Anxiety, depression, resilience and quality of life in children and adolescents with pre-dialysis chronic kidney disease

Moreira, Janaína Matos; Soares, Cristina M. Bouissou; Teixeira, Antônio Lúcio; Silva, Ana Cristina Simões e; Kümmer, Arthur

doi:10.1007/s00467-015-3159-6

Cited by 131 publications

(110 citation statements)

References 48 publications

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“…Supporting the findings of the present research, existing studies reported resilience as a factor affecting HRQOL among healthy adolescents (Haase et al, 1999), adolescents with cancer (Wu et al, 2015), adolescents with pre-dialysis chronic kidney disease (Moreira et al, 2015) and adolescents with a chronic disease (Santos, de Matos, Simões, Leal, & do Céu Machado, 2017). To improve HRQOL among adolescents with a chronic health problem, enhancing resilience-the ability to obtain positive results in a disease-related stressful situation-is of immense importance regardless of cultural context.…”

Section: Discussionsupporting

confidence: 84%

“…There is international evidence that resilience is a major factor affecting HRQOL among adolescents with a chronic health problem (Moreira, Bouissou Morais Soares, Teixeira, Simoes, & Kummer, 2015). Resilience has been conceptualized as a dynamic process involving internal and external aspects that act to modify the effects of adverse life events (Rutter, 1999).…”

mentioning

confidence: 99%

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Impact of resilience on the health‐related quality of life of adolescents with a chronic health problem: A structural equation approach

Kim¹,

Kim

2018

Journal of Advanced Nursing

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Aim The aim of this study was to test the impact of resilience on the health‐related quality of life among adolescents with a chronic health problem, we established a structural model to explain patients’ health‐related quality of life. Background There are various resilience‐related factors with major effects on the health‐related quality of life among adolescents with a chronic disease; however, little is known about relationships among resilience, these influencing factors and direct and indirect effects of health‐related quality of life among adolescents with a chronic health problem. Design This study adopted a cross‐sectional, descriptive correlational design. Methods Participants were 220 adolescents with a chronic disease who were aged between 10 and 18 years and currently receiving treatment at a hospital or clinic for least 6 months from February to October 2017 in Korea. Results This study verifies that hope and courageous coping had direct effects on the resilience of adolescents with a chronic health problem and the level of direct effects on health‐related quality of life was in the following order: hope, resilience and courageous coping. In addition, illness‐related distress, social support, hope and defensive coping had indirect effects on resilience and the level of indirect effects on health‐related quality of life was in the following order: illness‐related distress, social support, defensive coping, hope and courageous coping. Conclusion Resilience is a major factor that improves health‐related quality of life among adolescents with a chronic health problem. In consideration of the direct and indirect paths verified through this study, it is necessary to develop interventions to improve health‐related quality of life among adolescents with a chronic health problem.

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Section: Discussionsupporting

confidence: 84%

mentioning

confidence: 99%

Impact of resilience on the health‐related quality of life of adolescents with a chronic health problem: A structural equation approach

Kim¹,

Kim

2018

Journal of Advanced Nursing

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“…CKD, even in mild stages [23] , has an impact on neurocognitive ability, health-related quality of life (HRQOL), and anxiety and depressive symptoms [24] . These issues cannot be ignored during the most important stages of development.…”

Section: Neurocognitive Impact and Quality Of Lifementioning

confidence: 99%

A Review of Pediatric Chronic Kidney Disease

Kaspar

Bholah²,

Bunchman³

2016

Blood Purif

114

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“…Future prospects regarding schooling and further education are poor if they are in need of dialysis—which is time consuming and often produces side effects. Significantly reduced quality of life is found among children with ESKD (Francis et al ), and in health‐related quality of life at all stages of chronic kidney disease (CKD) (Moreira et al ; Splinter et al ).…”

Section: Literature Reviewmentioning

confidence: 99%

Everyday life experiences in families with a child with kidney disease

Agerskov

Thiesson

Pedersen

2019

Journal of Renal Care

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SUMMARY Background Chronic kidney disease in children is a complex medical and psychosocial disease with factors that differ from the adult disease in significant ways. Among parents, there is uncertainty about disease progression and lack of confidence in caring for the child. The disease has an impact on the emotional and social well‐being of the whole family. Objectives To investigate everyday life experiences from the perspectives of members of a family that includes a child with end stage renal disease. Method The study took a phenomenological‐hermeneutical approach. Semi‐structured individual interviews were conducted with seven fathers, seven mothers, five children with kidney disease and five siblings. The data were analysed using Ricoeur's theory of narrative and interpretation, on three levels: naïve reading, structural analysis, critical interpretation and discussion. Results It was significant that everyday life and caring for the child were structured around parents’ energy reserves. The disease left its mark and changes to daily life caused anxiety, especially for siblings. The search for normalcy was significant and, although the families coped with conditions around the disease, it could be a challenge. Conclusion Family members feel vulnerable and concerned and need attention, support and care. Limitations in everyday life cause a dilemma, and the well‐being of one family member has an impact on the well‐being of the family as a whole. Implications for practice: Health care professionals should focus on the impact of the family's experiences and needs, and the parents’ role in family relationships, to support the entire family unit.

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Anxiety, depression, resilience and quality of life in children and adolescents with pre-dialysis chronic kidney disease

Abstract: Although patients and controls exhibited similar scores of resilience, CKD negatively impacted the QoL of pediatric patients, contributing to a higher frequency of depression and separation anxiety.

Cited by 131 publications

References 48 publications

Impact of resilience on the health‐related quality of life of adolescents with a chronic health problem: A structural equation approach

Impact of resilience on the health‐related quality of life of adolescents with a chronic health problem: A structural equation approach

A Review of Pediatric Chronic Kidney Disease

Everyday life experiences in families with a child with kidney disease

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