Assessing the quality of life of the individual: the SEIQoL with a healthy and a gastroenterology unit population

McGee, Hannah; O’Boyle, Ciaran; Hickey, Anne; O’Malley, K; Joyce, C. R. B.

doi:10.1017/s0033291700022388

Cited by 298 publications

(191 citation statements)

References 28 publications

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“…The within-patient reliability found in this study was comparable to that found in other studies using JA in patients [10]. The range of scores for replicated judgments indicated that several patients found the task difficult.…”

Section: Perceptions Of Asthma Severity Ea Barley and Pw Jonessupporting

confidence: 88%

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Analysis of the cues used by patients when making assessments of their asthma severity

Barley¹,

Jones

2005

Eur Respir J

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This study measured the relative contribution of four cues: symptoms, effect on activities, emotions and social life, to patients' judgments of overall asthma severity.Judgement analysis techniques were applied to patients' assessments of overall asthma severity using asthma states described in scenarios based on these cues.Altogether, 40 patients, mean age 52 yrs, mean forced expiratory volume in one second 67% predicted, were studied. The relative importance of the cues varied widely between patients; symptoms contributed to 47% of the judgment of asthma severity (range 15-86%), activities 19% (1-73%), emotions 14% (0-43%), and social life 19% (2-57%). Some patients had difficulty with the judgment task, they tended to be older or have worse health. A total of 21 patients had consistent judgment policies. Cluster analysis identified two policy types. In one, symptoms were weighted heavily, in the other all cues were weighted similarly. Policies were not related to disease or demographic factors.Symptoms are important cues for patients when assessing asthma severity, but other cues may be more important in some patients. Patients fall into two groups: those who rely on symptoms and those who use several cues.

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Section: Perceptions Of Asthma Severity Ea Barley and Pw Jonessupporting

confidence: 88%

“…JA has been used to determine judgment policies used by clinicians when making clinical decisions [6][7][8]. It has also been used in patients to measure individual quality of life [9][10][11]. Judgment policies derived using these methods have been shown to relate well to actual decision-making [12,13].…”

mentioning

confidence: 99%

Analysis of the cues used by patients when making assessments of their asthma severity

Barley¹,

Jones

2005

Eur Respir J

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“…In health related studies, it has been used in people suffering from peptic ulcer disease and irritable bowel disease (18), osteoarthritis (19), AIDS (20), cancer (21,22), cystic fibrosis (23), stroke (24), multiple sclerosis (17), mental illness (25), amyotrophic lateral sclerosis (26,27), people with leukaemia and lymphoma (28), people with End Stage Renal Failure (29), carers of people with dementia (30), and young people with diabetes (31) to name a few.…”

Section: Introductionmentioning

confidence: 99%

The SEIQoL and functional status: how do they relate?

Lhussier

Watson

Reed

et al. 2005

Scandinavian Caring Sciences

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Over recent years, an emphasis has emerged in UK and international policy documents, over the involvement of people in the delivery of health care. However, evaluations of health services still largely rest on outcome measures that reflect professional concerns. As new health services are being developed, new patientcentred outcome measures are needed to evaluate them. This paper aims at exploring the possibility of individual quality of life as an outcome measure for health services.As a first step, it aims to elucidate the relationship of functional outcome measures to the Schedule for the Evaluation of Individual Quality of Life (SEIQoL), in groups of people whose age or medical diagnosis serve as the basis for health service design. Its objectives are to study the relation of SEIQoL scores and life areas to functional status in an older population and in a group of people with Chronic Obstructive Pulmonary Disease (COPD). Older people selected their health most frequently as one of the most important areas in their life (9.9%, versus 8.6% for people with COPD), and were more satisfied with it (U=2512, p=0.007). People's health status did not impact on the way they defined their quality of life, but on their level of satisfaction with discrete life areas. The weights attributed to health were significantly negatively correlated to people's overall quality of life score in the overall sample (rho=-0.34, p<0.001).In the light of recent national and international policy documents advocating for the development of new, more person centred health services, our results supports the proposition of the authors of SEIQoL, that individual quality of life measures have the potential to bring a significant contribution to the evaluation health services.3

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“…In this regard, disease-specific tools may be more appropriate than generic ones in clinical practice (70). The newer genre of patient-specific (individualized) quality-of-life measures (67,81,90,110) may prove most illuminating at the individual-patient level. It is clear from studies of mental health screening that the mere availability of screening tools constitutes neither a necessary nor sufficient condition for routine clinical use (3).…”

Section: Clinical Practicementioning

confidence: 99%

“…In addition to generic, disease-specific, and utility measures, tools have been developed to measure patient-specific (individualized) quality of life (67,81,90,110). Over 75 different tools exist that measure functional ability in the elderly and the chronically ill (23).…”

Section: Selection Of Measuresmentioning

confidence: 99%

HEALTH STATUS ASSESSMENT METHODS FOR ADULTS: Past Accomplishments and Future Challenges

McHorney

1999

Annu. Rev. Public Health

280

159

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Over the past 30 years, health status assessment methods for adults have proliferated. Numerous generic, disease-specific, and preference-based measures now exist that tap diverse aspects of functioning, well-being, symptom states, and subjective perceptions of health. The evolution of the state of the art in adult health status assessment is reviewed. Applications of these tools in health services research, health policy, and clinical practice are discussed. Recommendations are offered for selecting among the armamentaria of tools. Conceptual and methodological challenges that confront instrument users and developers alike are identified and discussed.

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Assessing the quality of life of the individual: the SEIQoL with a healthy and a gastroenterology unit population

Cited by 298 publications

References 28 publications

Analysis of the cues used by patients when making assessments of their asthma severity

Analysis of the cues used by patients when making assessments of their asthma severity

The SEIQoL and functional status: how do they relate?

HEALTH STATUS ASSESSMENT METHODS FOR ADULTS: Past Accomplishments and Future Challenges

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