Assessment of Caregiving Burden of Family Caregivers of Advanced Cancer Patients and Their Satisfaction with the Dedicated Inpatient Palliative Care Provided to Their Patients: A Cross-Sectional Study from a Tertiary Care Centre in South Asia

Kondeti, Ajay Kumar; Yadala, Ambedkar; Lakshmi, N.; Prakash, Charu; Palat, Gayatri; Varthya, Shoban Babu

doi:10.31557/apjcp.2021.22.7.2109

Cited by 12 publications

(13 citation statements)

References 19 publications

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“…A national survey study that included 8,935 Japanese cancer patients showed that younger patients were significantly less satisfied with positive communication with medical staff and with items related to their survivorship in post-treatment care ( 16 ). In addition, for patients with rare cancers, delays and extensions in diagnosis were often associated with reduced trust in the professionalism of the patient’s doctor ( 17 ).…”

Section: Introductionmentioning

confidence: 99%

Unmet supportive care needs and associated factors: Evidence from 4195 cancer survivors in Shanghai, China

Chen

et al. 2022

Front. Oncol.

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BackgroundCancer survivors at different stages of life often have different needs that make it challenging for services to provide satisfactory care. Few studies have considered whether services are truly meeting the needs of cancer patients by exploring and identifying their perspectives on unmet needs.ObjectiveThe aim of this study was to identify the unmet needs of cancer survivors and to further determine the potential impact of socio-demographic factors.MethodsA cross-sectional study that included 4195 cancer patients was conducted in Shanghai, China. Using Maslow’s hierarchy of needs theory as a conceptual framework, the questionnaire included five dimensions: information, life and finances, continuing care, emotions, and self-actualization. Correlation analysis and ordered logistic regression analysis was used to explore the relationship between demographic sociological factors and unmet needs for supportive care.ResultsThe most common unmet supportive care needs include information needs (2.91 ± 1.32), self-actualization needs (2.69 ± 1.32) and continuing care needs (2.59 ± 1.30). Unmet needs for life and finances were more pronounced among cancer participants in the 45-69 age group. After adjusting for confounders, we found that each 6-month increase in the time since diagnosis was associated with a 0.8% (OR: 0.992, 95% CI: 0.985-0.998) reduction in high need for continuing care and a 0.9% (OR:0.991, 95% CI: 0.983-0.999) reduction in high need for self-actualization, respectively.ConclusionsInformation needs are the most important concern among the diverse unmet needs of cancer survivors. Time since diagnosis is associated with unmet supportive care needs of cancer survivors. The findings highlight the large gap between actual health services and patients’ unmet need for supportive care, which will provide the basis for a patient-centered supportive care system for cancer survivors.

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Section: Introductionmentioning

confidence: 99%

Unmet supportive care needs and associated factors: Evidence from 4195 cancer survivors in Shanghai, China

Chen

et al. 2022

Front. Oncol.

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“…While family caregivers played a crucial role as a bridge between patients and healthcare professionals[28], they also affected patient satisfaction model structure severely. [29] As unprofessional family caregivers, taking care of the patient caused extra burden and anxiety to the family care givers that led to dissatisfaction [30]. As a result, the lowest satisfaction scores were obtained for questions requiring assistance from family caregivers, such as "assistance with toileting or bedpan usage", "food", "complexity of admission/discharge process", and "clarity of discharge notes/expense list".…”

Section: Contribution Of Family Caregiversmentioning

confidence: 99%

“…Previous studies mentioned that when patients received assistance from non-professionals, such as relatives or friends, their satisfaction was noticeably lower [27]. Conversely, if patients received support from professionals, they tended to be more satis ed, even if additional fees were incurred for care workers services [30]. Also, previous studies have indicated that patients who initially claimed they didn't need help could experience heightened satisfaction when assistance was provided by medical staff [32,33].…”

Section: Relationships Among Factors Contributing To Inpatient Satisf...mentioning

confidence: 99%

Inpatient satisfaction survey based on national standard satisfaction questionnaire conducted in a tertiary hospital in Shenyang, China

