Assessment of the Psychometric Properties of the Family Management Measure

Knafl, Kathleen A.; Deatrick, Janet A.; Gallo, Agatha M.; Dixon, Jane; Grey, Margaret; Knafl, George J.; O’Malley, Jean P.

doi:10.1093/jpepsy/jsp034

Cited by 147 publications

(222 citation statements)

References 36 publications

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“…researcher alone [22][23][24]. Modifications were therefore made by two researchers PH & LW and a clinician GV; some items were referred to the eRAPID project management team, clinical team and patient advisory group.…”

Section: Discussionmentioning

confidence: 99%

“…However, by the final round saturation was reached, as we were not discovering any new problems [21], and amendments were minimal. As others have suggested, it would be useful to engage in a dialog with those in the field to work towards an agreed best practice in cognitive interviewing [20,23,24]. Certainly, a balance must be achieved in terms of an exploratory or confirmatory approach to ensure that as many comprehension issues as possible are addressed, without focusing on irrelevant minutiae.…”

Section: Discussionmentioning

confidence: 99%

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Asking the right questions to get the right answers: using cognitive interviews to review the acceptability, comprehension and clinical meaningfulness of patient self-report adverse event items in oncology patients

et al. 2016

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Background: Standardized reporting of treatment-related adverse events (AE) is essential in clinical trials, usually achieved by using the National Cancer Institute (NCI) Common Terminology Criteria for Adverse Events (CTCAE) reported by clinicians. Patient-reported adverse events (PRAE) may add value to clinician assessments, providing patient perspective on subjective toxicity. We developed an online patient symptom report and self-management system for real-time reporting and managing AE during cancer treatment integrated with electronic patient records (eRAPID). As part of this program we developed a patient version of the CTCAE (version 4.0), rephrasing terminology into a self-report format. We explored patient understanding of these items via cognitive interviews. Material and method: Sixty patients (33 female, 27 male) undergoing treatment were purposively sampled by age, gender and tumor group (median age 61.5, range 35-84, 12 breast, 12 gynecological, 13 colorectal, 12 lung and 11 renal). Twenty-one PRAE items were completed on a touch-screen computer. Subsequent audio-recorded cognitive interviews and thematic analysis explored patients' comprehension of items via verbal probing techniques during three interview rounds (n ¼ 20 patients/ round). Results: In total 33 item amendments were made; 29% related to question comprehension, 68% response option and 3% order effects. These amendments to phrasing and language improved patient understanding but maintained CTCAE grading and key medical information. Changes were endorsed by members of a patient advisory group (N ¼ 11). Conclusion: Item adaptations resulted in a bank of consistently interpreted self-report AE items for use in future research program. In-depth analysis of items through cognitive interviews is an important step towards developing an internationally valid system for PRAE, thus improving patient safety and experiences during cancer treatment.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Asking the right questions to get the right answers: using cognitive interviews to review the acceptability, comprehension and clinical meaningfulness of patient self-report adverse event items in oncology patients

et al. 2016

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“…Moreover, mean effort significantly decreases as would be expected with increased CFS (estimated slope −0.14, ( ) The purpose of the parent study [11] that collected these data was to develop an instrument measuring family management of childhood chronic conditions. CFS was collected for construct validity purposes, and it was hypothesized that negative measures of family management like effort would decrease with increased CFS.…”

Section: Adaptive Analyses Of Data For Partnered Mothersmentioning

confidence: 99%

Adaptive Fractional Polynomial Modeling

Knafl¹

2018

OJS

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Regression analyses reported in the applied research literature commonly assume that relationships are linear in predictors without assessing this assumption. Fractional polynomials provide a general approach for addressing nonlinearity through power transforms of predictors using real valued powers. An adaptive approach for generating fractional polynomial models is presented based on heuristic search through alternative power transforms of predictors guided by k-fold likelihood cross-validation (LCV) scores and controlled by tolerance parameters indicating how much a reduction in the LCV score can be tolerated at given stages of the search. The search optionally can generate geometric combinations, that is, products of power transforms of multiple predictors, thereby supporting nonlinear moderation analyses. Positive valued continuous outcomes can be power transformed as well as predictors. These methods are demonstrated using data from a study of family management for mothers of children with chronic physical conditions. The example analyses demonstrate that power transformation of a predictor may be required to identify that a relationship holds between that predictor and an outcome (dependent or response) variable. Consideration of geometric combinations can identify moderation effects not identifiable using linear relationships or power transforms of interactions. Power transformation of positive valued continuous outcomes along with their primary predictors can resolve model assumption problems.

