‘Adulting’ with IBD: Efficacy of a Novel Virtual Transition Workshop for Pediatric Inflammatory Bowel Disease

Waschmann, Malika; Lin, Henry C.; Stellway, Jacklyn

doi:10.1016/j.pedn.2021.07.002

Cited by 6 publications

(6 citation statements)

References 35 publications

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“…Transition care models in IBD demand conceptualization, foresight, and preparation. Their realization has been associated with less inflammatory activity, fewer disease- and treatment-related complications, better quality of life (QoL) and treatment plan compliance, and lower hospital admission rates and healthcare costs [ 14 ]. To the best of our knowledge, this study is the first to explore what healthcare providers believe about the transition process in Greece and to identify their perceptions of the requirements for and barriers to successful transitional care.…”

Section: Discussionmentioning

confidence: 99%

“…Waschmann et al evaluated a novel virtual transition protocol for children with IBD and their parents to improve transition readiness skills, self-efficacy, and satisfaction. After completing the virtual workshop, adolescents with IBD demonstrated a significant increase in transition readiness skills [ 14 ]. Akobeng et al compared telephone consultations vs. face-to-face consultations for children with IBD in a randomized controlled trial, showing no inferiority between the 2 methods regarding improvements in QOL scores (113 vs. 106, P=0.19) [ 24 ].…”

Section: Discussionmentioning

confidence: 99%

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Barriers to and requirements for a successful transition in inflammatory bowel disease from pediatric to adult care in Greece

Γιουλεμέ¹

2023

aog

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Background The incidence of pediatric-onset inflammatory bowel disease (IBD) is rising, while the relapsing and often severe nature of IBD, and its impact on emotional and pubertal development and social maturation underline the need for a successful transition from pediatric to adult care. Methods A web-based survey was distributed via the Hellenic Group for the Study of IBD, the Hellenic Society of Gastroenterology Department of North Greece, and the Hellenic Society of Pediatric Gastroenterology, Hepatology, and Nutrition. Results The questionnaire was answered by 98 individuals (78 adult and 20 pediatric gastroenterologists, out of 357 and 30, respectively). The response rate was 25.3%. A higher response rate was found among pediatric (66.6%) vs. adult gastroenterologists 21.8% (P<0.001). Pediatric gastroenterologists believed that the appropriate age for transition was either 16-17 or 17-18 years, whereas 59% of the adult gastroenterologists chose the age group of 16-17 years. Both adult and pediatric gastroenterologists stated that the most significant initiators for a successful transition process were cognitive maturity and patients’ ability to manage their disease independently. The lack of communication and collaboration between pediatric and adult gastroenterologists was the main barrier to the transition process, as identified by adult gastroenterologists (27.7%). In contrast, 43.5% of pediatric gastroenterologists suggested that differences in the follow up of patients with IBD between pediatric and adult clinics were the main restrictions. Conclusion These results highlight the need for a transitional education program for pediatric IBD patients, and the importance of improving collaboration among adult and pediatric gastroenterologists.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Barriers to and requirements for a successful transition in inflammatory bowel disease from pediatric to adult care in Greece

Γιουλεμέ¹

2023

aog

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“…The AASPIRE work highlights the utility of basing health-focused interventions for this population on the input from neurodivergent emerging adults themselves. Taken together with research that emphasizes the utility and acceptability of virtual approaches led by interdisciplinary health teams [27], there is a necessity for needs assessment research with neurodivergent emerging adults to inform virtual health-based programming led by diverse healthcare professionals.…”

Section: Opportunities To Promote the Health Of Neurodivergent Emergi...mentioning

confidence: 99%

Developing “Adulting for Health”: Investigating the Health Needs of Neurodivergent Emerging Adults

