Breast cancer knowledge among women with intellectual disabilities and their experiences of receiving breast mammography

Truesdale‐Kennedy, Maria; Taggart, Laurence; McIlfatrick, Sonja

doi:10.1111/j.1365-2648.2010.05595.x

Cited by 61 publications

(79 citation statements)

References 38 publications

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“…There is increasing and consistent evidence that people with learning disabilities are less likely to access a range of cancer screening services, including: ' breast self-examinations and mammography (Davies and Duff, 2001;Department of Health, 2011;Djuretic et al, 1999;Glover et al, 2012;Osborn et al, 2012;Piachaud and Rohde, 1998;Truesdale-Kennedy et al, 2011;Willis et al, 2008); and ' bowel and prostate cancer screening (Department of Health, 2011;Osborn et al, 2012).…”

Section: Introductionmentioning

confidence: 97%

Access to cancer screening by people with learning disabilities in England 2012/13: information from the Joint Health and Social Care Assessment Framework

Glover

Christie

Hatton

2014

Tizard Learning Disability Review

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Purpose – The purpose of this paper is to present information from the Joint Health and Social Care Self-Assessment Framework (JHSCSAF) on reported rates of cervical cancer, breast cancer and bowel cancer screening for eligible people with learning disabilities in England in 2012/2013 compared to screening rates for the general population. Design/methodology/approach – Between 94 and 101 Learning Disability Partnership Boards, as part of the JHSCSAF, provided information to allow the calculation of rates of cervical cancer, breast cancer and bowel cancer screening in their locality, for eligible people with learning disabilities and for the population as a whole. Findings – At a national level, reported cancer screening coverage for eligible people with learning disabilities was substantially lower than for the population as a whole (cervical cancer screening 27.6 per cent of people with learning disabilities vs 70 per cent of total population; breast cancer screening 36.8 per cent of people with learning disabilities vs 57.8 per cent of total population; bowel cancer screening 28.1 per cent of people with learning disabilities vs 40.5 per cent of the general population). There were considerable geographical variations in reported coverage for all three screening programmes. Originality/value – Consistent with previous research, localities in England report cancer screening rates for eligible people with learning disabilities considerably below those of the general population. There is an urgent need to address data availability and quality issues, as well as reasonable adjustments to cancer screening programmes to ensure uniformly high rates of cancer screening for people with learning disabilities across England.

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Section: Introductionmentioning

confidence: 97%

Access to cancer screening by people with learning disabilities in England 2012/13: information from the Joint Health and Social Care Assessment Framework

Glover

Christie

Hatton

2014

Tizard Learning Disability Review

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“…They concluded that women with intellectual disabilities failed to access screening as information was supplied in an inaccessible format. 24 This was supported in a further study showing that breast cancer specialists felt there was no specific tool available to support them to make information accessible for women with intellectual disabilities accessing their services. 25 Additional factors affecting access to screening include lack of emotional support to overcome fear, anxieties and embarrassment relating to screening.…”

Section: Deficiencies / Inequalities In Access To Healthcarementioning

confidence: 58%

Treatment for cancer and depression in a female with intellectual disability

Kaushal¹,

Naomi²,

Maddock³

2016

Prog Neurol Psychiatry

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Identifying depression in those with an intellectual disability can be difficult as symptoms may differ from those usually observed in the general population. The anti‐oestrogen medication tamoxifen is widely used for the treatment of breast cancer and clinically relevant depression may be a common side‐effect. Here, the authors discuss a case that highlights the importance for mental health professionals managing individuals with an intellectual disability and cancer to consider all possible causes of a change in mood or behaviour, so that the diagnosis and treatment of depression in this vulnerable group is not neglected.

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“…One such disparity is low rates of age-appropriate screenings [4–6], particularly mammography for women [7]. Women with ID are diagnosed with breast cancer at similar rates to women in the general population [8, 9] yet have low rates of mammography, under 50% in many studies [10, 11].…”

Section: Introductionmentioning

confidence: 99%

Measuring Staff Empowerment Regarding Health Care for Clients with Intellectual Disabilities

Wilkinson

Greenwood

Wang

et al. 2014

International Journal of Family Medicine

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Background. Women with intellectual disabilities (ID) contract breast cancer at the same rate as the general population but have higher breast cancer mortality and lower rates of breast cancer screening. Many women with ID live in group homes or supported residences where they are cared for by direct support workers. While direct support workers are thought to influence client health, this effect is underresearched, and we lack tools for measuring staff empowerment and perceptions regarding client health. Methods. We developed and validated an instrument, the staff empowerment tool (SET), to measure staff empowerment as related to supporting clients in preventive health. Results. The SET was found to be a reliable instrument for measuring staff activation and empowerment in helping clients access mammography screening. Discussion. Quantifying staff empowerment and perspectives is important in studying and reducing disparities among adults with ID, a vulnerable population. Further research to determine the impact of staff empowerment levels on their clients' health and health care access is suggested. The SET is a valuable tool for measuring the construct of staff empowerment, evaluating interventions, and collecting data regarding variation in staff empowerment.

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Breast cancer knowledge among women with intellectual disabilities and their experiences of receiving breast mammography

Cited by 61 publications

References 38 publications

Access to cancer screening by people with learning disabilities in England 2012/13: information from the Joint Health and Social Care Assessment Framework

Access to cancer screening by people with learning disabilities in England 2012/13: information from the Joint Health and Social Care Assessment Framework

Treatment for cancer and depression in a female with intellectual disability

Measuring Staff Empowerment Regarding Health Care for Clients with Intellectual Disabilities

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