Alzheimer's Disease Victims: The “Unbecoming” of Self and the Normalization of Competence

Fontana, Andrea

doi:10.2307/1389006

Cited by 114 publications

(82 citation statements)

References 3 publications

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“…'s ratings be so reliable, yet agree so little with those who know her best? In this regard her performance is consistent with clinical judgements that characterise late-stage Alzheimer's patients as lacking a sense of self (e.g., Cohen & Eisdorfer, 1986;Fontana & Smith, 1989;Orona, 1990;Ronch, 1996).…”

Section: Patients Suffering Varying Degrees Of Episodic Amnesiasupporting

confidence: 79%

The unanticipated resilience of trait self-knowledge in the face of neural damage

Klein

Lax

2010

Memory

153

135

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This paper explores the question of what the self is by reviewing research conducted with both normal and neuropsychological participants. Findings converge on the idea that the self may be more complex and differentiated than some previous treatments of the topic have suggested. Although some aspects of self-knowledge such as episodic recollection may be compromised in individuals, other aspects-for instance, semantic trait summaries-appear largely intact. Taken together, these findings support the idea that the self is not a single, unified entity. Rather, it is a set of interrelated, functionally independent systems. In the process of reviewing neuropsychological findings, an unexpected result emerges: trait self-knowledge appears unusually robust with respect to neural and cognitive damage that render other aspects of self-knowledge dysfunctional in varying degrees.

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Section: Patients Suffering Varying Degrees Of Episodic Amnesiasupporting

confidence: 79%

The unanticipated resilience of trait self-knowledge in the face of neural damage

Klein

Lax

2010

Memory

153

135

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“…There are some studies of Alzheimer's disease and other types of dementia where researchers have noted that relatives and caregivers reported that they often felt embarrassed by the behaviours of their ill family member (Greene et al 1982, Argyle et al 1985, Fontana and Smith 1989. Moreover, while there are not many studies which focus directly on the topic of Alzheimer's disease and stigma, there are a few exceptions (Schifflet andBlieszner 1988, Blum 1991).…”

Section: Courtesy Stigma and Alzheimer's Diseasementioning

confidence: 99%

Managing Courtesy Stigma: The Case of Alzheimer’s Disease

MacRae

1999

Sociology Health & Illness

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This paper reports the findings of a qualitative study which examines the experience of courtesy stigma among family members of persons with Alzheimer's disease. The results indicate that both primary caregivers and other family members experience stigma; however, a good number of the family members interviewed claimed not to have experienced stigma and did not appear to be concerned about trying to avoid it. Factors or conditions that influenced experience of stigma are outlined.

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“…Loss of self is a fundamental consequence of chronic illness (Charmaz 1983;Fontana and Smith 1989;Orona 1990Orona : 1254. Fontana and Smith (1989: 43-5) describe ftirther what aspects of selfhood remain after the deteriorating effects of Alzheimer's disease.…”

Section: Introductionmentioning

confidence: 99%

Reshaping of self: a pendular reconstruction of self and identity among adults with traumatic spinal cord injury

Yoshida

1993

Sociology Health & Illness

165

134

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This paper describes the impact of chronic illness on self and identity among 35 adults with traumatic spinal cord injury (paraplegic), living in the community. The reconstruction of self and identity post spinal cord injury is conceptualised as a pendulum. The pendulum of self represents a dynamic model of identity reconstruction. The pendulum suggests that identity reconstruction is a process that swings back and forth like a pendulum between the nondisabled and disabled aspects of self. The pendulum depicts five predominant identity views (outcomes). These are: 1) the former self; 2) the supernormal identity; 3) the disabled identity as total self; 4) the disabled identity as an aspect of the total self; and 5) the middle self. These identity views are influenced by five experiences (processes). These are: 1) loss; 2) sustainment; 3) integration; 4) continuity and 5) development of the self. It is suggested that frameworks of identity reconstruction or reconstitution which include both process and outcome components may elucidate more clearly the impact of chronic illness on self and identity. In addition, this pendulum model of identity reconstruction is an alternative approach to traditional sociological conceptions of identity reconstruction.

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Alzheimer's Disease Victims: The “Unbecoming” of Self and the Normalization of Competence

Cited by 114 publications

References 3 publications

The unanticipated resilience of trait self-knowledge in the face of neural damage

The unanticipated resilience of trait self-knowledge in the face of neural damage

Managing Courtesy Stigma: The Case of Alzheimer’s Disease

Reshaping of self: a pendular reconstruction of self and identity among adults with traumatic spinal cord injury

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