Being a parent of the adolescent with complex chronic pain: An interpretative phenomenological analysis

Abstract

Parents who are unable to achieve the relief of their adolescent's chronic pain and suffering report significant personal distress that is exemplified by the repetitive search for legitimacy of their child's pain in 'diagnosis'. In the absence of diagnosis parents reported an unwelcome suspension in an unusual pattern of parenting, resembling the infant phase of parenting.

Pain in Juvenile Idiopathic Arthritis—A Family Matter

“…Research suggests that social aspects, and specifically related to parents, ought to be included in study designs (Craig, Lilley, & Gilbert, 1996;Jordan, Eccleston, & Osborn, 2007).…”

Parental catastrophizing about child's pain and its relationship with activity restriction: The mediating role of parental distress

“…Pain functions to attract both our own attention [14,19,39,68,71], and other's attention [7,12,20,37,41,52], whose responses may, in turn, influence sufferer's pain [32]. This may be particularly salient in the context of pediatric pain as children and adolescents are highly dependent on parental care.…”

Lėtinis vaikų skausmas biopsichosocialiniu požiūriu: samprata, įvertinimo ir gydymo strategija

“…Labai svarbu, kad sveikatos priežiūros specialistai sudarytų galimybę tokiems vaikams sužinoti daugiau apie savo skausmą, padėti suprasti jų skausmo prigimtį [37]. Be to, tėvai kartais jaučiasi kalti ar net niekinami dėl savo vaiko skausmo [38]. Tai nutinka dėl to, kad lėtinis skausmas dažniausiai neturi ūminiam skausmui būdingo specifinio elgesio ar jis būna mažai išreikštas.…”