Attention Model for Chronic Conditions: Blind Women and Their Sons

Abstract

It aimed to analyze the assistance to the blind woman during prenatal care, childbirth, and childcare in light of the Model of Attention to Chronic Conditions. This is a descriptive, qualitative study. A collection was done through semi-structured interview and analysis of the speeches, conducted by content technique proposed by Bardin, emerging from the screening process. Ten mothers aged between 21 and 42 years old participated in the study. Three categories were identified: prescriptive and focused attention on the disease; for collaborative and focused attention on the person; uniprofessional attention to the multidisciplinary attention; establishment of relationship between the family health strategy and the specialized outpatient care. The women experienced chronic conditions according to the Model in addition to blindness. Study results show that for blind women, attention in the health service has weaknesses in service, both in the prenatal period and childbirth, and in childcare. It deems necessary transformation in assisting the blind woman.

Being a parent's eyes and ears: emotional literacy and empathy of children whose parents have a sensory disability

“…The findings and conclusions of the study should be treated with due caution due to several limitations, first among which is the small sample, the result of the tremendous difficulties locating appropriate participants. At the same time, it should be noted that similar studies dealing with the subject of parents with visual or auditory disability also had a small study population – 40 adolescents of blind parents and 42 adolescents of sighted parents (Duvdevany, Moin, and Yahav, ), 10 blind mothers (de Oliveira, de Carvalho, Pagliuca, et al., ), 4 blind mothers and 5 blind fathers of sighted children (Cezario, Oliveira, Sousa, et al., ), 5 blind mothers of sighted children (Senju, Tucker, Pasco, et al., ), 10 hearing adolescents of deaf parents (Hadjikakou, Christodoulou, Hadjidemetri, et al., ), case study of deaf parents (Cramér‐Wolrath, ), and 12 parents of hearing children (Levinger and Orlev, ). Additionally, it is possible that the consent of parents to their children's participation in the study might indicate certain characteristics that exist for them in contrast to parents who did not agree to this and therefore do not necessarily represent the entire sector.…”

Challenges Faced by Mothers With Visual Impairment From the Preconception Period Through the Postpartum Period

“…14 Health care professionals caring for women with VI demonstrate prejudice about their fitness as mothers of VI, can focus more on the disability than routine aspects of care, and lack knowledge and experience regarding disability care. 15,16 The literature on the difficulties experienced by women with VI in becoming parents is limited, and studies often focus on childcare. There is a need to understand women's experience with VI across the continuum of care from preconception to the postpartum period.…”

“…An additional barrier for disabled women is the lack of information provided preconception about how their disability will affect their pregnancy 14 . Health care professionals caring for women with VI demonstrate prejudice about their fitness as mothers of VI, can focus more on the disability than routine aspects of care, and lack knowledge and experience regarding disability care 15,16 . The literature on the difficulties experienced by women with VI in becoming parents is limited, and studies often focus on childcare.…”

Blind parents and nutrition of children: experiences and care

“…This happens because the sensory impairment causes the realization of such care in a proper and safe way to become very precarious. In addition, they used the social support network as a major source of guidance and assistance in situations that required the use of vision, such as identifying whether a child was sick and administering medications to the children (3)(4)(5) .…”