An instrument to assess patient satisfaction with epilepsy treatment

Biraben, Arnaud; Allaf, Bashar

doi:10.1016/j.yebeh.2014.11.031

Cited by 6 publications

(3 citation statements)

References 25 publications

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“…Dispensing. VAS satisfaction scores regarding pharmacy dispensing were about 89 (68, 100) (rated from 0 to 100), and 49.5% (45) of participants had a satisfaction score ≥90/100. Te satisfaction scores were not related to gender, marital status, or professional activity.…”

Section: Satisfaction Of Patients Regarding Community Pharmacymentioning

confidence: 99%

“…Satisfaction scores tended to be higher for patients recruited in pharmacies compared to patients recruited in oncology departments, but the diference was not statistically signifcant. Te use of a VAS score to assess satisfaction which is subjective could be a source of bias, but this has already been used in several medical conditions (hip arthroplasty [44], epilepsy management [45]). It is noteworthy that when assessing patient satisfaction, in comparison to the Likert scale, VAS seems to be less sensitive to bias from confounding factors and a ceiling efect, and the time taken to answer is shorter [46].…”

Section: Study Limitationsmentioning

confidence: 99%

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Satisfaction of Cancer Patients Treated with Oral Anticancer Medications regarding Dispensing by Community Pharmacists: A Cross-Sectional Study

Balayssac,

Pereira,

Desmard

et al. 2023

European Journal of Cancer Care

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Purpose. The growing choice of oral anticancer medications (OAMs) delivered in pharmacies puts the patients at the center of their own therapeutic management. Patient satisfaction regarding their pharmaceutical management is particularly important for adherence to their treatment. The aim of this study was to assess the satisfaction of patients treated with OAMs regarding their dispensing in community pharmacies. Methods. A cross-sectional study was conducted with a self-questionnaire proposed to patients in hospital centers and community pharmacies. The patient’s satisfaction regarding pharmacy dispensing was assessed with a visual analogue scale. Answers to questions about the quality of information they received from health professionals were recorded. The patient’s adherence to their medication was assessed with the 8-item Morisky Medication Adherence Scale (MMAS-8). Symptoms and quality of life were recorded with the QLQ-C30 questionnaire. Results. Ninety-one patients were included in the analysis. The median score of satisfaction was 89 (interquartile range: 68, 100), and 49.5% had a satisfaction score ≥90/100. Satisfaction scores were higher for patients reporting information from pharmacists for the method of administration, the management of adverse effects, and drug interactions than for patients reporting no information from pharmacists. Patient satisfaction was not related to MMAS-8 scores, symptoms, or quality of life. Multivariate analysis of patient satisfaction revealed a positive relationship with information on the administration method provided by pharmacists. Conclusions. The level of information provided on OAMs to patients should be the same between pharmacists and oncologists. Good medication dispensing practices by the pharmacist are important components of patient care and satisfaction. We encourage pharmacists to provide more medication information to their patients.

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Section: Satisfaction Of Patients Regarding Community Pharmacymentioning

confidence: 99%

Section: Study Limitationsmentioning

confidence: 99%

Satisfaction of Cancer Patients Treated with Oral Anticancer Medications regarding Dispensing by Community Pharmacists: A Cross-Sectional Study

Balayssac,

Pereira,

Desmard

et al. 2023

European Journal of Cancer Care

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“…The VAS was chosen for its simplicity and familiarity to AHPs in the absence of any validated alternative (VAS scoring: 0 ¼ no satisfaction/impact to 100 ¼ most satisfaction/impact). It was also considered appropriate from its validation in pain, mental health and patient satisfaction contexts, where it demonstrates the ability to capture the essence of multifaceted responses (Brokelman et al 2012;Abend et al 2014;Biraben and Allaf 2015).…”

Section: Introductionmentioning

confidence: 99%

About face: regional allied health professional early adaptation during the COVID-19 pandemic

Castle¹,

Hagan²,

Anderberg³

et al. 2022

Aust. J. Primary Health

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The coronavirus pandemic has led to significant change in allied health practice in Australia. Measures to slow virus spread have included replacing face-to-face services with telehealth services, and hands-on practice with socially distanced intervention. In the present mixed-methods, cross-sectional study, 51 allied health professionals across two public health services in regional Victoria, Australia, completed an online questionnaire with open and closed questions. The aim was to explore their experience in adapting to directed practice change during the first wave of the pandemic. The clinicians reported low levels of clinical satisfaction due to a perceived reduction in service quality and accessibility. Directed use of telehealth significantly contributed to dissatisfaction, with challenges including infrastructure, clinician and patient digital literacy and platform suitability for some patient groups and interventions. In contrast, peer support, timely and accurate communication, decision transparency, recognition and strong leadership from management supported adaptation, as did individuals' flexibility and learning. Our findings highlight the leadership qualities and support strategies conducive to workplace adaptation during a crisis period. They also support calls for further resource development to support skill translation for telehealth platform use and initiatives to increase digital literacy and infrastructure availability in regional Australia.

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Clinical Trial Design for Disease-Modifying Therapies for Genetic Epilepsies

2021

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Although trials with anti-seizure medications (ASMs) have not shown clear anti-epileptogenic or disease-modifying activity in humans to date, rapid advancements in genomic technology and emerging gene-mediated and gene replacement options offer hope for the successful development of disease-modifying therapies (DMTs) for genetic epilepsies. In fact, more than 26 potential DMTs are in various stages of preclinical and/or clinical development for genetic syndromes associated with epilepsy. The scope of disease-modification includes but is not limited to effects on the underlying pathophysiology, the condition's natural history, epilepsy severity, developmental achievement, function, behavior, sleep, and quality of life. While conventional regulatory clinical trials for epilepsy therapeutics have historically focused on seizure reduction, similarly designed trials may prove ill-equipped to identify these broader disease-modifying benefits. As we look forward to this pipeline of DMTs, focused consideration should be given to the challenges they pose to conventional clinical trial designs for epilepsy therapeutics. Just as DMTs promise to fundamentally alter how we approach the care of patients with genetic epilepsy syndromes, DMTs likewise challenge how we traditionally construct and measure the success of clinical trials. In the following, we briefly review the historical and preclinical frameworks for DMT development for genetic epilepsies and explore the many novel challenges posed for such trials, including the choice of suitable outcome measures, trial structure, timing and duration of treatment, feasible follow-up period, varying safety profile, and ethical concerns.

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An instrument to assess patient satisfaction with epilepsy treatment

Cited by 6 publications

References 25 publications

Satisfaction of Cancer Patients Treated with Oral Anticancer Medications regarding Dispensing by Community Pharmacists: A Cross-Sectional Study

Satisfaction of Cancer Patients Treated with Oral Anticancer Medications regarding Dispensing by Community Pharmacists: A Cross-Sectional Study

About face: regional allied health professional early adaptation during the COVID-19 pandemic

Clinical Trial Design for Disease-Modifying Therapies for Genetic Epilepsies

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