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Objective: This study aims to assess stress, quality of life, and mental health risk experienced by parents of children with short bowel syndrome (SBS) undergoing intestinal rehabilitation compared to a group of parents of children with common gastrointestinal complaints. Method: Eleven parents of racially/ethnically diverse children with SBS (0-5 years old) were recruited from a multidisciplinary intestinal rehabilitation program in the southeastern United States. Participants completed sociodemographic, mental health risk (PHQ-SADS), parental stress (PSI-4 Short Form), and quality of life (QoL; SF-36) questionnaires. Semistructured interviews of SBS parents were conducted, transcribed, coded, and systematically analyzed using principals of thematic analysis. Results: Significant differences with large effect sizes were found on measures of anxiety, parenting stress, and emotional well-being, indicating greater risk for SBS parents. Parent experiences in three themes were identified: navigating treatment challenges (e.g., high risk of complications), parenting role stress (e.g., respite and self-care), and support systems (e.g., peer-based support). Parents reported a lack of awareness and education surrounding intestinal rehabilitation and SBS, resulting in difficulty accessing quality medical treatment, services, and support. Conclusions: Semistructured interviews provided rich information to better understand SBS parent challenges and generated hypotheses about specific recommendations aimed at improving parent quality of life, health outcomes, and satisfaction with care, as well as the need for integration of mental health screening and evidence-based interventions that address the specific needs of parents. Implications for Impact StatementThe present study finds significant risk of anxiety, parenting stress, and emotional problems in parents of children with short bowel syndrome undergoing intestinal rehabilitation. Interviews with parents highlight the challenges involved in navigating treatment, managing parenting stress, and helpful support systems. Pediatric psychologists are well positioned to help improve the quality of care and access to needed supports for parents of children with these complex medical needs.

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Objective: Inflammatory bowel disease (IBD) is characterized by inflammation in the gastrointestinal tract with painful and distressing symptoms periods of exacerbations and remissions. Youth with IBD are at increased risk of experiencing challenges across psychosocial functioning. Mental health concerns (i.e., anxiety, depression) are commonly assessed in youth with IBD, but measures used to assess psychopathology may not fully capture emotional distress unique to living with IBD. There remains no well-validated measure of IBD-specific distress in pediatrics. Method: The Crohn's and Colitis Distress Scale (CCDS), a newly developed measure of pediatric IBDdistress, was completed by 120 youth with IBD during routine care. The psychometric properties of the measure were examined. Results: The Cronbach's alpha for the full scale was .94 and subscale internal consistency ranged from .66 to .90. Longer time since diagnosis and longer time since last flare was associated with lower IBDdistress. Further, greater IBD-distress was reported in girls with a diagnosis of ulcerative colitis, currently symptomatic, or currently flaring respective to their counterparts. Though moderately to largely correlated (.30 , r , .73), IBD-distress was found to be a distinct construct from global anxiety and depression. Conclusions: Data support the use of an instrument specific to IBD-distress, such as the CCDS, to allow for more accurate detection of risk for emotional distress in IBD. Further assessment of the reliability and validity of the measure within larger, more diverse samples is warranted. Such investigation should include assessment of the associations between IBD-distress and treatment engagement and health outcomes. Implications for Impact StatementMental health concerns (e.g., anxiety, depression) are commonly assessed in youth with Inflammatory Bowel Disease (IBD), but the measures used do not fully Jacklyn E. Stellway https://orcid.