Xintong,

Moriyama,

Tao

et al. 2024

Preprint

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Background In 2019, China released its first standardized patient satisfaction survey questionnaire and conducted a nationwide survey. However, due to significant developmental disparities among regions, the applicability of this national standard questionnaire remains unverified at the individual healthcare institution level. Furthermore, previous satisfaction studies often focused on influencing factors, with limited exploration into the relationships between these factors and their roles. This study aims to validate the national standard satisfaction questionnaire in a tertiary general hospital in Northeast China. Utilizing the questionnaire's inherent structure, the research investigates factors influencing inpatient satisfaction and explores the relationships and determinative roles of these factors. Method This research employed a cross-sectional survey, utilizing the national standard satisfaction questionnaire, at a tertiary comprehensive hospital in Shenyang, Northeast China. The survey links were distributed through short message service (SMS) to inpatients between April and July 2022, with participation being voluntary. A total of 850 responses were gathered, resulting in a response rate of 5.51%. Result The results of the Confirmatory Factor Analysis (CFA) demonstrate a well-fitting model for the questionnaire (c2/df = 2.931). Factors such as “Doctor communication”, “Medicine information”, “Discharge instructions”, “food”, and “medical staff’s attitudes towards patients’ visitors” emerged as significant influencing factors of inpatient satisfaction (all, p < 0.05). Additionally, “Gender” and Activities of Daily Living (ADL) level impacted patient satisfaction levels (both, p < 0.001) . Further Chi-squared Automatic Interaction Detector (CHAID) analysis indicates that the key determinants of variations in patient satisfaction are ADL level and "Medication Information"(both, p < 0.001) . Conclusion The satisfaction level in hospitals is primarily determined by the communication skills between doctors and patients, and it could be enhanced by providing professional assistance to patients with higher activities of daily living (ADL) levels and offering comprehensive information about medicines to all patients. Satisfaction levels exhibit baseline variations among different populations, such as males and females. The involvement of family caregivers has impacted the structure of the satisfaction model, along with various other aspects.

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“…All 49 diabetes-related studies were related to aspects of therapeutic management, with six studies additionally assessing experiences related to screening for complications [12][13][14][15][16][17]. While most cancer studies were related to diagnosis (n = 15) or treatment (n = 24), nine focused on palliative care and end of life [18][19][20][21][22][23][24][25][26], two on survivorship [27,28] and one on the assessment of the informed consent process for a trial [29], Table 4. Of the 49 studies on diabetes mellitus, only two focused on type 1 diabetes with both interviewing caregivers of affected children.…”

Section: Plos Onementioning

confidence: 99%

“…But this also is helping because pain is the main thing now" [24]. Another study which used a validated tool (FAMCARE-2) to measure satisfaction with advanced cancer care, reported high satisfaction of family caregivers with inpatient palliative care at a tertiary government centre in south India, especially in terms of pain and other physical symptoms [26].…”

Section: Plos Onementioning

confidence: 99%

Patient and caregiver perspectives of select non-communicable diseases in India: A scoping review

Nila,

Dutta,

Prakash

et al. 2024

PLoS ONE

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Background and objectives Patient-reported measures of encounters in healthcare settings and consideration of their preferences could provide valuable inputs to improve healthcare quality. Although there are increasing reports of user experiences regarding health care in India in recent times, there is a lack of evidence from Indian healthcare settings on the care provided for patients with chronic diseases. Methods We selected diabetes mellitus and cancer as representatives of two common conditions requiring different care pathways. We conducted a scoping review of studies reporting experiences or preferences of patients/caregivers for these conditions, in PubMed, Global Index Medicus and grey literature, from the year 2000 onwards. Both published and emergent themes were derived from the data and summarised as a narrative synthesis. Results Of 95 included studies (49 diabetes, 46 cancer), 73% (65) were exclusively quantitative surveys, 79% included only patients (75), and 59.5% (44) were conducted in government centres. Studies were concentrated in a few states in India, with the underrepresentation of vulnerable population groups and representative studies. There was a lack of standardised tools and comprehensive approaches for assessing experiences and preferences of patients and caregivers, concerning diabetes and cancers in India. The commonest type of care assessed was therapeutic (74), with 14 cancer studies on diagnosis and nine on palliative care. Repeated visits to crowded centres, drug refill issues, unavailability of specific services in government facilities, and expensive private care characterised diabetes care, while cancer care involved delayed diagnosis and treatment, communication, and pain management issues. Conclusions There is a need for robust approaches and standardised tools to measure responsiveness of the healthcare system to patient needs, across geographical and population subgroups in India. Health system reforms are needed to improve access to high-quality care for treatment and palliation of cancer and management of chronic diseases such as diabetes.

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Assessment of Caregiving Burden of Family Caregivers of Advanced Cancer Patients and Their Satisfaction with the Dedicated Inpatient Palliative Care Provided to Their Patients: A Cross-Sectional Study from a Tertiary Care Centre in South Asia

Cited by 12 publications

References 19 publications

Unmet supportive care needs and associated factors: Evidence from 4195 cancer survivors in Shanghai, China

Unmet supportive care needs and associated factors: Evidence from 4195 cancer survivors in Shanghai, China

Inpatient satisfaction survey based on national standard satisfaction questionnaire conducted in a tertiary hospital in Shenyang, China

Patient and caregiver perspectives of select non-communicable diseases in India: A scoping review

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