Are families supported to come to terms with an autism diagnosis? A service evaluation of referrals to family therapy for young people with autism in one NHS trust

Abstract

Young people with autism are increasingly being referred for family therapy (FT) owing to impaired family functioning, but few studies have investigated the support families receive following a diagnosis through specific NHS Trusts. This study examined (1) the proportion of autism cases referred for FT in one Trust and (2) the post-diagnostic support families received. Participants (n = 144; 9.5-19.3 years) were FT referrals between 2019-2020. Autism diagnostic status and the support families received from FT, from the neurodevelopmental (ND) service which specialises in autism, and for co-occurring conditions [e.g., cognitive behavioural therapy (CBT)] was extracted retrospectively from routine data. Forty FT referrals met autism criteria: several families did not receive FT; few were provided with support from the ND service; and if CBT was offered, no adaptations for autism were noted. Families received insufficient support following a diagnosis through this Trust. Implications include improving post-diagnostic support for families in practice.

Editorial

“…The next paper has as its focus children are those with neurodiversity and their parents and carers. Lauren Burton and Claudine Fox (2023) report findings from a service evaluation for families referred to family therapy after their child had been given a diagnosis of autism. They highlight the enormous need to develop post‐diagnostic services for families.…”