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“…However, due to different definitions of diseases and the absence of a national database, determining the absolute number of children with chronic disease is rather difficult (1,2). Overall, it is estimated that around 18% of children, from birth to age 18, experience some kind of chronic physical, developmental, behavioral, and emotional illnesses, and generally need more health services than others (3). In Iran, there are no accurate statistics on the prevalence of chronic diseases, but as a sample, the prevalence of asthma as the most common chronic health problem in children is 10 to 15% (2).…”

Section: Introductionmentioning

confidence: 99%

“…Thus, although the translation of the tool with the observance of cultural adaptation is a complicated process, it increases the quality of work and allows the comparison of the results in the culture of the target community with the culture of the source community (13). One of the reliable and valid tools used to identify family management in childhood chronic disease is Family Management Measure (FaMM) which reliability and validity have been reported as good in studies outside of Iran (3,5,9). This tool was first designed and measured by Knafl et al with a 2011 study on parents of children with various chronic diseases in the United States, and the results indicated the tool's desired reliability and validity.…”

Section: Introductionmentioning

confidence: 99%

Translation, cultural adaptation and preliminary psychometric evaluation of the “Family Management Measure” among Iranian families with a child with a chronic disease

Mehmannavazan¹,

Hosseini²,

Vartanoosian³

et al. 2018

Electron Physician

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Background: The basis of any research is the use of valid and reliable tools for collecting information. One of the valid and reliable tools used to identify the family management in chronic childhood diseases is "FaMM" which has never been translated and validated in previous research in Iran. Objective: The present study aimed to translate, incorporate cultural adaptation, and determine psychometric features of FaMM among Iranian families with a child with a chronic disease. Methods: This study was conducted using the methodological research approach in Tehran, during 2016-2017. The translation of FaMM was done using "World Health Organization Translation and Cultural Adaptation Guidelines". The preliminary psychometric evaluation of the above tool was performed by determining the validity (face and content validity) and reliability (internal consistency and stability). Data analysis was performed using IBM-SPSS 22. Content validity (CV) was first examined using qualitative and quantitative methods. In the qualitative phase, experts' opinions were received in order to observe grammar, wording, item allocation and scaling. Then, quantitative CV was examined using Content Validity Ratio (CVR) and Content Validity Index (CVI; Scale-CVI /Avg, Scale-CVI/ UA). In order to calculate the internal consistency of the items, Cronbach's alpha coefficient of statements was calculated. Test-retest method was used for determining the stability of the tool, and the obtained scores were compared using ICC. Results: The Persian version of FaMM has conceptual, semantic, idiomatic and by-item equivalence, as well as a desirable preliminary validity and reliability for assessing the management of families with children with chronic disease. The results of CVR determination indicated that all questions were larger than Lawshe's Table number (0.49). The CVI results showed that all questions had a score higher than 0.79, and therefore were recognized as appropriate. In the Scale-CVI /Avg, the score was 0.98 and in the Scale-CVI/ UA, the score was 0.80. The Cronbach's alpha value for the scales was obtained in the range of 0.55 to 0.87 and the ICC of scales ranged from 0.71 to 0.94. Electronic physician Page 6943Conclusion: The translation and cultural adaptation process of FaMM led to the design of a tool adapted to Iranian culture which can be applied in this context, and after the implementation of the final psychometric evaluation process, comparing data on how families with a child with chronic disease are managed with other communities can be possible.

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Assessment of the Psychometric Properties of the Family Management Measure

Abstract: Results support FaMM's; reliability and validity, indicating it performs in a theoretically meaningful way and taps distinct aspects of family response to childhood chronic conditions.

Cited by 147 publications

References 36 publications

Asking the right questions to get the right answers: using cognitive interviews to review the acceptability, comprehension and clinical meaningfulness of patient self-report adverse event items in oncology patients

Asking the right questions to get the right answers: using cognitive interviews to review the acceptability, comprehension and clinical meaningfulness of patient self-report adverse event items in oncology patients

Adaptive Fractional Polynomial Modeling

Translation, cultural adaptation and preliminary psychometric evaluation of the “Family Management Measure” among Iranian families with a child with a chronic disease

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