Bedside information technology to support patient-centered care

Caligtan, Christine; Carroll, Diane L.; Hurley, Ann C.; Gersh-Zaremski, Ronna; Dykes, Patricia C.

doi:10.1016/j.ijmedinf.2011.12.005

Cited by 60 publications

(52 citation statements)

References 24 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…[29][30][31][32][33][34][35][36] There is still only a rudimentary understanding of how PHRs can contribute to improving inpatient experience and increasing patient engagement in the hospital setting. [37] 5.1 Implications…”

Section: Discussionmentioning

confidence: 99%

Patient Experiences Using an Inpatient Personal Health Record

Woollen¹,

Prey²,

Wilcox³

et al. 2016

Appl Clin Inform

View full text Add to dashboard Cite

SummaryObjective: To investigate patients' experience using an inpatient personal health record (PHR) on a tablet computer to increase engagement in their hospital care. Methods: We performed observations and conducted semi-structured interviews with 14 post-operative cardiac surgical patients and their family members who received an inpatient PHR. Themes were identified using an inductive coding scheme. Results: All participants responded favorably to having access to view their clinical information. A majority (85.7%) of participants used the application following an initial training session. Patients reported high satisfaction with being able to view their hospital medications and access educational materials related to their medical conditions. Patients reported a desire to view daily progress reports about their hospital stay and have access to educational information about their postacute recovery. In addition, patients expressed a common desire to view their diagnoses, laboratory test results, radiology reports, and procedure notes in language that is patient-friendly. Conclusion:Patients have unmet information needs in the hospital setting. Our findings suggest that for some inpatients and their family members, providing personalized health information through a tablet computer may improve satisfaction, decrease anxiety, increase understanding of their health conditions, and improve safety and quality of care. BackgroundBeing a patient in the hospital is an anxiety-inducing experience. Poor communication and lack of access to information can have detrimental effects on a patient's psychological wellbeing and coping abilities [1][2][3][4][5]. Policymakers [6, 7] and patient advocates [8,9] are increasingly focusing on this problem. This study investigates how an inpatient personal health record (PHR) may help address the information needs of patients and improve their engagement and experience in the hospital.Provision of medical information and education about care can allay a patient's uncertainty and stress [10][11][12][13][14][15]. Further, sharing information has been shown to reduce patient requests for clinicians' time, foster a sense of control and empowerment while promoting self-efficacy and ownership of illness [16][17][18], and lead to increased participation as an informed partner in making health decisions [19][20][21][22]. Previous research suggests that patients want to use PHRs and believe that they will be valuable [23]. Moreover, patients believe that their adherence to treatment regimens will improve if they have the opportunity to read and understand their health information [24,25]. However, patients are not typically given the opportunity to review their health information in the hospital. For example, in a survey of hospitalized patients conducted by Cumbler and colleagues, 90% of respondents said they wanted to review their hospital medication list for accuracy, but only 28% said they were given the opportunity to do so [26]. Without access to a documented care plan, patients ar...

show abstract

Section: Discussionmentioning

confidence: 99%

Patient Experiences Using an Inpatient Personal Health Record

Woollen¹,

Prey²,

Wilcox³

et al. 2016

Appl Clin Inform

View full text Add to dashboard Cite

show abstract

“…Studies demonstrate how lack of information inhibits patient involvement in treatment (8) and causes communication breakdown (9) . Barriers to effective patient-practitioner communication include conflicting information, lack of mutual understanding, mismatch between needs and provision, lack of aftercare and treatment information (10)(11)(12)(13)(14) .…”

Section: Introductionmentioning

confidence: 99%

Understanding and meeting information needs following unintentional injury: Comparing the accounts of patients, carers and service providers

Këllezi

Beckett

Earthy

et al. 2015

Injury

View full text Add to dashboard Cite

Abstract:OBJECTIVE: To explore information needs of unintentional injury patients and their carers over time, across services, and how such needs are met from the perspectives of patients, carers and service providers.METHODS: Qualitative nested study within a multi-centre longitudinal study quantifying psychosocial, physical, occupational outcomes and service use and costs following a range of unintentional injuries. Semi-structured interviews conducted with 45 patients during the first year post injury, 18 of their carers and 40 providers of services.RESULTS: Patients and carers needed information about the nature and severity of injury, prognosis, self-management and further services. Information needs changed over time with the biggest difficulties being during transfer from primary to secondary care. Barriers to information provision included service providers' time limitations and uncertainty around information provision, and patients' reluctance to ask for information or inability to process it. Suggested improvements included provision of reassurance as well as factual information, information about further services, earlier follow-up, increased appointment times and greater involvement of families where appropriate. This is an accepted manuscript of an article published by Elsevier in 'Injury' available online at http://www.sciencedirect.com/science/article/pii/S0020138314006305?via%3Dihub It is not the copy of record. Copyright © 2017, Elsevier 2 CONCLUSIONS: The information needs of patients and carers post injury change with time and there are a number of ways to remove gaps and barriers in current provision to meet such needs.PRACTICE IMPLICATIONS: Providing information on injury management, prognosis and available services and reassurance at each stage of the recovery process in secondary care and when transferring to primary care would be helpful for patients and carers. A follow-up contact soon after discharge and the opportunity to ask questions could be beneficial. Better information about the patient's needs and ways they can help could help carers fulfil their caring role.

show abstract

“…Studies of technology-mediated patient-clinician collaboration in the hospital [12] and after discharge [5] have shown improved outcomes as a result of this collaboration, underscoring the importance of properly supporting this collaboration. Research has further shown that hospitalized patients and clinicians place different values on specific types of information [6], highlighting the importance of understanding both parties’ needs for the design of tracking tools in the hospital. Because clinicians’ workflows in the hospital environment are complex and constrained, we begin by investigating patients’ perspectives: what process do hospitalized patients envision for collaboratively tracking with their clinicians, and what designs can support them in doing so?…”

Section: Related Workmentioning

confidence: 99%

Supporting Collaborative Health Tracking in the Hospital

Mishra

Miller

Haldar

et al. 2018

Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems

View full text Add to dashboard Cite

The hospital setting creates a high-stakes environment where patients’ lives depend on accurate tracking of health data. Despite recent work emphasizing the importance of patients’ engagement in their own health care, less is known about how patients track their health and care in the hospital. Through interviews and design probes, we investigated hospitalized patients’ tracking activity and analyzed our results using the stage-based personal informatics model. We used this model to understand how to support the tracking needs of hospitalized patients at each stage. In this paper, we discuss hospitalized patients’ needs for collaboratively tracking their health with their care team. We suggest future extensions of the stage-based model to accommodate collaborative tracking situations, such as hospitals, where data is collected, analyzed, and acted on by multiple people. Our findings uncover new directions for HCI research and highlight ways to support patients in tracking their care and improving patient safety.

show abstract

Bedside information technology to support patient-centered care

Cited by 60 publications

References 24 publications

Patient Experiences Using an Inpatient Personal Health Record

Patient Experiences Using an Inpatient Personal Health Record

Understanding and meeting information needs following unintentional injury: Comparing the accounts of patients, carers and service providers

Supporting Collaborative Health Tracking in the Hospital

Contact Info

Product

Resources

About