Assessing the true learning needs of health care professionals in epilepsy care

Hayes, Sean M.; J, Melin; Dupuis, Martin; Murray, Suzanne; Labiner, David M.

doi:10.1016/j.yebeh.2007.08.006

Cited by 20 publications

(8 citation statements)

References 1 publication

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“…Research suggests that primary care and specialist physicians alike have significant gaps in knowledge about epilepsy [e.g., 33-36]. Further, many types of health professionals, in addition to physicians, are involved in epilepsy care.…”

Section: Improving Health Carementioning

confidence: 99%

Epilepsy across the spectrum: Promoting health and understanding.

England

Liverman

Schultz

et al. 2012

Epilepsy & Behavior

468

328

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Approximately 1 in 26 people will develop epilepsy at some point in their lives. Although epilepsy is one of the nation’s most common neurological disorders, public understanding is limited. A complex spectrum of disorders, epilepsy affects an estimated 2.2 million people in the United States. Living with epilepsy is about more than just seizures; it is often defined in practical terms, such as challenges, uncertainties, and limitations in school, social situations, employment, driving, and independent living. People with epilepsy are also faced with health and community services that are fragmented, uncoordinated, and difficult to obtain. The Institute of Medicine’s report, Epilepsy Across the Spectrum: Promoting Health and Understanding [1], examines the public health dimensions of epilepsy with a focus on: (a) public health surveillance and data collection and integration; (b) population and public health research; (c) health policy, health care, and human services; and (d) education for providers, people with epilepsy and their families, and the public. The report’s recommendations range from the expansion of collaborative epilepsy surveillance efforts, to the independent accreditation of epilepsy centers, to the coordination of public awareness efforts, to the engagement of people with epilepsy and their families in education, dissemination, and advocacy activities. Given the current gaps in epilepsy knowledge, care, and education, there is an urgent need to take action—across multiple dimensions—to improve the lives of people with epilepsy and their families. The realistic, feasible, and action-oriented recommendations in this report can help enable short- and long-term improvements for people with epilepsy.

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Section: Improving Health Carementioning

confidence: 99%

Epilepsy across the spectrum: Promoting health and understanding.

England

Liverman

Schultz

et al. 2012

Epilepsy & Behavior

468

328

View full text Add to dashboard Cite

show abstract

“…A recent survey of epileptologists, neurologists and professionals in epilepsy care found a lack of awareness about social services as the most commonly identified management barrier to optimal epilepsy care (201). The three greatest healthcare system barriers to positive patient outcomes identified in the survey were: lack of public awareness of epilepsy, availability of social services and the cost of anti-epileptic drugs (201). The authors concluded that persons with epilepsy need better social support systems to address health insurance needs and remove economic barriers to care.…”

Section: Human Capital (Education Employment Income)mentioning

confidence: 99%

“…The social variables have their own relationship with quality of life and thus should be considered by clinicians who focus on the biological-biomedical components of epilepsy treatment. A recent survey of epileptologists, neurologists and professionals in epilepsy care found a lack of awareness about social services as the most commonly identified management barrier to optimal epilepsy care(305).Many of the social variables remained significant in the full biopsychosocial model. The associations were moderated but remained significant.…”

mentioning

confidence: 99%

The biopsychosocial model and quality of life in persons with active epilepsy

Elliott

Richardson

2014

Epilepsy & Behavior

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“…However, many current programs are designed and managed by epileptologists, who may have different learning needs than general neurologists. It should be remembered, as exemplified by a survey carried out by the American Epilepsy Society among neurologists and epileptologists, that professionals have time constraints for their continuing education that must be accommodated by their educational activities [13].…”

Section: Discussionmentioning

confidence: 99%