Antonia's story: Bringing the past into the future

Abstract

Background This paper reports on a participatory project on the history of learning disability. The paper makes contributions to discourses on using participatory research methods with people labelled with learning disabilities, on the nature of research impact in participatory research, and on the lived experience of learning disability today. Methods We used a two‐step methodology. The first step involved searching for and selecting archive material relating to the history of learning disability. The second step involved a series of participatory workshops. We worked collectively to systematically analyse the case history of Antonia Grandoni. Then we responded to it in a variety of creative ways. In doing so, we made connections between Antonia's life and our own. Findings Many of Antonia's experiences seem very similar to what people labelled with learning disabilities often encounter today. These include discrimination, segregation and dehumanisation. Despite this, we very much enjoyed doing the research. As well as finding out about the history, some of us learned new skills, some of us grew in confidence, and we also made new friends. Conclusions Participatory methods are an effective way of making digital archive material more accessible to people labelled with learning disabilities. In this project, using participatory methods revealed a lot of parallels between how we think somebody experienced learning disability in the mid‐19th century, and how it is experienced today. They also resulted in significant impact on the people doing the research.

Inclusive Research as a Way of Empowering People with Intellectual Disabilities. Reflections of the Training Participants

“…The negative experiences of socialization of intellectually disabled people, with tendencies to discriminate against and stigmatize, generate an adverse self-image and impart a low social status (Barden et al, 2022;Northway, 2001). Participation in the role of a co-researcher can be a platform for developing awareness of one's situation and motivating one to change it (Kramer et al, 2011;Nind, 2017); it creates an opportunity for increasing responsibility and control over one's life, interest in issues important for its quality, motivation for actions aimed at improving it (Northway, 2001), which can be regarded as tangible indicators of the co-researchers' self-empowerment.…”