Assessment of quality of life among parents of children with congenital heart disease using WHOQOL-BREF: a cross-sectional study from Northwest Saudi Arabia

Khoshhal, Saad; Al-Harbi, Khaled M.; Al-Mozainy, Ibrahim; Abouelatta, Ossama B.; Aselan, Adnan; Allugmani, Mohammad D.; Salem, Sherif S.; El‐Agamy, Dina S.; Abo‐Haded, Hany M.

doi:10.1186/s12955-019-1249-z

Cited by 13 publications

(16 citation statements)

References 32 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…These studies support the results of the study. Although there are many studies in the literature that evaluate the quality of life of parents, almost all of these studies are about parents with any disease or disorder in their children (20)(21)(22)(23). The importance of health-related quality of life is increasing for health professionals and researchers (23).…”

Section: Discussionmentioning

confidence: 99%

“…Although there are many studies in the literature that evaluate the quality of life of parents, almost all of these studies are about parents with any disease or disorder in their children (20)(21)(22)(23). The importance of health-related quality of life is increasing for health professionals and researchers (23). From this perspective, these study findings are important in terms of covering all adolescents and parents without distinguishing any disease status.…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Ergen-Ebeveyn Çatişmasinin Ebeveynleri̇n Yaşam Kali̇tesi̇ Ve Kaygi Düzeyleri̇ne Etki̇leri̇

BAŞOĞUL¹,

Zengin²

2023

gsbd

View full text Add to dashboard Cite

Bu çalışma ergen-ebeveyn çatışmasının ebeveynlerin kaygı düzeyleri ile yaşam kalitelerine etkisini belirlemek amacıyla yapılmıştır. Araştırma tanımlayıcı, kesitsel, ilişkisel tasarımda gerçekleştirildi. Verilerin toplanmasında sosyo-demografik bilgi formu, Durumluk-Süreklilik Kaygı Ölçeği (DSKÖ), Dünya Sağlık Örgütü Yaşam Kalitesi Ölçeği Kısa Formu (DSÖYKÖ-KISA) olmak üzere 3 form kullanıldı. Verilerin değerlendirilmesinde tanımlayıcı istatistikler, Mann Whitney U ve Kruskal Wallis testleri ve Pearson korelasyon testi kullanıldı. Ebeveynlerin %96.1’inin ergenlik dönemindeki çocuklarıyla çatışma yaşadıkları belirlenmiştir. Ebeveynlerin süreklilik kaygı puanlarının ebeveynlerin mesleği, ailenin ekonomik durumu ve ergenle çatışma yaşama durumuna göre istatistiksel olarak anlamlı bir farklılık gösterdiği belirlenmiştir. Çocuklarıyla çatışma yaşadığını bildiren ebeveynlerin kaygı puan ortalamaları ile bedensel, ruhsal, sosyal ve çevre alanları yaşam kalitesi puan ortalamaları arasında negatif yönlü ve istatistiksel olarak anlamlı bir ilişki olduğu saptanmıştır. Bu araştırmanın sonucunda ebeveynlerin tamamına yakınının ergen çocuklarıyla çatışma yaşadıkları saptanmıştır. Çatışma yaşayan ebeveynlerin kaygı düzeylerinin daha yüksek olduğu ve bu kaygının tüm alanlarda yaşam kalitesini olumsuz etkilediği belirlenmiştir. Hemşireler için riskli gruplar içerisinde yer alan ergenler ve ebeveynlerin etkileşiminin sağlığın geliştirilmesi ve birincil koruma kapsamında değerlendirilmesi önemlidir.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Ergen-Ebeveyn Çatişmasinin Ebeveynleri̇n Yaşam Kali̇tesi̇ Ve Kaygi Düzeyleri̇ne Etki̇leri̇

BAŞOĞUL¹,

Zengin²

2023

gsbd

View full text Add to dashboard Cite

show abstract

“…The quality of life was assessed by a reliable and valid QoL measure known as World Health Organization quality of life (WHOQOL-BREF). 26 , 27 This tool is a standard measure to assess various domains of QoL namely physical, social, psychological, and environmental. The measure is comprised of 26 items which are distributed over five domains excluding two questions which assess general health status and overall satisfaction with life.…”

Section: Methodsmentioning

confidence: 99%

Quality of Life and Adherence to Healthcare Services During the COVID-19 Pandemic: A Cross-Sectional Analysis

