Assessment of the Quality of Patient-Orientated Information on Surgery for Crohn’s Disease on the Internet

Yeung, Trevor M.; Sacchi, Matteo; Mortensen, Neil; Spinelli, Antonino

doi:10.1097/dcr.0000000000000424

Cited by 18 publications

(20 citation statements)

References 10 publications

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“…For example, women undergoing repeat caesarean sections frequently used the internet for decision-making if vaginal birth after caesarean section is an available option [10]. Data are also available regarding the preoperative setting before orthopaedic surgery [11], in Crohns disease [12], or oncology [8]. …”

Section: Introductionmentioning

confidence: 99%

Factors influencing the level of patients using the internet to gather information before anaesthesia: a single-centre survey of 815 patients in Switzerland

2017

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BackgroundAim of this study was to identify factors associated with patients using the internet to find information about their upcoming surgery in general, and more specifically about anaesthesia.MethodsWith Ethics committee approval, 1000 consecutive patients seen before elective surgery in the anaesthesia preoperative clinic of a Swiss Level 2 hospital were asked to complete a questionnaire. Primary outcome were patients using the internet to gather any medical information related to their upcoming hospital stay, secondary outcome patients using the internet to gather information regarding the upcoming anaesthesia. Multiple regression was performed to identify independent factors associated with internet use.ResultsEighty-two percent of the patients (n = 815) participated. 97% of those were ASA physical status 1 or 2; 83% (n = 676) had experience with previous anaesthetics, 86% (n = 700) reported to use the internet in general. Overall, about one-third of the participants used the internet to learn more about their medical condition, 26% regarding their upcoming surgical procedure. Only 7% (n = 55) obtained information about the anaesthetic. In multivariate analyses, factors associated with internet use were generally doing so, and planned moderate compared to minor surgery; not using the internet was associated with previous anaesthetic experience. Of those who did not use the Internet to learn about their anaesthetic, 34% indicated that they would have visited a trusted website.ConclusionOnly few patients used the internet to obtain information about their upcoming procedure and the anaesthetic part played an even smaller role. However, many patients would have appreciated guidance to find trustworthy internet sites.Trial registrationGerman Clinical Trials Register (DRKS00005434; date of registration: 27th December 2013); date of enrolment of first patient: 1st August 2013; study retrospectively registered.

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Section: Introductionmentioning

confidence: 99%

Factors influencing the level of patients using the internet to gather information before anaesthesia: a single-centre survey of 815 patients in Switzerland

2017

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“…Our study relied on patient input to inform Internet search simulations in an attempt to accurately identify the most visible websites providing information on OAB to patients . In contrast to studies of patient‐directed websites that have excluded advertisements from their analyses, we opted to include these websites as they form part of the information to which patients are exposed. Patients who are not familiar with OAB or medical websites may have difficulty recognizing sponsorships or advertisements, rendering their analysis valuable.…”

Section: Discussionmentioning

confidence: 99%

“…High‐quality patient‐oriented material therefore has the potential to improve patients’ understanding of medical conditions, increase patient adherence to therapy, and empower patients to participate in medical decisions . However, these benefits are contingent on the quality and readability of the content of patient‐directed websites, which are poorly regulated and may be of variable quality …”

Section: Introductionmentioning

confidence: 99%

“…7 However, these benefits are contingent on the quality and readability of the content of patient-directed websites, which are poorly regulated and may be of variable quality. [8][9][10] We therefore sought to comprehensively analyze OAB Internet content by objectively measuring individual website content quality and readability. We hypothesized that a minority of websites would be of high quality and readability and that HONcode certification status would be a associated with higher overall quality.…”

Section: Introductionmentioning

confidence: 99%

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Patient‐targeted websites on overactive bladder: What are our patients reading?

Clancy

Hickling

Didomizio

et al. 2017

Neurourology and Urodynamics

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“…Links in order of search results Category sites about surgical treatment for Crohn's disease only half of them provided details on treatment options and only one was recognized as informative [16].…”

Section: Lpmentioning

confidence: 99%

Sources of medical information of patients referred to colorectal surgery outpatient clinic for hemorrhoidal disease

Spychalski¹,

Perdyan²,

Łaski³

et al. 2019

Eur J Trans Clin Med

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Background:We surveyed patients with hemorrhoids about their behavior regarding searching for information about that disease and confronted it with data obtained from Google Trends website and Google searches. We aimed to determine sources of information on hemorrhoids used by patients. Secondary aim was to assess the quality of information provided by Internet in particular. Materials and methods: We collected 78 surveys from patients of the outpatient surgical clinic at Medical University of Gdańsk, in which we asked about sources of information about hemorrhoids. We used Google Trends to analyze most often used search queries associated with that topic. In result, we analyzed the content of top 10 Google search results of that queries in order to verify reliability. Results: Over 80% of surveyed patients looked for information about that disease online, 50% of whom were satisfied with the quality of information obtained. Our Google Trends analysis showed that term hemorrhoids has overwhelming prevalence in comparison to remaining terms. Analysis of top 10 Google search results showed that 7 in 10 organic links lead to websites with professional information about hemorrhoids. Conclusions: Patients use the Internet as a source of knowledge about hemorrhoids and find it satisfactory. Moreover, our research indicates that this information is reliable. Relative popularity of queries over monthsPanel A Appendix for table 1. Abbreviated results of the survey Graph 1: Panel A. Relative popularity of queries over the months of the year 2006-2018

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Assessment of the Quality of Patient-Orientated Information on Surgery for Crohn’s Disease on the Internet

Abstract: The quality of patient information on surgery for Crohn's disease is highly variable and generally poor. There is potential for the Internet to provide valuable information, and clinicians should identify high-quality Web sites to guide their patients.

Cited by 18 publications

References 10 publications

Factors influencing the level of patients using the internet to gather information before anaesthesia: a single-centre survey of 815 patients in Switzerland

Factors influencing the level of patients using the internet to gather information before anaesthesia: a single-centre survey of 815 patients in Switzerland

Patient‐targeted websites on overactive bladder: What are our patients reading?

Sources of medical information of patients referred to colorectal surgery outpatient clinic for hemorrhoidal disease

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