An Assessment of Risk Understanding in Hispanic Genetic Counseling Patients

Eichmeyer, Jennifer N.; North, Klaus; Assel, Michael; Goka, Thomas J.; Johnston, Dennis A.; Williams, Aimee T.

doi:10.1007/s10508-005-0005-0

Cited by 3 publications

(4 citation statements)

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“…These data indicate that once women are informed about the presence of a familial cancer risk, most desire to share this information with at-risk relatives. As was the case with our focus group participants, many Latinos are unaware of genetic cancer risks,39 and thus may be unaware of the importance of sharing family cancer information to help relatives understand their risks. Despite the barriers to family communication cited by our focus group participants, the findings from the study of MacDonald et al35 convey optimism that once individuals are educated about hereditary cancer risks, barriers to family cancer history dissemination may be overcome.…”

Section: Discussionmentioning

confidence: 85%

“…Such differences along with patients’ literacy and numeracy levels can substantially impact the efficacy of genetic counseling 36–38. Eichmeyer et al39 have shown that Latinos exhibit lower comprehension of numerical presentations of risk when compared with non-Latino whites; this finding suggests that qualitative representations could improve effectiveness. Graphical presentation of risk probabilities often increases understanding 40,41.…”

Section: Discussionmentioning

confidence: 99%

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Exploring attitudes, beliefs, and communication preferences of Latino community members regarding BRCA1/2 mutation testing and preventive strategies

Kinney

Gammon

Coxworth

et al. 2010

Genetics in Medicine

118

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Purpose: To inform development of a culturally sensitive hereditary breast and ovarian cancer communication initiative and related clinical genetic services. Methods: Five focus groups were conducted with 51 female and male Latinos. Educational materials were designed to communicate information about hereditary breast or ovarian cancer and availability of relevant clinical services or prevention strategies. Focus groups explored participants' knowledge, attitudes, and beliefs about hereditary breast and ovarian cancer, BRCA1/2 testing, and communication preferences for hereditary breast and ovarian cancer health messages. Results: Overall, awareness of familial breast and ovarian cancer and availability of genetic risk assessment was low. Once informed, participants held favorable attitudes toward risk assessment and counseling services. Critical themes of the research highlighted the need to provide bilingual media products and use of a variety of strategies to increase awareness about hereditary cancer risk and availability of clinical genetic services. Important barriers were identified regarding family cancer history communication and cancer prevention services. Strategies were suggested for communicating cancer genetic information to increase awareness and overcome these barriers; these included both targeted and tailored approaches. Conclusion: This research suggests that cancer genetic communication efforts should consider community and cultural perspectives as well as health care access issues before widespread implementation. Genet Med 2010:12(2):105-115.

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Section: Discussionmentioning

confidence: 85%

Section: Discussionmentioning

confidence: 99%

Exploring attitudes, beliefs, and communication preferences of Latino community members regarding BRCA1/2 mutation testing and preventive strategies

Kinney

Gammon

Coxworth

et al. 2010

Genetics in Medicine

118

View full text Add to dashboard Cite

show abstract

“…Census Bureau, 2014). For more than10 years, Hispanics expressed an interest in obtaining information about genetic health risks but continue to have an insufficient understanding of their genetic risk as compared with White non-Hispanics, termed, Caucasians in the original studies (Eichmeyer et al, 2005; Malen et al, 2015). A need exists for the development of genetic and genomic assessment tools that are ethnically, culturally, and linguistically appropriate.…”

Section: Introductionmentioning

confidence: 99%

Exploring Genetic Literacy in a Small Hispanic Population

et al. 2020

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Introduction: Genetic literacy recognizes one’s ability to gather, understand, and apply genomic information to make informed health care choices and social decisions. A limited understanding of genomic literacy carries the potential for poor health outcomes. The aim of this pilot study was to determine the usefulness of an assessment tool to ascertain genetic literacy in a small Hispanic clinic population. Methodology: Mixed-method, cross-sectional pilot study requiring forward-back translation of an established questionnaire. Twenty Spanish-speaking adults were recruited through purposive and convenience sampling. Results: Forward–back translation provided a comparable questionnaire. Participants indicated information was relevant. Qualitative feedback uncovered regional differences. Quantitative results reported descriptive statistics, frequencies, and Cronbach alphas. Discussion: Findings from this study reveal the need for genetic literacy assessment tools that are attuned to the linguistic, ethnic, and cultural differences within the Hispanic population.

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“…Yet, AAs perhaps face a large number of potential barriers to accessing ES/WGS and benefiting results. Genetic knowledge among some AAs is limited [Akinleye et al, 2011;Goldenberg et al, 2011;Kessler et al, 2007;Suther and Kiros, 2009] and misperceptions of genetic risk, differences in the cultural acceptability of genetic services, and distrust [Eichmeyer et al, 2005] adversely impact test utilization [Susswein et al, 2008] and contribute to underrepresentation of AAs in genetic research. Furthermore, the informativeness of genetic results may differ for AA populations because AAs are more likely to have variants of uncertain significance [Nanda et al, 2005;Tennessen et al, 2012].…”

Section: Introductionmentioning

confidence: 99%

Attitudes of African Americans Toward Return of Results From Exome and Whole Genome Sequencing

Crouch

Jamal

et al. 2013

Am. J. Med. Genet.

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Exome sequencing and whole genome sequencing (ES/WGS) present patients and research participants with the opportunity to benefit from a broad scope of genetic results of clinical and personal utility. Yet, this potential for benefit also risks disenfranchising populations such as African Americans (AAs) that are already underrepresented in genetic research and utilize genetic tests at lower rates than other populations. Understanding a diverse range of perspectives on consenting for ES/WGS and receiving ES/WGS results is necessary to ensure parity in genomic health care and research. We conducted a series of 13 focus groups (n=76) to investigate if and how attitudes toward participation in ES/WGS research and return of results from ES/WGS differ between self described AAs and non-AAs. The majority of both AAs and non-AAs were willing to participate in WGS studies and receive individual genetic results, but the fraction not interested in either was higher in AAs. This is due in part to different expectations of health benefits from ES/WGS and how results should be managed. Our results underscore the need to develop and test culturally tailored strategies for returning ES/WGS results to AAs.

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An Assessment of Risk Understanding in Hispanic Genetic Counseling Patients

Cited by 3 publications

References 0 publications

Exploring attitudes, beliefs, and communication preferences of Latino community members regarding BRCA1/2 mutation testing and preventive strategies

Exploring attitudes, beliefs, and communication preferences of Latino community members regarding BRCA1/2 mutation testing and preventive strategies

Exploring Genetic Literacy in a Small Hispanic Population

Attitudes of African Americans Toward Return of Results From Exome and Whole Genome Sequencing

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