Hassan¹,

Zahra²,

Parveen³

et al. 2022

PPA

View full text Add to dashboard Cite

Purpose To determine the relationship of various domains of quality of life (QoL) with healthcare adherence during the COVID-19 pandemic in Saudi Arabia. Methods The study sample comprised 795 participants among which 203 had a current diagnosis of any major NCDs, including cardiovascular diseases, diabetes mellitus, asthma, chronic pulmonary diseases, and chronic psychiatric illnesses and a control group of 592 participants who had no NCD. Participants completed an online survey questionnaire which obtained data on socio-demographic variables, types of NCDs, and healthcare adherence during the year 2020, the period during which Saudi Arabia underwent the first two waves of the COVID-19 pandemic. World Health Organization Quality of Life (WHOQOL-BREF) assessed the QoL in four domains physical, psychological, social and environmental and used standard scores in the analysis. GraphPad Prism 5 and SPSS 25V were employed for the statistical analysis. Bar graphs and frequency distribution tables present descriptive data. Bivariate and multivariate logistic regression analyses were computed to determine the significance of the relationship between QoL and healthcare adherence. Results Almost equal proportions of participants with NCDs (n=109/203; 54%) and without NCDs (n=327/592; 55%) demonstrated nonadherence to their regular healthcare during the COVID-19 pandemic (χ2=0.14; p=0.71). Patients with NCDs experienced lower quality of life in the psychological, social and environmental domains of QoL (p<0.05). Results from the multivariate regression analysis showed that female gender (AOR=1.52; p<0.05) psychological QoL (AOR=1.99; p<0.05), social QoL (AOR=1.98; p<0.05) and environmental QoL (AOR=1.95; p<0.05) significantly relate with adherence to healthcare. Conclusion Psychological, social and environmental may influence healthcare adherence among patients with NCDs during pandemics and should be focused on while devising future healthcare policy and interventions.

show abstract

“…The other study, also from Saudi Arabia, assessed the QoL among parents of children with CHD but did not collect data from the children themselves. Findings revealed low QoL scores that are associated with the severity of the disease [ 19 ]. There is a need to contribute to the growing body of knowledge on QoL in congenital cardiology using data from under-researched populations.…”

Section: Introductionmentioning

confidence: 99%

Quality of life in Arab children with congenital heart disease

Dardas,

Pan,

Hamdan

et al. 2024

PLoS ONE

View full text Add to dashboard Cite

Background and purpose Management strategies for children with congenital health diseases (CHDs) should encompass more than just the medical aspect of the disease and consider how heart diseases affect their everyday activities and, subsequently, their quality of life (QoL). Global studies witnessed a greater emphasis on studying the QoL associated with CHD. However, there is still a great lag in such data in the Arab region. The purpose of this study was to evaluate QoL in children with CHD using an Arab sample from Jordan. The specific objectives were twofold: (1) to contrast the assessments of children’s QoL reported by their parents with those reported by the children themselves, and (2) to assess the factors that influence the QoL of children with CHD. Methods A total of 79 children aged 2–18 with a confirmed diagnosis of CHD were included in the study, along with their mothers. Of them, 38.0% were girls, 67.1% were diagnosed with non-cyanotic CHD, 58.2% had a severe CHD, 92.4% had undergone at least one operation, 81.0% had repaired defects, 13.9% underwent palliated procedures, and 24.1% were admitted to a neonatal intensive care unit after delivery. The Pediatric Quality of Life Inventory was used to assess QoL of children with CHD. Both children’s and parents’ reports of QoL were analyzed using paired-sample t-tests, ANOVAs, and multiple linear regression. Results Older children reported significantly lower QoL scores, whereas there were no differences in parents-reported QoL scores across different children age groups. There was a divergence in perceptions of QoL between parents-reported and children-reported scores with parents reporting significantly lower scores. The children-reported QoL in this study seemed to be significantly associated with their gender, age, and the presence of learning difficulties, whereas the parent-reported QoL was only associated with the presence of learning difficulties. Conclusions Responses from both children and parents need to be considered to understand the similarities and differences between them and to provide further insight into the optimal way to help children with CHD effectively navigate the transition into adulthood. Future research studies of outcomes for survivors of children with CHD are needed to identify high-risk survivors for worse psychosocial functioning and assess prevention measures and treatment interventions to improve their QoL.

show abstract

Assessment of quality of life among parents of children with congenital heart disease using WHOQOL-BREF: a cross-sectional study from Northwest Saudi Arabia

Cited by 13 publications

References 32 publications

Ergen-Ebeveyn Çatişmasinin Ebeveynleri̇n Yaşam Kali̇tesi̇ Ve Kaygi Düzeyleri̇ne Etki̇leri̇

Ergen-Ebeveyn Çatişmasinin Ebeveynleri̇n Yaşam Kali̇tesi̇ Ve Kaygi Düzeyleri̇ne Etki̇leri̇

Quality of Life and Adherence to Healthcare Services During the COVID-19 Pandemic: A Cross-Sectional Analysis

Quality of life in Arab children with congenital heart disease

Contact Info

Product

Resources

About