An Exploration of the Issues Raised by Living With a Child With Autistic Spectrum Disorder and a Professional's Attempt to Move Beyond Pity and Blame

Hingley‐Jones, Helen

doi:10.1080/02650530500143677

Cited by 9 publications

(11 citation statements)

References 4 publications

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“…The results of this study support my hypotheses that parental self-blame is associated with poorer psychological well-being and is also consistent with descriptions of parents' subjective experiences in various qualitative or first-person accounts (Hingley-Jones, 2005;Karp, 2001). Parents with more self-blame, on average, had higher ratings of depression and perceived burden and lower ratings on hopefulness.…”

Section: How Does Parents' Self-blame Relate To Theirsupporting

confidence: 88%

“…Parents' sense of guilt (closely related to self‐blame)—defined as individuals' “emotional state associated with possible objections to their actions, inaction, circumstances or intention” (Baumeister, Stillwell, Heatherton, & Parrott, 2001)—is also harmful to parental well‐being, as it induces feelings of stress, helplessness, and incompetence (Jones, 2004; Nixon, Singer, & Powers, 1993). Parents report that how they have dealt with shame and self‐blame is an important determinant of their coping, adaptation, and well‐being (Hingley‐Jones, 2005; Koro‐Ljungberg & Bussing, 2009; Mickelson et al, 1999). Similarly, research on self‐blaming causal attributions on the part of relatives has also found that self‐blaming causal attributions are associated with greater distress or depression on the part of family members (Barrowclough et al, 1996; Bolton et al, 2003; White & Barrowclough, 1998).…”

Section: What Is the Effect Of Self‐blame On Parents' Well‐being?mentioning

confidence: 99%

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Exploring Parents' Self‐Blame in Relation to Adolescents' Mental Disorders

Moses

2010

Family Relations

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This study examined whether parents of adolescents diagnosed with mental disorders self‐blame for their child's disorders; their reasons for self‐blame; and the relationships between parental self‐blame and lower psychological well‐being, perceived stigmatization, social support, potential hereditary factors related to adolescents' mental disorders, demographics, and youths' clinical characteristics. Analysis of qualitative and quantitative interview data was used to classify 68 parents as “more” or “less” (40%) inclined to self‐blame. The most common reasons for parental self‐blame included perceived (a) bad parenting, (b) ineffective oversight of child's mental health status, (c) passing on “bad genes,” and (d) negative family environment. Greater parental self‐blame was related to parents' lower psychological well‐being and associated with potential hereditary transmission, family support, and adolescents' clinical characteristics.

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Section: How Does Parents' Self-blame Relate To Theirsupporting

confidence: 88%

Section: What Is the Effect Of Self‐blame On Parents' Well‐being?mentioning

confidence: 99%

Exploring Parents' Self‐Blame in Relation to Adolescents' Mental Disorders

Moses

2010

Family Relations

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“…Numerous studies found parents experiencing guilt, regardless of the nature of their child’s SEND (Broomhead, ; Francis, ; Hess et al, ; Tunali & Power, ). This guilt can develop into shame and self‐blame (Broomhead, ; Hingley‐Jones, ). Blame was highlighted as being an issue for parents during the diagnostic process, which was not helped when parents thought that they were ‘blamed’ by family and friends, practitioners and wider society.…”

Section: Resultsmentioning

confidence: 99%

“…This has, perhaps, led to a culture of parental blame (Broomhead, ; Francis, ; Hess et al, ; Peters, ). Hingley‐Jones () explains this further in terms of the cycle of blame and pity often prevalent within the relationship between parents and practitioners.…”

Section: Resultsmentioning

confidence: 99%

Children with SEND and the emotional impact on parents

Holland¹,

Pell²

2018

British J Special Edu

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Children bring joy, new experiences and challenges into the lives of their families, and the focus of this article is on the often unrecognised emotional challenges and stigma experienced by parents of children with special educational needs and/or disabilities (SEND). This study involved a random sample group of 240 parents using a service in the Hull and East Riding areas of the UK. These parents filled in a questionnaire, the results of which showed that there were points of particular stress for some families, often involving their initial concerns when their children's difficulties were unrecognised, the diagnosis itself, and then obtaining support. In addition, for some families, this stress led to the breakdown of parental relationships. Significant areas of additional stress included parents having feelings of guilt and emotional strain, with experiences of isolation for the family and negative impacts on parental mental health. Furthermore, some parents revealed incidences of stigma and a refusal to accept diagnoses and concerns, even from within the wider family. Likewise, some parents found that family and friends were not sympathetic or supportive. Finally, a number of parents also described detrimental impacts on siblings and expressed concerns about the education of and future outcomes for their child. * KIDS is a charity supporting children and young people with SEND and their families, delivering services throughout England.

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“…Hingley-Jones (2005) discussed experiences of parents raising children with autism. Feelings of parental blame were evidenced, and the study argued that blame could have been a product of the preoccupation with a simplistic aetiology of autism.…”

Section: Resultsmentioning

confidence: 99%

The social construction of ‘deafness’: explored through the experiences of Black South African mothers raising a deaf child

Kara

Harvey

2016

South African Journal of Psychology

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Individual realities and perceptions are embedded in a web of dominant social and cultural views which shape the individual. Mothers of deaf children therefore cannot be understood in isolation, and neither can their experiences, perceptions, and well-being. The present research investigated the construction of deafness through the experiences of mothers raising a deaf child and considered the manner in which these constructions impacted their well-being and relationship with the child. The study explored the experiences of six Black South African hearing mothers of a deaf child between the ages of 3 and 8 years. Individual semi-structured interviews were conducted. Through an interpretive theoretical framework, this qualitative study noted seven main themes, namely, deafness is foreign and unknown, increased awareness and normalising of deafness, religious and Traditional African beliefs about disability/deafness, external pity and the mother's rejection of it, the discourse of the 'superiority' of speech and encouragement of speech and hearing, barriers to communicating with her child, and 'Why me?' attribution of cause and the emergence of blame. Extrapolation of the data suggests that there is a lack of awareness regarding the deaf individual, and this creates misinformed perceptions about deafness which impact negatively both mother and child.

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An Exploration of the Issues Raised by Living With a Child With Autistic Spectrum Disorder and a Professional's Attempt to Move Beyond Pity and Blame

Cited by 9 publications

References 4 publications

Exploring Parents' Self‐Blame in Relation to Adolescents' Mental Disorders

Exploring Parents' Self‐Blame in Relation to Adolescents' Mental Disorders

Children with SEND and the emotional impact on parents

The social construction of ‘deafness’: explored through the experiences of Black South African mothers raising a deaf child

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