Introduction/Objective. Pain is often an under-recognized entity in children
with cerebral palsy. The aim of this study was to determine whether there are
differences in pain self-perception between children with cerebral palsy and
their caregivers. Methods. This retrospective study included 70 children with
cerebral palsy and 70 of their caregivers, treated at the Institute of Child
and Youth Health Care of Vojvodina, Serbia. Pain intensity ratings on the
Visual Analog Scale (VAS) provided by children and/or their caregivers were
analyzed. Results. The research involved 70 children with cerebral palsy and
the same number of their caregivers. While only 43 (61.4%) of these children
were testable, all 70 caregivers participated. Pain was reported by 19
(44.2%) children and 42 (60%) caregivers, while 17 (39.5%) children suffered
from musculoskeletal pain, which was noted by 39 (55.7%) caregivers. Average
caregiver rating for musculoskeletal pain for children at Level V, I and III
on the Gross Motor Function Classification System (GMFCS) was 6.20 ? 2.10,
2.67 ? 2.18, and 2.50 ? 2, respectively. Average self- and caregiver-reported
VAS rating for headache/stomachache was 2.73 ? 1.86 and 2.35 ? 1.49,
respectively (p > 0.05). Statistically significant differences were noted in
the musculoskeletal pain VAS scores provided by the caregivers for children
at different GMFCS levels (p < 0.01). Conclusion: Although no differences in
pain perception between children with cerebral palsy and their caregivers
have been established, in children with the most severe level of motor
disability, caregivers report a statistically higher level of musculoskeletal
pain.