced Nursing

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“…Areas with a higher prevalence deserve greater resources in order to meet the needs in those localities. Variations in prevalence rates within countries are well documented and this is one of the shortcomings in using locality registers to estimate national data (McConkey et al, 2006). Second, a national database can go beyond a simple head count and describe the characteristics of the population in some detail, such as any additional disabilities, present living arrangements, levels of functioning and services received.…”

Section: Why Bother Counting People?mentioning

confidence: 99%

Making numbers count: national datasets on intellectual disability

McConkey¹,

Craig

2015

Tizard Learning Disability Review

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Purpose -The purpose of this paper is to provide a commentary on "Adults with learning disabilities known to local authorities in Scotland: a national dataset" by Claire Stuart and colleagues. Design/methodology/approach -Drawing on experiences with the National Intellectual Disability Database in Ireland, the authors identify the key elements to be addressed such as the uses to which information from the database will be put; the definition of intellectual disability for inclusion of individuals; defining the information to be gathered; the systems for gathering information; checking and auditing the information that is collected, and the types of reports emerging from the analyses. Findings -A national database of persons with an intellectual disability is at least desirable -if not essential -to the delivery of equitable and effective service supports. The advent of computerised data management tools makes this a realistic option in most European countries although debates continue around the protection of personal data and the costs involved in establishing and maintaining dedicated databases. Originality/value -National data sets on intellectual disability can make a significant contribution to equitable and effective service planning. However, major challenges need to be overcome so that the information collected is reliable and valid.

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Adult persons with intellectual disabilities on the island of Ireland

Cited by 55 publications

References 12 publications

Residential Provision for Adult Persons with Intellectual Disabilities in Ireland

Residential Provision for Adult Persons with Intellectual Disabilities in Ireland

Breast cancer knowledge among women with intellectual disabilities and their experiences of receiving breast mammography

Making numbers count: national datasets on intellectual disability

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