Hotez¹,

Rava²,

Shea³

et al. 2023

Cureus

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Introduction: Neurodivergent emerging adults -defined as individuals between the ages of 18 and 30 with intellectual and/or developmental disabilities (e.g., attention-deficit hyperactivity disorder (ADHD), autism, cerebral palsy, learning disabilities, seizures, developmental delays, with or without intellectual impairment) and physical and/or sensory disabilities (e.g., blindness or hearing impairment) -experience poor mental and physical health outcomes. Existing interventions are insufficient because they are not based on the self-reported and developmental needs of this population.Methods: The current study is an exploratory pilot study that features a multidimensional health-based needs assessment of self-identified neurodivergent emerging adults with ADHD, learning disabilities, autism, and other conditions (n = 26; mean (M) age = 22.8; standard deviation (SD) = 3.4). This research used validated measures. The assessment -administered via Qualtrics to the participants in two sites -included the Mental Health Continuum-Short Form, Kessler-6 Psychological Distress Scale, Project EAT (Eating and Activity over Time)-IV (with the intuitive eating, weight-related control, emotional eating, and physical activity subscales), and an original health-focused needs assessment developed by interdisciplinary healthcare professionals and neurodivergent individuals.Results: The sample reported low positive mental health, with only 3% reportedly "flourishing." The sample also reported high psychological distress according to clinical and psychometric cut-off scores; varied intuitive eating and weight-control behaviors and attitudes; and distinct needs related to integrating the principles of health promotion into daily life, navigating the healthcare system, and learning from healthcare professionals. Based on these findings, we present an initial conceptualization of "Adulting for Health," a potential virtual education program to promote health-related knowledge and capacities for this population.Conclusions: The results from this exploratory pilot study can be incorporated into existing programs and spur efforts to develop and test new interventions that can ameliorate health disparities for neurodivergent emerging adults.

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“…9,12,17,18 Implementation of specific transition guidelines and clinics has consistently been shown to improve outcomes for adolescents with IBD. [19][20][21] Structured guidelines may help facilitate the transition process for clinical teams caring for adolescents with IBD. Internationally, a small number of country specific recommendations have been developed by clinical experts based on experience and empirical evidence.…”

Section: Introductionmentioning

confidence: 99%

“…Implementation of specific transition guidelines and clinics has consistently been shown to improve outcomes for adolescents with IBD 19–21 . Structured guidelines may help facilitate the transition process for clinical teams caring for adolescents with IBD.…”

Section: Introductionmentioning

confidence: 99%

Transitional care of adolescents with inflammatory bowel disease to adult services varies widely across Australia and New Zealand

Vernon‐Roberts,

Chan,

Christensen

et al. 2024

JGH Open

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Background and AimChildren and adolescents account for approximately 14% of inflammatory bowel disease (IBD) diagnoses. At an appropriate age and level of development adolescents with IBD have their care transferred from the pediatric to adult clinical team during a process termed “transition”. The study aim was to survey pediatric gastroenterologists throughout Australasia to identify commonality in the transition process to contribute to standardized guideline development.MethodsA descriptive survey captured key variables: transition clinic format, process and infrastructure, transition assessments, and guidelines. The survey was distributed electronically to 59 Pediatric Gastroenterologists throughout Australasia in January 2023.ResultsSeventeen (29%) clinicians completed the survey: Australia 13 (76%). New Zealand 4 (24%). Thirteen (76%) respondents had access to a dedicated IBD transition clinic. Adolescents attended transition clinics 1–7 times, and the main processes transferred were: prescription provision, biologic appointments, and adult team contacts. Transition was first discussed age 13–15 years (53%), or 16–18 years (47%), with the main discussion topics including: continuing adherence (88%), smoking (59%), alcohol use (59%), recreational drug use (59%). Transition readiness assessments were done infrequently (24%). The minority (24%) used formal guidelines to inform the transition process, but 15 (88%) considered the development of a standardized Australasian guideline as beneficial/extremely beneficial.ConclusionsThis survey highlighted that transition care for adolescents with IBD is variable across Australasia. Australasian guideline development may optimize the transition process for adolescents with IBD and improve their longitudinal outcomes.

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‘Adulting’ with IBD: Efficacy of a Novel Virtual Transition Workshop for Pediatric Inflammatory Bowel Disease

Cited by 6 publications

References 35 publications

Barriers to and requirements for a successful transition in inflammatory bowel disease from pediatric to adult care in Greece

Barriers to and requirements for a successful transition in inflammatory bowel disease from pediatric to adult care in Greece

Developing “Adulting for Health”: Investigating the Health Needs of Neurodivergent Emerging Adults

Transitional care of adolescents with inflammatory bowel disease to adult services varies widely across Australia and New Zealand

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