Assessing Autism Knowledge Across the Global Landscape Using the ASK-Q

Harrison, Ashley J.; Naqvi, Nilofer C.; Smit, Anne K.; Kumar, Prisha Nanda; Muhammad, Noor Azimah; Saade, Sabine; Yu, Luodi; Cappe, Émilie; Low, Hui Min; Chan, Sarah-Jane; Bildt, Annelies de

doi:10.1007/s10803-023-05936-5

Cited by 6 publications

(3 citation statements)

References 82 publications

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“…This hypothesis is put forward by people in the autistic community, who note that autistic people are portrayed more positively in QC magazines and print media than in French writings aimed at the general public (Reynaud, 2014). Furthermore, Harrison et al (2021) found that French Canadians had significantly more knowledge about autism than in other countries such as FR. However, as reported by Jones et al (2021), more knowledge does not necessarily lead to less stigma.…”

Section: Discussionmentioning

confidence: 95%

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Sociocultural context and autistics’ quality of life: A comparison between Québec and France

Caron

Jeanneret

Giroux

et al. 2021

Autism

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Quality of life is important for the development and evaluation of interventions for autistic people. It is a multidimensional concept, anchored in a sociocultural context and based on a person’s subjective assessment of their life. The aim of this study is to examine whether the determinants of perceived quality of life vary by country (or culture) by comparing two groups of French-speaking autistic adults ( n = 430), one in France and the other in Québec (Canada). A cross-sectional survey was conducted to provide information on the quality of life (Autism Quality of Life Measure—ASQoL), diagnosis and health conditions, self-evaluation of autistic traits (Autism-Spectrum Quotient—AQ10), and sociodemographic characteristics of these two samples. The results of our comparison of French-speaking autistic adults in France and Québec suggest that sociocultural context has an impact on autistic people’s quality of life ( r2 = 0.280). The Québec group reported a superior quality of life. The social experience of autism-related stigmatization emerges as a strong predictor of lower quality of life in both groups. However, the two groups differ with other predictors. This study demonstrates the importance of considering sociocultural context in measuring quality of life in autistic adults. It emphasizes the need for awareness programs and public campaigns aimed at identifying and countering stigmatization processes. Lay abstract What is already known about the topic? Quality of life refers to how people perceive aspects of their life such as physical health, material security, and interpersonal relationships. Studies have reported lower quality of life among autistic individuals than in the general population. What does this article contribute? This article contributes to a better understanding of quality of life and its measures from the point of view of autistic adults. By comparing two groups of French-speaking autistic adults from two different places (France and Québec—Canada), this research shows that the perception of quality of life and its determining factors differ for autistic adults living in each country. The Québec group reported a superior quality of life, and some quality of life predictors were different in each group. The social experience of autism-related stigmatization, however, was a powerful predictor of quality of life for all. Implications for practice, research, and policy To promote a higher quality of life for autistic people, it is important to consider the sociocultural context and implement awareness programs and public campaigns aimed at identifying and countering stigmatization processes.

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Section: Discussionmentioning

confidence: 95%

“…than in French writings aimed at the general public(Reynaud, 2014). Furthermore,Harrison et al (2021) found that French Canadians had significantly more knowledge about autism than in other countries such as FR. However, as reported byJones et al (2021), more knowledge does not necessarily lead to less stigma.…”

mentioning

confidence: 95%

Sociocultural context and autistics’ quality of life: A comparison between Québec and France

Caron

Jeanneret

Giroux

et al. 2021

Autism

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“…El estudio reveló que los participantes de países con mayores ingresos económicos y designación individualista presentaron un mayor conocimiento sobre el TEA. Además, factores como la relación con personas autistas, el sexo femenino, el nivel educativo y la edad in uyeron positivamente en el conocimiento adecuado del TEA.Estos hallazgos subrayan la importancia de adaptar y validar herramientas de evaluación culturalmente(3) sensibles para mejorar la concienciación y reducir el estigma asociado con el TEA a nivel global .El Trastorno del Espectro Autista (TEA) es un trastorno del neurodesarrollo que se caracteriza por di cultades en la interacción social, la comunicación, y patrones de comportamiento restringidos y repetitivos. A lo largo de las últimas décadas, ha habido un aumento en la concienciación y en la detección temprana del TEA, lo que ha mejorado signi cativamente las oportunidades de intervención y apoyo.…”

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Validating a questionnaire to assess knowledge and stigmatization of ASD in the Peruvian population: a real need

Delgado Zegarra,

Medrano Palomino,

Vargas

2024

RFMH

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Autism Spectrum Disorder (ASD) is a neurodevelopmental disorder characterized by difficulties in social interaction, communication, and restricted and repetitive patterns of behavior. Over the past few decades, there has been an increase in awareness and early detection of ASD, significantly improving opportunities for intervention and support. However, individuals with ASD often face stigmatization and discrimination due to a lack of understanding about their condition, which can negatively affect their emotional and social well-being. Therefore, it is crucial to promote greater education and awareness about ASD to reduce stigma and foster a more inclusive society. (1)

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Validation of the Chinese version of the autism spectrum knowledge scale general population version (ASKSG) with a parent sample

Zhong,

He,

Lei

et al. 2024

Journal of Pediatric Nursing

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Assessing Autism Knowledge Across the Global Landscape Using the ASK-Q

Cited by 6 publications

References 82 publications

Sociocultural context and autistics’ quality of life: A comparison between Québec and France

Sociocultural context and autistics’ quality of life: A comparison between Québec and France

Validating a questionnaire to assess knowledge and stigmatization of ASD in the Peruvian population: a real need

Validation of the Chinese version of the autism spectrum knowledge scale general population version (ASKSG) with a parent sample

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