Alzheimer's disease research in Ibero America

Snyder, Heather M.; Cárdenas-Aguayo, María del Carmen; Alonso, Alejandra; Bain, Lisa J.; Iqbal, Khalid; Carrillo, María C.

doi:10.1016/j.jalz.2016.04.007

Cited by 8 publications

(5 citation statements)

References 46 publications

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“…This first AAIC satellite symposium (AAIC SS) underscored the value of ensuring the incorporation of previously neglected LMIC cohorts in international studies, in part by highlighting unique characteristics of studies across Latin American populations, including those assessing prevalence and incidence of both risk factors and dementia (23). The results of epidemiologic studies and national surveys presented at the meeting (e.g., SABE) revealed unique challenges facing older Mexicans and other Latinos with dementia, such as low literacy and inadequate health care resources, and also pointed to potential solutions to these problems, such as the use of videos in public places to increase awareness of cognitive impairment among the elderly.…”

Section: Satellite Symposiamentioning

confidence: 99%

Expanding Representation of Low and Middle Income Countries in Global Dementia Research: Commentary From the Alzheimer's Association

et al. 2021

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Alzheimer's disease (AD) and all other dementia represent a global challenge, with an estimated 50 million individuals in the world living with dementia today. In low and middle income countries (LMICs), the burden of disease often is greater, and some of these countries are projected to have some of the largest increases in dementia prevalence during the next few decades. As the world's largest voluntary health organization dedicated to AD and all other dementia, the Alzheimer's Association is committed to its vision of a world without dementia and recognizes the needs, challenges, and opportunities for dementia research in all parts of the world, and especially in LMICs. Currently, the Association is devoting more than $215 million in funding to nearly 600 best-of-field projects in 31 countries, including a significant number of projects that advance and support LMIC-specific research. The innovative work in LMICs is focused on addressing unmet needs or challenges associated with the many unique cultural, demographic, and economic characteristics of these countries. The Association also is expanding leading global forums such as the Alzheimer's Association International Conference (AAIC). In an effort to create new learning and participation opportunities, the Association also has been partnering with other international organizations and collaborating with local leadership to provide AAIC Satellite Symposia (AAIC SS) in LMIC regions around the world. In 2021 and beyond, the Association is committed to continuing these LMIC-focused initiatives, identifying gaps in LMIC research and resources, and enhancing collaboration and communication among researchers in these regions.

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Section: Satellite Symposiamentioning

confidence: 99%

Expanding Representation of Low and Middle Income Countries in Global Dementia Research: Commentary From the Alzheimer's Association

et al. 2021

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“…Studies of Puerto Ricans, living on the island of Puerto Rico, indicated that the mortality rate associated with AD is higher than their counterparts living in mainland US, but the age of onset is later and they have higher formal education than the cohorts from Philadelphia and North Manhattan [15, 20–23]. In contrast, studies in Mexico indicate that the prevalence of dementia among individuals aged 60 or older is 8% and there are over 800,000 diagnosed cases of AD [24–28]. Despite these differences, it is vastly accepted that, as a group, the Latino community displays an earlier age of onset of AD and that ethnicity is significantly associated with this younger age of onset in comparison to White Non-Hispanics [6, 7].…”

Section: Introductionmentioning

confidence: 99%

Alzheimer’s Disease in the Latino Community: Intersection of Genetics and Social Determinants of Health

Vega

Cabrera

Wygant

et al. 2017

JAD

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Alzheimer’s disease (AD) is the most common type of dementia among individuals 65 or older. There are more than 5 million diagnosed cases in the US alone and this number is expected to triple by 2050. Therefore, AD has reached epidemic proportions with significant socioeconomic implications. While aging in general is the greatest risk factor for AD, several additional demographic factors that have contributed to the rise in AD in the US are under study. One such factor is associated with the relatively fast growth of the Latino population. Several reports indicate that AD is more prevalent among blacks and Latinos. However, the reason for AD disparity among different ethnic groups is still poorly understood and highly controversial. The Latino population is composed of different groups based on nationality, namely South and Central America, Mexico, and Caribbean Hispanics. This diversity among the Latino population represents an additional challenge since there are distinct characteristics associated with AD and comorbidities. In this review, we aim to bring attention to the intersection between social determinants of health and genetic factors associated with AD within the Latino community. We argue that understanding the interplay between identified social determinants of health, co-morbidities, and genetic factors could lead to community empowerment and inclusiveness in research and healthcare services, contributing to improved diagnosis and treatment of AD patients. Lastly, we propose that inserting a neuroethics perspective could help understand key challenges that influence healthcare disparities and contribute to increased risk of AD among Latinos.

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“…Stefania Ilinca (Romania/Denmark) reflected on health and care system readiness 45 for a disease‐modifying treatment and key investment areas to boost system preparedness. Afterward, Jesús Rodrigo Ramos (Spain) discussed Spain's national dementia plan, 46 emphasizing the need for adequate funding to achieve its goals.…”

Section: Resultsmentioning

confidence: 99%

Walking the talk for dementia: A unique immersive, embodied, and multi‐experiential initiative

Aguzzoli Peres,

Haas,

Martha

et al. 2024

Alzheimer's & Dementia

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Coping with dementia requires an integrated approach encompassing personal, health, research, and community domains. Here we describe “Walking the Talk for Dementia,” an immersive initiative aimed at empowering people with dementia, enhancing dementia understanding, and inspiring collaborations. This initiative involved 300 participants from 25 nationalities, including people with dementia, care partners, clinicians, policymakers, researchers, and advocates for a 4‐day, 40 km walk through the Camino de Santiago de Compostela, Spain. A 2‐day symposium after the journey provided novel transdisciplinary and horizontal structures, deconstructing traditional hierarchies. The innovation of this initiative lies in its ability to merge a physical experience with knowledge exchange for diversifying individuals' understanding of dementia. It showcases the transformative potential of an immersive, embodied, and multi‐experiential approach to address the complexities of dementia collaboratively. The initiative offers a scalable model to enhance understanding, decrease stigma, and promote more comprehensive and empathetic dementia care and research.

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Alzheimer's disease research in Ibero America

Cited by 8 publications

References 46 publications

Expanding Representation of Low and Middle Income Countries in Global Dementia Research: Commentary From the Alzheimer's Association

Expanding Representation of Low and Middle Income Countries in Global Dementia Research: Commentary From the Alzheimer's Association

Alzheimer’s Disease in the Latino Community: Intersection of Genetics and Social Determinants of Health

Walking the talk for dementia: A unique immersive, embodied, and multi‐experiential initiative

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