Agreement in quality of life assessment between adolescents with intellectual disability and their parents

Agreements and disagreements between children and their parents in health-related assessments

“…In addition, one analysis by Yoo et al [22] with overall moderate agreement showed strong agreement for children aged 7-12 years but less for children aged 13-18 years. Moderate overall agreement was demonstrated in 23 analyses [1,6,15,[18][19][20][21][22][23][24][25][26][27][28][29][30][31][32][33][34][35] and poor agreement in 20 analyses. [3,17,19,21,[36][37][38][39][40][41][42][43][44][45][46][47][48][49][50][51] There were no differences between the levels of agreement with respect to children's health issues, as shown in Table 2.…”

“…Nevertheless, good agreement between children and their parents may possibly reflect the ''observable'' nature of the items of the measures being used, even when the focus is on the same construct. For example, a comparison of two of the measures focusing on (HR)QoL in this review, the PedsQL [19][20][21]23,25,28,37,38,51] and the KIDSCREEN, [3,18,50] revealed that a majority of the items in the PedsQL are framed in a rather objective manner and thus concern what children can do, rather than how they feel. In contrast, the items in the KIDSCREEN are more subjective in nature.…”

“…[1,3,6,17,18,20,21,23,25-28,30,33,35,36,38,39,41,42,44-46, 48,51] The domains identified were psychosocial functioning, [1,6,[26][27][28][44][45][46]48] pain, [6,36,42] school work, [28,42,44] physical functioning and performance competence [6,17,39,42] such as turning in bed, climbing the stairs and doing housework [42] and number of symptoms. [33] In addition, parents typically reported lower overall (HR)QoL of their children [3,18,23,25,28,30,38,50,51] than the children themselves did.…”

“…[3,15,19,20,22,25,26,29,31,32,37,39,40,45] Four of these analyses concerned young people with PSI and 10 concerned children with PPI. Domains in which children with PPI reported more difficulties were emotional functioning, [15,19,22,29,32,37,39] pain, [3,29,31,37] motor functioning, [15] physical complaints [15] and autonomy.…”

“…Domains in which children with PPI reported more difficulties were emotional functioning, [15,19,22,29,32,37,39] pain, [3,29,31,37] motor functioning, [15] physical complaints [15] and autonomy. [15,40] Domains in which young people with PSI were somewhat more likely to report problems were use of alcohol and drugs, [26] social functioning [25] and legal consequences of bad behaviour. [26,45] Factors that influence agreement in ratings Just about half of the studies (18/39) searched for factors that were associated with discrepancies in parent-child agreement, such as children's age, gender or functional limitations.…”